Share experience with MDR TB .

[HpfVini]

Hello everyone,

I have been diagnosed with MDR TB in Lymph nodes and about to start the 2 year long treatment.

It would be really helpful if I could get an insight about what I am going to go through for the next 2 years.

If anyone can share their experiences with the MDR treatment regime it would be really helpful for everyone to be prepared. Doctors have advised to take intraveinous injections for six months that can have major side effects. Any information on this will be helpful.

Thanks 🙂

[HelenC Partner TB Alert]

Hi HpfVini,

I'm sorry to hear about your MDR-TB diagnosis. I hope you will be able to get the support you need through this site - as the treatment is unfortunately long and can be hard. It is important to remember that every dose of your medication will be killing the bacteria that are harming you, and that eventually you will be free of them and able to get on with the rest of your life.

In the meantime, it is great that you are informing yourself about your illness and looking for support from others - this constructive attitude will help you enormously.

You may find this leaflet useful: thetruthabouttb.org/wp-cont...

Best wishes,

Helen

[HpfVini in reply to HelenC]

Thank you so much Helen for the leaflet.

This is exactly what I was looking for.

[Nandininandu]

Hi

Even I'm too MDR patient with lymph nodes as well in the neck point and even I'm suffering from dark skin all of a sudden everything got changed in my body especially my colour complexion is too bad I'm shocked about it if there is any suggestions please do the needful guys please 😪😪

[DikshaKatyura in reply to Nandininandu]

Is your skin colour is normal now??

[Ayeeshamehta]

Hii I hope you are done with your treatment. How are you now? I am also a MDR TB patient and I am on my treatment now. How does it feel after completing your treatment. Did you get your skin colour back?