I have suffered from IBS-D for years and generally manage it. It is largely triggered by stress and is worse in the morning.
But I had my vaccine jab on Wednesday and got quite anxious about it. I wore pull ups but messed myself badly after leaving the centre. The public toilets were closed and I had to travel back on the bus in my mess. I feel so humiliated by this that I have barely slept and am reluctant to go out. Has this happened to anyone else? How do you cope?
Point is you aren't likely to see those people that were on the bus that day you had your accident again and accidents can happen to anyone at any time although they feel like the end of the world when they happen!
Back in September we went out and the public toilets had been closed and one of my friends had to poop outside behind a tree and thankfully I had loads of loo roll and doggy bags to clean up with and we wrote to the council and complained and demanded they see about reopening the public toilets as it was discriminating against the disabled and chronically ill keeping them shut.
Did you ask them at the centre if you could use the bathroom there as most people are very kind if you explain you need to use a bathroom urgently as in no way would you have been the only one there with bowel problems that day.
So sorry to read about your accident.When it's happened to me I have been lucky to be at home.
Do you have any meds on a temporary basis to cope? I was very stressed about an endoscopy and I asked the GP for help. He prescribed a few diazepam. This did help but it did make me feel a bit doolally so I was glad to have someone with me .
It happens; put it out of your mind and forget about it.
I think you have done well.... Because you prepared yourself and wore a pad. Only you knew what happened, so well done. And yes, it did happen to me but at the time I was not prepared👍
Hi there never feel humiliated and down over something that you can’t control it’s a disease !! Chin up x
It’s a vicious circle. I’m as much upset by the fact that it upset me so much. I’ve sat in Zoom meetings in a nappy and giggled as I’ve filled it but for some reason this time really distressed me. Maybe it is because I was in town and I’ve not been hardly anywhere over the last year
Have you seen a doctor to see If there’s any help they can give you ? X
So sorry this happened to you, that must have felt awful.
Please try not to be hard on yourself, it was beyond your control and I am sure if it had happened to your friend you would not be hard on them. You done all you could in the way of preparation. Have you spoken to the pharmacist you can get over the counter medications to harden up stools
Best wishes
Debs
Thanks It doesnt happen often to me when I’m out as it’s usually a morning thing
I have some sort of muscle weakness because I mess myself even with more solid stools.
I am so sorry to hear that, could there be a dietary issue? I had to give up Gluten along with lots of other things. It maybe worth looking into, Food can cause lots of problems
Hi this has happened to me a couple of times it does make you feel bad I know but try to forget about it. I have now cut out gluten and dairy and I am so much better it’s worth a try. X
What is gluten plz
It’s a protein that’s mainly found in wheat but I believe is also in rye and barley you can get gluten free stuff from most supermarkets.
Really feel for you. The number of times in the past I have felt close to an accident on a bus or train due to stress related IBSd are countless.
I cracked my Ibs-d about 6 years ago. I still go out having planned where loos are and with comfort items but I am pleased to say that I have regained a social life and feel less stress as a result having broken the vicious circle with taking silicolgel and using cognitive behavioural therapy techniques to unravel why I was getting stressed in certain situations. The silicolgel handled the diarrhoea whilst the CBT helpedy brain keep calm and rationalise situations. I took small journeys locally and learned to realise that each successful outing was no longer a What If I get I'll but an I Can do it trip. I built these little experiences up and then started eating out until I eventually realised I could be calm and sit hemmed in by people without feeling I'll and enjoy my meal. I won't lie that I still don't prefer to sit on the edge of a row in theatres or a table but I don't panic so much if I am stuck and don't worry about asking people to move. I will never get rid of my comfort items just in case, but I don't go out in fear anymore and haven't had a near accident or the horrid urgency feelings of needing the loo in ages.
On buses when I used to feel these urges I would get off at the next stop no matter where I was and them walk the route until my stomach settled again and the walking seemed to override the urgency feelings. Then I'd get back on at the next stop and repeat again if need be. Trains were a nightmare too. Keeping cool always helped me so o was always flapping a fan or magazine in front of my face, sick bag, immodium and toilet rolls stuffed in my bag.
Now if I know I am likely to feel stressed, I take silicolgel the night before and during the day and it works for me. Flying was worst. I am now completely fine and no longer visit every loo in the airport right up to minutes b4 boarding. I just go once before boarding and once before landing and at the landing airport. That's a huge achievement for me. sorry I have rambled on bit. I know what it's like to have an accident or two as it has happened to me but I do believe you can improve living with IBSd and enjoy going out again.
I have my jab tomorrow. I shall take silicolgel tonight and I know where to access toilets at the venue. That's all I can do. but the main thing is that I am not focussed now on the What If but the I Can. it helps me. I hope you can find the combination that works for you.
What is silicolgel, how does it help you and where do you get it? Thank you
Boots Chemist , excellent , in liquid form , but pricey £8 , in blue and white box - for indigestion . Tesco also sell it - does come on offer from time to time , but excellent , works immediately
I don't get indigestion though, just tummy ache and bloating!
All as in the above post really Funkyfaerie. Really helped me break the psychological / stress induced IBS-D that i suffered for years. I also use it for night-time reflux. Hope it works for you if you do try it.
Thing is I don't get indigestion or reflux, just tummy ache, bloating and either Ibs c or d... Normally in that order. I think it's mainly anxiety with me and fear of the ibsd!Do you think it could still help and how do you take it with food?
I eat Imodium like candy. At least 4-6 bout every day. My condition is worse at night, while sleeping. So to get some sleep I have to. I hope it gets better for you, as for me the jury is still out.
It has happened myriad times over forty years but I always walked home no matter the distance. If that were impossible then I had someone call me an ambulance and I sat on the ground until it arrived. The paramedics were always understanding. Once someone threatened to call the police because I knocked over a toddler running to get to a loo. I voided while being held captive by members of the public but they relented and called for medical help instead. I died a thousand deaths but it never stopped me from going out. If you want more info send me a personal question as I have outlined my regime many times on here and do not want to bore everyone. I have not had an attack for sixteen months so maybe, maybe I’ve cracked it. Con amore Bx
I’m new here but have had IBS for 12 years. I’ve been on Laxido for the IBS-C but over the last few months I’ve had faecal leakage if I go out for a walk. It’s not a full motion but very embarrassing. Can anyone recommend a good pad that masks the odour ? I’m getting scared to go to the supermarket or see my family ..I’m dreading meeting friends after the lockdown ends I’m so scared they will smell me. Please help,
If it’s only a small leakage you can put a tampon in your rectum. This might do the trick. Or, you could try a glycerin suppository 30 minutes before leaving home. This should clear out any residue still present in rectum. There are anal plugs called peristeen that you can order on the internet. I understand completely how you feel. There is a special place in heaven for us. We are good people and we don’t deserve this. Con amore Bx
Thank you Batteria & WellySam. I hadn’t thought of a tampon, I think I’d be scared the string would break! Are they normal incontinence Tena pants or special ones for bowel motions....I worry myself sick about smelling.
This is for welly Sam as well. Buy the tampons with applicators as they are much easier to insert. Bonne chance. Bx
It is humiliating. I have messed myself several times in the car, and on walks during lockdown. It is very embarrassing and makes me feel very anxious now to go out anywhere where I'm not certain of toilet facilities - like a long walk! I have just started a 3 week course of Enterosgel and have stopped eating bread/pasta, legumes, vegetables such as courgette, cauliflower etc, and lactose free milk. No fruit other than a few blueberries in the morning. I have improved immensely although I am still not confident about going out for the day - I need to build up gradually I guess. You can take loperamide/imodium but it is not the answer long term. Hope this helps.
That happened to me as well on a walk during lock down back in January and thankfully I was near home when it happened and got myself cleaned up and laughed about it afterwards!
Hello, You are not alone. I had to use a gutter in the street whilst on holiday a couple of years ago. Many times almost an accident too. Have a disabled toilet key but have found them all locked up. Complaints to the council not taken seriously.I have various strategies, pull up Tena, bedpan and bucket in my car as well as wipes, change of clothes etc. Small air deodorant spray in my bag and work out toilet locations before going anywhere. I try to move on, move forward after a bad day. Good luck.
You are my twin sister Katerina. I have had the same affliction for decades. I seem to have cracked it now with kimchi and sauerkraut but I still have frequent nightmares. Con amore Bx
Can you tell me more about kimchi please and how it’s helped you?
Kimchi is fermented cabbage, carrot and onion. It is kept in jars buried in the soil for a year and then sold. Apparently, during the fermentation process the chemical composition of the vegetables changes and the result is good gut bacteria. I started by taking one teaspoonful of kimchi before every meal. The taste is abominable but I don’t care about that. I knew within a week that something good was happening to my body. All the pain stopped and I stopped being taken short at the most inconvenient times. You can buy kimchi at your health store but it is becoming hard to find as it flies off the shelves. You can also order it on Amazon. Sauerkraut is good too and Tesco sell it. If you read the clever guts diet by dr Michael Mosley you will be well informed about bowel disturbances. If you really can’t stand the taste you can add it to soups, stews or disguise it by adding some hp sauce. Buona fortuna. Con amore Bx
Thank you . If I can find some I’ll give it a try.
I hope you can get some quickly. Another good thing I’ve found is sea kelp tablets taken just before bed. These are tasteless and help slow down the peristalsis. I play the drums (batteria means drums) and I still don’t trust my bowel so I always fast before a gig. It’s the only way to be sure as I could never allow myself to void on stage being the only female in the band. Once I was out on a date with a much coveted man and I had to race to the loo in the theatre. I got there just in time and dropped two twenty pound notes down the toilet. I flushed them away of course but was so traumatised I never went out with another man on a romantic basis. But don’t think I’m unhappy. I still have a very interesting life. All my best wishes. Con amore Bx
Hi Wellysam. I really feel for you and I too have problems like yours. I have on a number of occasions been out with my dog and the cramps and diarrhoea begin at one time I had to run into a field behind some houses and only just made it if anyone had been around I don’t know what I would have done. I’ve even thought about wearing incontinence pads for times when take out dog because we go quite far from home. Try to get your confidence back by just going out for short walks about 10 mins at a time and build up from there. But I’m like you frightened to go too far because when it happens you can’t stop it. I don’t think the public who haven’t got IBS realise how difficult it is for people like us they just castigate us. However it happens to quite a few people I heard about a lady who had an upset stomach on holiday and she had a number 2 accident and her husband had to walk behind her all the way back to hotel so no one could see. I think it is more common than you think but people don’t like talking about it. Also I think we should lobby councils to open the ruddy toilets there’s nothing worse than being desperate only to find the toilet locked !! Anyway try not to feel too bad it is more common than you think. You’ll never see those people on the bus again but don’t lock yourself inside just go out locally for short times and build up from there. Good luck and take care x
O I've had lots of accidents I constantly wear the always descreet pads, the long ones if I am going out the short ones at home, I find them ok if I have to go away for the day I have to plan the day before like not eating rubbish and only brunch and evening dinner, camoile tea before bed so that I go in the morning then after I go I take 2 Imodium I might even go again before I leave then maybe 2 more but I am sorted then and then I need to watch what I eat on the day out lactose free milk and gluten free helps and then bringing change of clothes and wipes and of course checking for toilets in the area before going anywhere God the things we have to do, I envy people that can just go where they like without all the drama
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How do you give yourself security?
Problems with bowels - diarrhoea!!
Nausea at night
IBS and Anxiety
