Quick question about referral times for the one... - Thyroid UK

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Quick question about referral times for the one stop thyroid clinic...

Dobermum profile image
4 Replies

Hi all, I’m waiting to hear back regarding an appointment at the one stop thyroid clinic after GP referral. I was wondering if anyone knew how long that usually is. My thyroid is functioning normally but my thyroid and lymph node is swollen on one side (as well as other weird things) and it’s worrying me. My friends nagging me to chase but not sure if I should. It’s been three weeks.

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Dobermum profile image
Dobermum
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4 Replies
SlowDragon profile image
SlowDragonAdministrator

I don’t think anyone here is aware of such a “one stop thyroid clinic”

Do you have FULL thyroid and vitamin test results?

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Email Dionne at Thyroid UK for list of recommended thyroid specialist endocrinologists

tukadmin@thyroiduk.org

Dobermum profile image
Dobermum in reply to SlowDragon

Thank you for your reply :) This is what I’m talking about thyroiduk.org/thyroid-cance... I’m waiting to be seen in Oxford and they call it a One Stop Thyroid Clinic.

I’m not actually sure exactly what tests they did. I had 4 containers of blood taken. 3 went in one envelope, one in a separate envelope. They said it was for a Thyroid function test. As you can imagine not much is being explained.

My GP originally referred me for an ultrasound but that was rejected and she was told to refer me to the clinic.

SlowDragon profile image
SlowDragonAdministrator in reply to Dobermum

So you are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

SlowDragon profile image
SlowDragonAdministrator in reply to Dobermum

You can get private ultrasound scan done £150

I have details of private options in London.

Send me private message if you want details

Or private endocrinologist in Oxford is on the list of recommended thyroid specialist endocrinologists

Email Dionne at Thyroid UK for list

tukadmin@thyroiduk.org

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