rationalwiki.org/wiki/Hypot...
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Rational Wiki ?: rationalwiki.org/wiki/Hypot... - Thyroid UK
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Rapunzel
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11 Replies
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Rapunzel, it reads like it was written by a student endo totally lacking in empathy.
in reply to Clutter
Actually, it would appear it was written by the husband of a hypoT sufferer, poor woman. It couldn't possibly be that she's right and he's wrong, could it?
rationalwiki.org/wiki/Talk:...
Sigh.
Clutter in reply to
LilyMay, can't imagine why they're estranged *face palm*
humanbean in reply to
It was totally bizarre that at the beginning of treatment the woman referred to was treated only on some days of the week but not others - at least to start with. It's as if the doctor really, really wanted to make her suffer for some unknown reason!
gills2 in reply to
He certainly seems to lack compassion for sufferers or have any real understanding of thyroid disorders.
Number one suspect: Weetman.
In his presentation he mentioned all of this stuff. He sounded like he's spent some time perusing the internet.
Hey
There is a new book out, based on the website tiredthyroid.com/ - she had Graves and then RAI and then was on T4 only, then T4 and T3, then T3 only, then NDT only, now on NDT plus T4.
She's done exhaustive research (PHD thesis level) and busts a few myths at both ends of the spectrum - endos and patient groups - she's pro NDT and T3 but I'm finding it fascinating on things like RT3 - not everything we patients believe is correct. If RT3 really blocked receptors for instance, it would be impossible that hyperthyroidism would happen. Also NDT contains direct RT3 as its present in pig thyroids.
It's a really, really balanced view and I'd highly recommend it. The book is also called Tired Thyroid and is available on Amazon.... she's is pro the patient feeling better, and supports T3 and NDT but it's opened my eyes to a few things. For instance, TSH is not useless, it stimulates T4 to T3 conversion, and therefore in patients on T4 only, a little bit of TSH is absolutely necessary. Also the ratio of T3 to T4 in NDT does not suit everyone (T4 is a vital hormone it turns out, and has a big part to play in mood) and in order to get T4 where you need it (or some of us need it) we end up with too much T3 on NDT.
I think some of the mis information from both sides causes the passionate feelings.
I'm buying a copy of this book for my endo (she's already read STTM, we have some interesting respectful discussions, she's open to dialogue, but this new book is so impeccably referenced, I think it'll carry more sway)
Rebecca
x
in reply to Girlscout2
Interesting. Does she provide a reference for the claim that TSH stimulates T4 to T3 conversion? If that truly is the case then anyone who takes T3 and T4 in combination is needlessly taking T4 (as T3 nearly always suppresses TSH production to negligible levels). That makes it rather odd that she's pro NDT.
Girlscout2 in reply to
Yes she does. I'd really recommend the book, and no she doesn't say that, not all of the T3 from a healthy functioning thyroid comes from T4, only some, the rest is from direct T3 produced by the thyroid, which is why she is VERY pro T3 containing meds. All she's saying is TSH is not wholesale 'useless' - she does however say it's a poor indication of correct dosing once you are on meds. And as some people have very poor conversion, they need direct T3.
And once you are on direct T3 it doesn't really matter. It does matter however if you are on T4 only.
Here's her website: tiredthyroid.com/tsh.html
Angel_of_the_North in reply to
There were a couple of in vitro studies where rodent livers were injected with TSH and that resulted in more T3 being converted (but that's not the same as high NATURAL TSH). So injecting extra TSH might help conversion.
Glad this isn't something I read when I started checking hypothyroidism out, and sad that some people will read it and believe it all.
