TED case

[Santos82]

Currently i am in remission.

Can i do a surgery to fix my eyes shape since i am in remission? What if i stopped being in remission will my eyes go abnormal again?

My doctor suggested decompression or retraction repair. I don’t know anything about these.

[Lalatoot]

Santos thyroid eye disease and Graves disease are caused by antibodies attacking the thyroid tissue and the tissue around the eyes. Although they are caused by the same autoimmune condition they are independent of each other so they don't necessarily both get worse or go into remission at the same time. You would need to get professional advice on whether or not to go ahead with your eye treatment.

[Santos82 in reply to Lalatoot]

But if my tsh levels are normal for some time, then i am in remission. And this is important to the eyes.

[Lalatoot in reply to Santos82]

3. My endocrinologist said that my blood work now shows normal thyroid levels. Why am I still having problems with my eyes?

In thyroid eye disease, the eye findings often do not closely mirror the patient's endocrine status. Although the immune process affects both the eyes and the thyroid, the two processes are often out of sync with each other.

The full document isuwhealth.org/eyecare/20-que...

[pennyannie in reply to Lalatoot]

Hey there again Santos

My issue developed after the RAI and ran about 3 years behind my initial symptoms of Graves.

My eye issues could have been caused because of the RAI - but can't get a straight answer out of anybody and have now given up with the questions as I find it all too stressful and exacerbating my health issues rather than improving them.