Public Health England issues rare alert over il... - Thyroid UK

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Public Health England issues rare alert over illicit prescription drugs

helvella profile image
helvellaAdministrator
10 Replies

At other times, I might not have posted this story. With both Covid-19 and the other posts about restricting prescription of pain relief medicines, it seems pertinent.

Public Health England issues rare alert over illicit prescription drugs

Surge in tablets sold as benzodiazepines, used to treat anxiety or insomnia, linked to hospitalisations and deaths

theguardian.com/science/202...

Actual alert:

cas.mhra.gov.uk/ViewandAckn...

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helvella profile image
helvella
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TSH110 profile image
TSH110

All the more reason for giving us a proper choice of thyroid meds from reputable sources rather than pushing us into sourcing our own. We aren’t illicit users because it is legal to obtain and use them for ourselves or a family member needing thyroid meds

helvella profile image
helvellaAdministrator

There is no legal basis of which I am aware for a three month limitation. I have always considered it a rule of thumb - up to what is seen as a three month supply, no issue. Longer time and questions need to be asked to ensure no supplying others issues.

Though how any HMRC/Border Force person can tell how long a given quantity will last, I do not know.

helvella profile image
helvellaAdministrator

I have read it myself - several times. But I have not managed to find any law which upholds the statement.

Some parts of government seem very willing to say things without backing them up. They should have written something more like this:

We will usually consider a three-month supply as being reasonable for an individual to import. Larger amounts might result in our investigating further, including contacting the person who ordered them, before releasing imported goods for delivery.

knitwitty profile image
knitwitty in reply tohelvella

"We will usually consider a three-month supply as being reasonable for an individual to import. Larger amounts might result in our investigating further, including contacting the person who ordered them, before releasing imported goods for delivery."

As regards the statement above, maybe the powers that be should investigate why we need to obtain ANY medication from abroad and deal with the situation so many of us have to face. As regards just getting 3 months supply, I can't imagine why anybody would get enough for just 12 weeks as that could very easily leave us without any medication should there be any sort of hiccough in the supply chain.

The whole situation regarding having to source and obtain our own medication is completely ludicrous. As someone has already mentioned I can just imagine the furore if Diabetics had to source their own insulin.

helvella profile image
helvellaAdministrator in reply toknitwitty

I have an indistinct memory that there were many issues with insulin around 1982 when recombinant human insulin became available but some wished to remain on animal insulin products.

I have no idea if patients imported their own at all.

A little bit of background appears here:

en.wikipedia.org/wiki/Insul...

knitwitty profile image
knitwitty in reply tohelvella

A very interesting read, Thank you helvella.:)

nightingale-56 profile image
nightingale-56 in reply tohelvella

I can quite see that patients would sooner stay on animal insulin products as a few years later Creuzfeldt Jakob Disease appeared in Human Growth Hormone patients. A year after HGC was taken off the market, synthetic Growth Hormone came onto the market. It appeared to work as well. My son was taken off HGC in 1983 and put onto the synthetic GH in 1984. During that year his growth spurt was very much diminished.

Rapunzel profile image
Rapunzel

I had an email recently from a company I bought from once, many moons ago, (cue Tijuana taxi) who have a sale on...including a discount on Tramadol, an opiate 🙄 the world's gone even madder than I thought it was

helvella profile image
helvellaAdministrator

Quite a parallel to thyroid.

Thank you. I knew that there had been a fuss at the time, but not much else. And the name "Genentech" - no idea why that stuck.

TSH110 profile image
TSH110

Quite agree I also take ThyroidS, it's getting to be a challenge to find a supplier - the whole situation is nuts. I find it by far the best thyroid hormone therapy for me. I became incapable of work on Levothyroxine, you want to be a productive member of society and are forced to be economically inactive by the limitations placed on medication choice, unless you take control of the situation and self medicate on what is effective in your case. I have no problem working full time on NDT. It’s medicine gone mad.

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