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Antibodies 1300+ top of lab range. Can anything... - Thyroid UK
Antibodies 1300+ top of lab range. Can anything apart from diet reduce them? (They were 866 in 2014).
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Lillie23
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SeasideSusieRemembering
Lillie
Are you on Levo? If so then suppressing TSH can help reduce antibodies. Also, supplementing with selenium l-selenomethionine 200mcg daily can help.
Thankyou Susie :).
I'm on 75 levo and 20 T3. Last blood test on 50 levo and 20 T3 was 0.83 but T4 7.
Think it needs to be upped again as I've not noticed any difference and I'm not losing any weight still, just staying overweight. Fed up of being a fatty.
I haven't lost any weight since adding T3 to my Levo the last 18 months, my results look good on paper, FT3 close to top of range, FT4 mid-range, TSH suppressed, all as expected on my dose, but still symptomatic and can't shift the extra weight (although I could do with only losing about 10lbs).
How are your vitamins and minerals - all optimal so thyroid hormone can work properly?
Strictly 100% gluten free?
Is your TSH 1 or below, preferably suppressed as you're Hashi's?
My family always say I should eat less and better. I can't move more as I have fatigue so spend a lot of time in bed.
Yep still symptomatic and stones overweight. It really sucks, along with depression and anxiety.
Vitamins okay as have b12 injections. I have bought vits and minerals but stopped taking in September as I couldn't be bothered 
due to taking so many.
No not strictly gluten free as I feel it's the only thing that gives me pleasure bit started looking into artisan gluten free bakeries last night.
Yes TSH was 0.83.
Sorry for rambling
I'm not Hashi's so no personal experience, only what I've read.
I have some links that might be useful if you've not already seen them
stopthethyroidmadness.com/h...
stopthethyroidmadness.com/h...
hypothyroidmom.com/hashimot...
thyroiduk.org.uk/tuk/about_...
and apparently 100% gluten free is very important
Gluten/thyroid connection: chriskresser.com/the-gluten...
Gut health is important as gut/absorption problems tend to go hand in hand with Hashi's and often results in trashed nutrients - see SlowDragon's reply in this thread healthunlocked.com/thyroidu...
You should keep your vits and mins up to optimal levels so maybe retest and resume supplementing. I know, it's a pain - I recently had a 2 week supplement holiday, unplanned as I was going to do a thyroid test and leaving off some supplements for a few days, picked up a virus and test got delayed, must admit it was bliss not taking all the supplements every day but I soon noticed how quickly my leg muscles began to complain without my Vit D, and I had a mega cramp in my foot one night when I didn't take my magnesium!
So really, the main 3 things for reducing antibodies are:
Suppressed TSH
Strictly Gluten Free
Supplement with Selenium
Thankyou for the links, I'll go through them over next few days.
Yes, I need to get more disciplined, just so hard when you feel pants!
Thankyou, I will try my best to do those things :).
Thanks for all your advice and kindness x
Reading through your post & replies, I was so sad you spend a lot of time in bed. Have you had vitamin D, ferritin and folate tested? Also CRP which is a test which shows inflammation? If I was in your state of ill health I would press very hard for as many tests as possible. Has your GP marked you off as ME/CFS, or mental health issues? Can't look at your profile as I will lose what I've written. How long have you been so ill?
PS I wrote this post a while ago..... just a thought for you.
healthunlocked.com/thyroidu...
I have this gene problem too
If you have "this gene problem too" meaning the dodgy DIO2 thyroid gene, taking any levo is a waste of time and will probably end up as Reverse T4. I would say from my own sad story that you should only be taking T3. I was not well even on only T3 until I was taking 40mcg a day
Oh really? My t4 is too low though? Been fighting to keep 20mcg of t3 for 2 months now so daren't ask for change yet!
My blood tests show that my T4 is negligible and my T3 is at the highest point and sometimes over range. Gps and endos hate those results but I feel well for the first time in 30 years. I was on 20mcg of T3 a day (no T4) for many years and still felt really awful. Not until I increased to 40mcg a day did I feel normal. Your genetic test shows your body struggles to convert T4 into the usable thyroid hormone T3 so doesn't know what to do with the T4 you are putting into it. As many on here say, it shouldn't be all about blood test results, but how you are feeling.
That's brilliant that you've got better by trialling your meds! have spare t3 a relative picked up from Greece in case I got it taken away. Should I add a tablet in so I take 45mcg a day? The Greek tablet is 25mcg.
I personally would buy a pill cutter and cut the 25mcg T3 into half for a couple of weeks. Therefore you will be taking 20 + 12.5 = 32.5mcg. Or you could cut your 20mcg pill into 2 = 10 + 25 = 35mcg a day. See how you feel. But keep increasing to 45mcg a day if you still feel unwell.
As I said previously, I didn't feel normal until I started taking 40mcg of T3 daily. I'm 5ft zero, weigh 7.75 stone, so quite small. I would expect a person taller than me to possibly need more ?
I already have a pill cutter :). I'm overweight at 5 foot 4 and 14 and a half stone so maybe I might need more like you say, who knows! I am just pleased that I might be able to feel a bit more human! Shall I keep increasing my t4 too? X
No, certainly don't increase your T4. The whole idea is to come OFF the T4 and only take T3. The much higher dose of T3 will keep your thyroid much happier. It's best if you start off with somewhere around 30mcg a day of T3. Wait around 4 weeks to see how you feel. Then if you still feel ill, you could increase to the 37.5mcg a day. Stay on that 37.5mcg dose for around 6 weeks and see how you feel. I think it would be wisest to get a thyroid blood test after about 8 weeks (either private or NHS if you can get it) to see what's happening. Good luck x
Okay thankyou, will up t3. I haven't heard others coming off t4 totally. Thankyou x
There are many on this forum who only take T3. I myself was on T4 only for 14 years before I knew I couldn't convert. If as you say, you definitely have the DIO2 genetic fault (found via private saliva test) then your body is unable to cope with any T4.
Fab. Just wanted to know it was safe:). Yes I have the gene thing, done with regenerus. Thankyou so much again x
Yes, I've had all those tested. Don't recall CRP but probably have inflammation because of hashi's anyway. Also had short synacthen test and Lyme disease.
Well I've seen CFS consultant who says I haven't got chronic fatigue syndrome, just chronic fatigue as a symptom. They can't say it's CFS as I have the autoimmune disease and mental health issues.
So as far as I know I will be like this for life, unless I get over it. I've been like this since Nov 2014, lost my job in January. Got dumped 2 weeks ago as think all the health stress was too much for my boyfriend.
Future looks bleak but I'm trying to keep going x
healthunlocked.com/thyroidu...
Shaws posted this link. I've signed up for it. We could well learn a lot from it.
By the way, have you tried taking magnesium for muscles, high dose vitamin C, zinc, multi B vitamins?
Also I found 5-HTP helped me a lot. It's totally natural and gives the amino acid tryptophan which is a precursor to the neurotransmitter serotonin and the hormone melatonin.
naturesbest.co.uk/5-htp-tab...
Just read your post from about 2 months ago. Sorry I'm bombarding you!!!! You said you had thrush. In that case you probably have candida albicans. (which I had along with mega low thyroid). Which just may be a reason for weals etc ? Grapefruit seed extract along with no grains, no yeast, no sugar, (and I did no dairy too) for as long as you can stand it. Good luck
Thanks for link, I'll have a look! Yes I have all those vitamins but stopped taking them as lost motivation, but need to start up again.
I don't know if I can take that along with my antidepressants but will be seeing my GP on Monday to talk about med review. Kind of want to see if oxytocin can be prescribed to help low mood. And you're not bombarding, trust me, it's kind of you to take the time to reply x
My antibodies were >1600 and were tested a few years after starting thyroxine. A few years on from that and they are still over normal but reduced. I am not on a gluten free diet but do avoid cereals as much as possible.
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