Most useful information source?

[Jane_TBTC]

When you or a loved one was diagnosed, what/where has been your most useful information source?

[Hidden]

To be absolutely honest my husband came across TBTC and found you guys to be most helpful. My daughter had Germinoma brain tumours, which turn out to be pretty rare, so there was little information apart from on the Royal Marsden website. My husband found talking on the phone to someone receptive and understanding to be a great starting point and from there forwards TBTC have supported my daughter through and out the other side. I continue to refer friends to TBTC for advice and support on all matters relating to brain tumours and the wider issues of living with a brain tumour. There are google resources, but it is a scary cyber world full of inaccurate information. TBTC facebook support pages are also a great resource as is this platform. Having other people share experiences and helpful tips on what has been useful to them gives families a toolkit to navigate the challenges of brain tumours.

[astro-means-star Pioneer]

I've found charity websites best too, tbtc, shine ( I have hydrocephalus with mine). NHS website too, its definitely a rabbit hole googling but charities can be a reliable safer source.