Ventral rectopexy

[Sandra2468]

Posting yet again to see if anyone has had a successful surgery.

Please make contact

Sandra

[Lin93]

Hi Sandra, yes I had the LVMR in June. I have just done a new post today.

I had it because of a bowel prolapse and intersussuption. I didn't know I had these until I started having nerve pain two years ago.

I also had a bladder prolapse and slight prolapse of the uterus.

Have you decided to go for this surgery?

If you have any questions, feel free to ask.

Take care , Lin xx

[Sandra2468 in reply to Lin93]

Hello Lin,

Thank you for getting back to me.

We all appear to have slightly different symptoms.

How are your symptoms now as regards your nerve pain?

I do not have nerve pain or constipation.

Have been told that I have.

1. High grade intussusception by one specialist.

I do need to wipe my bot 3 or 4 times.

2. Have slightly conflicting advice on whether banding the tissue will help.

Advice now has been that it may make continence issues worse.

I'm not sure if this op will help with this I haven't asked re continence issues.

I have some occasional accidents.

At present I am trying to do anal sphincter muscle exercises with difficulty.

For me it is as though there is an obstruction in my anus, a feeling of a foreign object/lump there 24/7.

Worse on waking early morning after lying on my bottom. Worse when sitting. Relieved immensely when upright and standing with no pressure on bottom.

I am though not worse with any prolapse dragging at the find of the day which is common with prolapse.

I do not suffer with constipation which I believe is often the case with intussusception.

Did you suffer with constipation?

A London hospital turned me away for pain management.

I was advised Ventral Rectopexy in April, hospital outside of London.

This has been a long haul of seeing gynaecologists and colorectal soecislists, for some months now.

My initial issues were haemorrhoidal, swollen veins without bleeding, or itching which you get with haemorrhoids.

Also I have chronic low back pain on waking which I am told is not connected! I believe this is facet joint deterioration.

My waiting is because I also have supposably benign pelvic lesions which have remained stable but my worry was that they may be influencing this hence my delay with surgery.

And my worry that my body may react against the mesh put in for Ventral Rectooexy surgery.

Where did you have your surgery and with whom?

Is your nerve pain better or may be it is too soon to ask?

I also have uterine prolapse too.

My womb is right down at the entrance, also bladder down.

Have seen a number of specialists gynaecologists willing to give me hysterectomy and anterior repair or sacropexy, keeping uterus but supporting it with mesh again.

The gynaecologist not convinced uterine surgery will help my anal region.

Also one gynaecologist not convinced my symptoms were of true uterine prolapse.

I don't appear to be symptomatic on the uterine side. My bladder is not leaking but I am assuming my womb is causing most if this pressure with my bowel.

I am not worse at the end if the day. Walking does not make me worse. In fact I do not suffer with any worse symptoms at the end of the day which I believe to be common with prolspse.

I wake with this anal discomfort from lying on my bum.

So I don't think I am a straight forward case.

I am though getting worse.

I have been offered a possible dual surgery however this will be done depending on what is required at surgery.

My concern is that there have also been many negatives on the net and the surgeon I would like to go with has not been able to put me in touch with any patients with a successful outcome.

Again my delay in having this op.

Would very much appreciate you responding and I wish you every success in your recovery.

Sandra

[Sandra2468 in reply to Sandra2468]

Lynn,

Just read your earlier post. I have been offered surgery with the same surgeon.

Good luck with your recovery.

Where do you live?

May be good to get together when you feel better.

Was your surgery NHS or private?

I also have some incomplete evacuation hence the intussusceotion.

Sandra X

[Lin93]

Hi I live in Worcestershire and only found Mr Dixon through Doctor Greenslade after doing research myself about pudendal neuralgia. He suspected I had a bowel prolapse too and said that gyneocoloagists don't look at the bowel.so he referred me to Mr Dixon.

Before this I had seen a gyneocoloagist and he had recommended I have a TVT and repair. If I hadn't of had an intense burning sensation I would of gone ahead and had it.

The LVMR has lifted my bladder and uterus a little but don't know if I will still need the TVT in the future. Ive heard that the place the mesh is put in this operation can cause pudendal neuralgia so don't really want that now as I have nerve irritation.

The golf ball feeling of something up your bum is associated with pudendal neuralgia but I don't think that's the case with you as you say it's bad in the morning and it gets worse in the evening with nerve pain. My pain in the morning is much better.

I had my surgery on the NHS at the spire in Bristol.

Wish there was a specialist closer so I didn't have to keep doing the journey down there.Sitting makes my pain worse.

It's such a difficult decision,we just have to be guided by the specialists and hope they're right.

Where do you see your specialist?

wishing you all the best Xx

[Sandra2468 in reply to Lin93]

Hi Lin,

There is no magic ball with all of this but I have been suffering a few years not really knowing which way to turn.

As I said I wake with discomfort after lying on my bottom and back. The discomfort worst when sitting.

But I am better when up and mobile not sitting down and NOT worse at the end of the day.

I do not luckily have this pudendal pain you say you have.

I too did research after getting nowhere at a London hospital and at that stage I had no idea there was a surgery on offer. I thought the discomfort was anal cancer it has all been as I am sure with you too a long standing nightmare.

I am beginning to think though that if I have this operation and get better there is help out there for others.

My concern the mesh.

I believe there is decompression of the nerve too for you but you said you had intussusceotion hence the surgery.

However I am aware that these anal sphincter muscle exercises as well as some forms of gynae surgery can in fact disturb the nerves even more.

I do not have pudendal neuralgia.

For me I began 10 years ago with chronic back pain on waking which I dtill have often 6 am.

I have limited sleep because if this.

Then a pushing into my anus whilst sleeping 2 years ago.

Then haemorrhoidal symptoms and now discomfort which is worsening and some incontenance and accidents.

I believe I had a thrombosed haemorroid summer 2011. Yes this is how long I've been in this status . I shall not go into detail.

All the best with your recovery.

I have managed as I work now very part time otherwise I am sure I would have probably had a uterine prolapse surgery which would have made my internal prolapse all the worse.

This operation Ventral rectopexy is still fairly new and not many specialists appear to have the skill of the surgery or in fact agree with the surgery.

Unfortunately I have had some negative responses from some patients which has not helped. but that would be normal on the net.

I hope you make a speedy recovery and hope your nerve pain eases.

I am still undecided but long to get my life back again. I will not get better in my status.

I saw the surgeon 5 months ago and wanted to give anal exercises a good try first.

Sandra

[Lin93]

Unfortunately not,would be lovely if we could just take a tablet and make it all go away!

Thankyou for talking to me,it helps to know your not alone.

I hope the strengthening exercises work for you & your pain free soon xx

[Samnicholls]

Don't have this surgery, had it twice and I'm worse off.