A year later...: Its been a year since being... - Thyroid UK

Thyroid UK

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A year later...

emzpow10 profile image
7 Replies

Its been a year since being diagnosed. I've put weight on nearly 21stone now... Depression and moods are terrible... Had my bloods done a month ago and they were still fine. So why do i stil feel like poo....???

Please help and advise me

Im getting a copy of my results monday... Im so fed up.

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emzpow10 profile image
emzpow10
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7 Replies
PinkNinja profile image
PinkNinja

Although your results might be 'normal' they might not be normal for you. You may find you do actually need an increase in your dose of thyroxine.

There are other things to consider too such as serum iron, ferritin (stored iron), folate, vitamin B12 and vitamin D. Lower than optimal levels of any of these could contribute to your symptoms and your weight gain. Iron is important for your cells to be able to use the thyroxine you are taking. If your ferritin is below 70 it would be a good idea to supplement with iron, alongside vitamin C. Folate and B12 are important for healthy red blood cells and also energy release. The 'normal' NHS ranges are often not high enough so if you manage to get any of these checked please post the results here so we can help.

Vitamin D is also very important for many metabolic processes. People who have low levels of vitamin D can experience a whole host of symptoms, such as fatigue, joint pain etc, and find it more difficult to lose weight than those with healthy levels.

I hope that helps a little. Post another question when you get your blood test results and hopefully we will be able to help. Meanwhile have a look on the main Thyroid UK website for information about thyroid disease.

thyroiduk.org.uk/tuk/index....

Carolyn x

in reply to PinkNinja

I have been on the Pulse website and there is a GP's debate on vit D (amongst many other interesting debates which are not in our favour to say the least) tests which GP's are debating about only testing for in only a couple of conditions (which does not include ours) to lower costs to NHS budgets. I am not optimistic for our future healthcare for many reasons sadly.

PinkNinja profile image
PinkNinja in reply to

Do you have a list of those conditions? It would be interesting to know :)

emzpow10 profile image
emzpow10

Thank you Carolyn. Ive had a megga shit year... My doctor keeps putting it down to stress etc.... But i've never been this low... only since being diagnosed. What do i do if my doctors don't listen to me?

This is such a complicated condition its hard to know were to start. I have pcos and did alot of resurch in to that... which resulted in me having my two lovely children... But each time i start with uat i just get over loaded.

shaws profile image
shawsAdministrator

The problem is that GP's imagine/have been trained that if your TSH is 'within normal range' whatever other clinical symptom that you get is 'nothing to do with the thyroid gland'. Wrong!!

If we are not on optimum medication it throws our WHOLE system out, as our bodies cannot work efficiently without enough T3 getting into our cells (of which we have billions - the brain having the most). Neither do they test the T3 either or rarely. Levo (T4) should convert to enough T3.

As well, levothyroxine doesn't suit many and there are alternatives which they could try but GP's are only allowed to prescribe levothyroxine. Therefore, you go on the merry-go-round of pain relief, anti-d's, anything other than more thyroid medication. You are forced to go private. There are some sympathetic NHS Endos and if you email louise.warvill@thyroiduk.org she has a list of those plus private doctors.

In Japan (a research article) a young women (21) had multiple pcos and was treated with thyroid medication and they all disappeared without an op. So the advice is to give thyroid medication which may make an op unnecessary.

emzpow10 profile image
emzpow10

That's pco not pcos. Pcos is a endocrine disorder. So what do i do if my doctor won't do anything?

shaws profile image
shawsAdministrator in reply to emzpow10

Get a copy of your blood tests complete with the ranges as labs differ and post them on a new question for someone to comment.

You can also ask to be referred to an Endocrinologist or see a private doctor. Email louise.warvill@thyroiduk.org who has a list of NHS Endos and private doctors and one may be near you.

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