Newly diagnosed with hyper! What next?

Hi, I have been diagnosed with hyper at the beginning of feb this year, I am going for bloods every 4 weeks, been to see endo, she sent me for ultra sound, I went last week, the lady doing scan told me I have lots of little nodules, and the endo will explain more when I next see her. I am just waiting for next appointment to come from her, which hopefully will not be long as she said she wants to see me every 3 months. Doc put me on carbimazole straight away 10 mg. I hadn't lost a lot of weight before, but I have now started putting weight on! What does it mean by lots of little nodules, what treatment etc? What can I do about weight gain etc, is there anything I can do/ change to help myself, please. Any help and advise please, as the more I read the more confused I'm getting?

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  • Hyperactive thyroid means your thyroid is overactive and putting out too much thyroxine which is speeding up your metabolism, causing symptoms like racing heart, palpitations, tremors, anxiety, diarrhoea and often weight loss.

    Nodules are small growths, usually benign, on the thyroid. They can grow and cause problems by compressing the windpipe and gullet making breathing difficult which is why the edocrinologist will want to monitor them.

    Hyperthyroidism is usually treated with Carbimazole for up to 18 months to regulate and stabilise the thyroid and can go into remission. Regular blood tests make sure that you don't become over medicated and develop hypothyroid ie under active symptoms.

    Sometimes hyperthyroidism is caused by Graves' disease, an autoimmune disease where the thyroid is attacked. Your endo/GP can do a blood test to check for Graves' antibodies which can cause Thyroid Eye Disease (TED) which presents as bulging eyes.

    There are pinned links for Hyperthyroidism and Graves which may answer your questions.

  • I have what you have, it can be OK, I was put on 40mg of carb daily and propanalol for palpitations.... medics wanted to remove half thryoid as thought may be cancerous, had FNA, all OK, then pushed RAI, I did a lot of research and wanted to try other avenues first without discounting this but only as last resort. I am so glad. Ditched wheat, cut out caffeine, looked into supplements and diet, had monthly acupuncture for a year and still have massage. Now on 5mg of carb every three to four days... bloods perfect.. I still have nodules there but seem a little smaller and I have confidence and life back, doing my first ever 10k run next week....... oh I did put on a stone but had lost a lot of weight it is now gradually going despite penchant for chocolate covered raisins (not really one of daily fruit )

  • Hi

    I was on carb for 2 years and have been in remission since last year. I have Graves though and no nodules.

    It is common to put on weight with carbimazole but this will change once you are off them.

    all the best, any issues feel free to ask

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