Just a wee rant,isn't it funny or not so that you really can't predict how your day will be

[fion]

I wake up and wonder,what kind of day will I have today,good bad or down right awful,never 2 days the same and its a miracle if I get through a whole day and think what a good day I've had x

[Hidden]

Me too, sometimes I wake feeling not too bad and then end up feeling awful, and sometimes the other way round. This is one of the biggest problems for me, the unpredictability of the conditon, any invitation I accept has to be on the basis of 'if I feel okay I will come'.

This must seem rather weird to all those without thyroid problems, all other conditions seem to have a time span, you get a cold and 5 days letter its better, you break your leg and 6 weeks later you are up and running (sort of).

Just a short while ago I had this very conversation with my husband (who tries but doesn't quite get the ups and downs of it). The only thing I could liken it to was like have a permanent dose of flu.

x

[Hidden in reply to Hidden]

hi Jan, I used to fee less of a human being when friends had cancer and major surgery and were back to work and life and I was still limping along. Also those I know with Multiple Sclerosis who seemed to do more than me and were more consistent.

Then there was those who had studied qualified and had a career, holidays, relationships and I was still limping along in isolation.

Have moved on from that way of thinking and look back and see it was amazing what I managed to do given all the odds stacked against me. All that invisible struggle I had and for a conscientious person it is admirable to come through it with minimal bitterness.

wyn

[Hidden]

yeh know what you mean fion. Last two evenings have been great...tranquil able to concentrate..pain was strange!! but minimal! Well I did dig up a small patch of rubble but even after rain it was a huff and puff job.

The sun makes such a good difference too. I make the bad choice of staying up too late and doing too much when I feel good. One of the hardest things for me is to be consistent and stick to a routine so that my body knows what to expect.

Stopping activity before being too tired...eating just before get too hungry..rising and sleeping at same time is a battle. But I have learned to say No and step back from upsetting news and people.

On difficult days when I absolutely must walk in to town I use my headphones and makes a big improvement on my mood,balance and pace.

Especially true today on a noisy bus...but beautiful scenery and listening to bits of Glastonbury etc.,

It is just possible that I look very comical bouncing along with headphones at my senior age but hey..I am so happy to be alive and cannot contain my joy in those good hours and days.

How are you doing with referrals and medication?

Believe you will have decades of 'whole good days' you are working towards that am sure.

wyn

[marram]

What else can we say? Ditto here. I really want to have a good day, do everything I wanted to do and go to bed happy.

I just have to go to bed happy that I did anything at all. I do the basics, cooking and dishes, and I keep my list of other jobs and get great satisfaction from a new tick each day, even if only the smallest thing.

It's interesting what woolwyn says because I have noticed that. You have to keep a balance of rest and work, a bit like a diabetic with the balance of insulin and food. If you do too much on one day it's as if you have depleted your supply of thyroxine. It makes me annoyed, sometimes.

And then I come on TUK and see that I'm not alone, there are people who understand, and I know that despite everything, I'm blessed.

Marie XX