Sjogrens: just been diagnosed today......Dentist... - Thyroid UK

Thyroid UK

140,948 members166,084 posts

Sjogrens

dogtired profile image
5 Replies

just been diagnosed today......Dentist says to have thyroid tests too....Dr says last one was normal (TSH 4.16). I want a private referral to an Endo in South Devon....can anyone recommend someone at the R D&E or Torbay Hospital or similar.

thanks dogtired

Endo recommendations via Private Messages please in line with posting guideline #24, thank you, Clutter.

Written by
dogtired profile image
dogtired
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Clutter profile image
Clutter

Dogtired, email louise.warvill@thyroiduk.org.uk for a list of recommended endos.

Sjogrens is an autoimmune disease which often goes hand in hand with thyroid disease. HU have a Sjogrens forum and you can also search this forum for posts on Sjogrens.

TSH 4.16 is at the high end of normal. If your thyroid test was 3 months ago it is worth asking your GP to do it again and to test thyroid peroxidase for autoimmune thyroid disease. Have the blood test early in the morning when TSH is highest.

thyroiduk.org.uk/tuk/about_...

You might also ask for ferritin, vitamin D, B12 and folate to be tested as they are often low in hypothyroid patients and cause symptoms of fatigue and musculoskeletal pain and low mood.

You can also order private tests from Blue Horizon and Genova via thyroiduk.org.uk/tuk/testin...

dogtired profile image
dogtired in reply toClutter

Thankyou Clutter for the helpful info....will do...dogtired

faith63 profile image
faith63

Did you have a biopsy done to confirm Sjogrens? Low thyoid/ Hashimotos can dry out the mouth and eyes too and swell the salivary glands.

dogtired profile image
dogtired in reply tofaith63

No..... 2 Dentists made the assessment and I'de had my suspicions about Hashimotos...got to have private tests done. thans for that info....do you know where I can read more about it?

faith63 profile image
faith63

I don't think you can get a definite diagnosis without a biopsy to see if the glands are being attacked by your immune system.. I would get thyroid labs done again. Try and get free t4 and free t3 and tPO antibodies. Most low thyroid is caused by Hashimoto, an autoimmune condition. I was told i may have Sjogrens because my salivary glands absorbed die on a scan i had done and the ones under my jaw look swollen at times, but will also go away when on a higher dose of t3. I did not follow through with testing. When Hypo, you just dry and and swell. I would google Hypothyroidism and pouting sublinguals, also symptoms of Hashimoto, also Hypothyroidism's effect on saliva and eyes. Thyroid manager is a good site

Not what you're looking for?

You may also like...

Levothyroxine and age?

In Levothyroxine instruction leaflet it says not to take it if over 50 years age?! I was never told...
Vrboska profile image

Endo says next time privately?

Hi So I saw the endo and he trialled me on 3 months of T3 (bought with private prescription) and...

Which endocrinologist?

I requested my gp to refer me to a private endocrinologist, which he did. I have been seeing my...
Geegee777 profile image

apparently not hypothyroid but have high levels of oestrogen

Hello, just been to see nhs endo as my dr will not prescribe under current private doc. Says he...
pippadoll profile image

How does it work with a private endo?

Hi Just wondering how people work with a private endo? Did you get a referral from your GP and then...
Arlie123 profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.