Stopped my meds not feeling good: I'm not good at... - Thyroid UK

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Stopped my meds not feeling good

Hs1126 profile image
3 Replies

I'm not good at remembering to take my tyrode med I been without a few months now my feet and hands are hurting my ears stopped up I'm dizzy nauseous and no energy today I started back on med should I take 2 pill or just the one and how long before I feel better and my tyrodes was taken out few years ago what do I do

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Hs1126 profile image
Hs1126
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Anthea55 profile image
Anthea55

Welcome to the forum, Holly

You must be feeling really poorly without your thyroid and without medication. Poor you.

Now that you are getting back to taking the pills I suggest that you should just start with one a day so that your body can get used to it. It's always best to build up slowly, but it will take time for you to feel better. What pills are you taking and what were you told about taking them?

Remembering can be difficult especially when you are feeling ill. Can you take it when you wake up in the morning? I find it helps to have a glass of water by my bed ready for that.

You doctor should be asking for blood tests so that he can see how you are doing. In the UK our doctors should test after about 6 weeks and raise the dose, repeating that until you feel better. Does your doctor ask you to take regular blood tests? Can you go and see him again? You must be honest and tell him that you've been missing your pills.

All the best. It will take time, but it will be worth it.

Hs1126 profile image
Hs1126 in reply to Anthea55

Thank you and I will be making an appt and yes he takes blood work I have been out of town for few months so when I get home I will and I'm on Levo something lol thankbu

shaws profile image
shawsAdministrator in reply to Hs1126

Once we are diagnosed as hypothyroid, we can never stop thyroid hormone replacements. It is needed to run our whole metabolism, and we have billions of receptor cells in our body which need T3 in particular (T4 - levothyroxine should convert to T3 and dose of T4 should be optimum) Our brain and heart in particular need it most.

When we are on an optimum dose we should feel well but some doctors don't increase the dose sufficiently and are happy when TSH is somewhere in the range when it should be 1 or lower.

When you have a blood test for thyroid hormones it has to be at the very earliest, fasting (you can drink water) and allow a gap of 24 hours between your last dose of levothyroxine and the test and take afterwards.

This helps give us the best results as doctors only seem to look at the TSH result and don't test Free T4 and Free T3 occasionally (especially if we don't feel so good).

Our vitamins/minerals have to be optimum too, i.e. B12, Vit D, iron, ferritin and folate and you should have these tested as well.

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