Public Health England issues rare alert over il... - Thyroid UK

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Public Health England issues rare alert over illicit prescription drugs

helvella
helvellaAdministrator

At other times, I might not have posted this story. With both Covid-19 and the other posts about restricting prescription of pain relief medicines, it seems pertinent.

Public Health England issues rare alert over illicit prescription drugs

Surge in tablets sold as benzodiazepines, used to treat anxiety or insomnia, linked to hospitalisations and deaths

theguardian.com/science/202...

Actual alert:

cas.mhra.gov.uk/ViewandAckn...

16 Replies
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How very worrying. It would be wrong to assume that people using these drugs are addicts seeking a high. Given the increasing difficulty in getting certain drugs prescribed - because prescriptions are abruptly stopped - many will resort to obtaining their own meds.

Many if us on this forum are ‘illicit’ ‘drug’ users in terms of how and from where we obtain our thyroid hormones.

TSH110
TSH110 in reply to Scrumbler

All the more reason for giving us a proper choice of thyroid meds from reputable sources rather than pushing us into sourcing our own. We aren’t illicit users because it is legal to obtain and use them for ourselves or a family member needing thyroid meds

Scrumbler
Scrumbler in reply to TSH110

The link provided by helvella wasnt about thyroid hormones though.

That said, I couldn’t agree more that we should have what we need to meet our thyroid needs and not have to self-source.

Sadly I am an illicit user / importer as ‘personal use’ is defined as 3 months supply. I buy Thyroid S bottles of 500 x 2 (because they stopped doing the 1000 count bottles. These last me for 18 months. I can’t think of many of our members who will restrict their purchases to 3 months supply

It is indeed scandalous that we have to source them, pay for them and then go through the hassle of delivery worries. If a diabetic had to source their own insulin there would be an uproar.

tpauk.com/main/article/mhra...

helvella
helvellaAdministrator in reply to Scrumbler

There is no legal basis of which I am aware for a three month limitation. I have always considered it a rule of thumb - up to what is seen as a three month supply, no issue. Longer time and questions need to be asked to ensure no supplying others issues.

Though how any HMRC/Border Force person can tell how long a given quantity will last, I do not know.

Scrumbler
Scrumbler in reply to helvella

Link above came from TPAUK but I have read it elsewhere.

Don’t care anyway. Could do with a spell in prison to ease the monotony - and the porridge is good in there 😊

helvella
helvellaAdministrator in reply to Scrumbler

I have read it myself - several times. But I have not managed to find any law which upholds the statement.

Some parts of government seem very willing to say things without backing them up. They should have written something more like this:

We will usually consider a three-month supply as being reasonable for an individual to import. Larger amounts might result in our investigating further, including contacting the person who ordered them, before releasing imported goods for delivery.

Scrumbler
Scrumbler in reply to helvella

Yes. That would have been better. Vagueness seems to be a hallmark of government information - as demonstrated in the current advice regarding Covid.

On the subject of ‘personal use’ of drugs there is till no defined amount of cannabis for personal use.

I’m getting a bit tired of the language being used at the moment by the government. I’ve never yet heard a teacher say “Pupils are advised to sit down and get on with their work” and receive much in the way of compliance 🙄. We know that some of the government Covid advice isn’t mandatory but a bit more commitment to achieving objectives and outcomes would be helpful.

knitwitty
knitwitty in reply to helvella

"We will usually consider a three-month supply as being reasonable for an individual to import. Larger amounts might result in our investigating further, including contacting the person who ordered them, before releasing imported goods for delivery."

As regards the statement above, maybe the powers that be should investigate why we need to obtain ANY medication from abroad and deal with the situation so many of us have to face. As regards just getting 3 months supply, I can't imagine why anybody would get enough for just 12 weeks as that could very easily leave us without any medication should there be any sort of hiccough in the supply chain.

The whole situation regarding having to source and obtain our own medication is completely ludicrous. As someone has already mentioned I can just imagine the furore if Diabetics had to source their own insulin.

helvella
helvellaAdministrator in reply to knitwitty

I have an indistinct memory that there were many issues with insulin around 1982 when recombinant human insulin became available but some wished to remain on animal insulin products.

I have no idea if patients imported their own at all.

A little bit of background appears here:

en.wikipedia.org/wiki/Insul...)

knitwitty
knitwitty in reply to helvella

A very interesting read, Thank you helvella.:)

Scrumbler
Scrumbler in reply to helvella

I am reliably informed that a few patients do import.

This article is extremely interesting.

iddt.org/diabetic-commonsen...

helvella
helvellaAdministrator in reply to Scrumbler

Quite a parallel to thyroid.

Thank you. I knew that there had been a fuss at the time, but not much else. And the name "Genentech" - no idea why that stuck.

I can quite see that patients would sooner stay on animal insulin products as a few years later Creuzfeldt Jakob Disease appeared in Human Growth Hormone patients. A year after HGC was taken off the market, synthetic Growth Hormone came onto the market. It appeared to work as well. My son was taken off HGC in 1983 and put onto the synthetic GH in 1984. During that year his growth spurt was very much diminished.

TSH110
TSH110 in reply to Scrumbler

Quite agree I also take ThyroidS, it's getting to be a challenge to find a supplier - the whole situation is nuts. I find it by far the best thyroid hormone therapy for me. I became incapable of work on Levothyroxine, you want to be a productive member of society and are forced to be economically inactive by the limitations placed on medication choice, unless you take control of the situation and self medicate on what is effective in your case. I have no problem working full time on NDT. It’s medicine gone mad.

I had an email recently from a company I bought from once, many moons ago, (cue Tijuana taxi) who have a sale on...including a discount on Tramadol, an opiate 🙄 the world's gone even madder than I thought it was

Scrumbler
Scrumbler in reply to Rapunzel

Opiate overload.

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