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Venetoclax
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High Alkaline Phosphatase and knee/bone pain side effects with Venetoclax/Obinituzumab
Hi folks My question is about side effects with
Venetoclax
and Obinituzumab. I wonder if anyone out there has any insights. I'm 66, was diagnosed in July 2020. Watch & wait until July 2022. Started
Venetoclax
and Obinituzumab in New York at Sloan Kettering.
Hi folks My question is about side effects with
Venetoclax
and Obinituzumab. I wonder if anyone out there has any insights. I'm 66, was diagnosed in July 2020. Watch & wait until July 2022. Started
Venetoclax
and Obinituzumab in New York at Sloan Kettering.
DinosaurDad
in
CLL Support
1 year ago
Update and the end of Ibrutinib
2 dosage blood and doctor will see if we have to stop
venetoclax
for awhile to bring blood-count up I am not sure with all this , oncologist in ambulance-hospital doesn't spend enough time to talk with patient and I got the feeling to go back to Ibrutinib ,maybe I am wrong .
2 dosage blood and doctor will see if we have to stop
venetoclax
for awhile to bring blood-count up I am not sure with all this , oncologist in ambulance-hospital doesn't spend enough time to talk with patient and I got the feeling to go back to Ibrutinib ,maybe I am wrong .
guyhighlander
in
CLL Support
1 year ago
A hellish 2 months. Very confused about MRD measurements.
My neutrophils were zero, and the doctor told me to stop
Venetoclax
immediately. When I finally came back home, at my next oncology appointment I was told to resume
Venetoclax
at the full 400mg dose.
My neutrophils were zero, and the doctor told me to stop
Venetoclax
immediately. When I finally came back home, at my next oncology appointment I was told to resume
Venetoclax
at the full 400mg dose.
Ruhi9
in
CLL Support
1 year ago
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About to Start Treatment
Hi about to start treatment and have been asked to choose between
Venetoclax
and Obinutuzumab orAcalabrutinab . Have been told both treatments are equal? was wondering if anyone could share their knowledge and experience.
Hi about to start treatment and have been asked to choose between
Venetoclax
and Obinutuzumab orAcalabrutinab . Have been told both treatments are equal? was wondering if anyone could share their knowledge and experience.
Sunshine2422
in
CLL Support
1 year ago
Extreme fatigue with Rituximab and Venetoclax 24-month regimen
Has anyone had a similar experience and what did it feel like once the
Venetoclax
treatment was completed? All replies will be greatly appreciated. Ramses
Has anyone had a similar experience and what did it feel like once the
Venetoclax
treatment was completed? All replies will be greatly appreciated. Ramses
RamsesII
in
CLL Support
1 year ago
Zanubrutinib journey
I am hoping to qualify for
Venetoclax
once CLL becomes a problem. I experienced no side effects from Zanubrutinib and would recommend.
I am hoping to qualify for
Venetoclax
once CLL becomes a problem. I experienced no side effects from Zanubrutinib and would recommend.
jorum
in
CLL Support
1 year ago
Boost Hemoglobin and Venetoclax coverage in Ontario
Tickets and reservations already done. 2- as I am 53 years old,
Venetoclax
is not covered for me, (10 000 cad/month) did anybody else in Ontario had this challenge? I know trillium drugs can help, top limit 2 000/month. Appreciate a lot your advices:)
Tickets and reservations already done. 2- as I am 53 years old,
Venetoclax
is not covered for me, (10 000 cad/month) did anybody else in Ontario had this challenge? I know trillium drugs can help, top limit 2 000/month. Appreciate a lot your advices:)
Sunny-planet
in
CLL Support
1 year ago
Fully Funded Ibrutinib is finally coming to New Zealand!
This will mean funded access for people: • whose disease progresses during treatment with
venetoclax
• whose disease relapses within 3 years of treatment with
venetoclax
• for whom
venetoclax
results in intolerable side effects We estimate that in the first year approximately 30 people will be eligible
This will mean funded access for people: • whose disease progresses during treatment with
venetoclax
• whose disease relapses within 3 years of treatment with
venetoclax
• for whom
venetoclax
results in intolerable side effects We estimate that in the first year approximately 30 people will be eligible
morepork
in
CLL Support
1 year ago
Having to start treatment
The two options I am being told are Ibrutinib or
Venetoclax
. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication.
The two options I am being told are Ibrutinib or
Venetoclax
. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication.
Mog811
in
CLL Support
1 year ago
Obinutuzumab & Venetoclax - tired & weak all the time
Hello, I’m appr. 6 weeks into the teatment. - Is it normal to feel very tired and weak during treatment? I am at a point where even sittings with ‘m’y legs down is tiring. Cannot do normal House hold chores anymore. - Also, how often should the blood be checked? Your input is much appreciated.
Hello, I’m appr. 6 weeks into the teatment. - Is it normal to feel very tired and weak during treatment? I am at a point where even sittings with ‘m’y legs down is tiring. Cannot do normal House hold chores anymore. - Also, how often should the blood be checked? Your input is much appreciated.
Mumu1
in
CLL Support
1 year ago
Is Distilled water better to consume during treatment ?
I am shortly coming off watch and wait and will start treatment with obinutuzumab and
Venetoclax
. I understand I will have to increase drinking water to flush out drugs and waste products.
I am shortly coming off watch and wait and will start treatment with obinutuzumab and
Venetoclax
. I understand I will have to increase drinking water to flush out drugs and waste products.
Abbey222
in
CLL Support
1 year ago
Travel Insurance
Has anyone been able to get travel insurance whilst taking Ibrutinib &
Venetoclax
? Is it classed as chemotherapy? Thanks
Has anyone been able to get travel insurance whilst taking Ibrutinib &
Venetoclax
? Is it classed as chemotherapy? Thanks
SupportiveMum
in
CLL Support
1 year ago
Time-limited Pirtobrutinib triple for treatment naive CLL or Richters at M.D. Anderson
If no response after 7 cycles, an additional 6 cycles of Pirtobrutinib and
Venetoclax
will be given. The protocol document does not mention MRD testing. They do not define "response"in the protocol document like they do on the clinicaltrials link above. I will be asking about that.
If no response after 7 cycles, an additional 6 cycles of Pirtobrutinib and
Venetoclax
will be given. The protocol document does not mention MRD testing. They do not define "response"in the protocol document like they do on the clinicaltrials link above. I will be asking about that.
SeymourB
in
CLL Support
1 year ago
Husband's last O Infusion rescheduled due to low Neutrophils and WBC
He is off of
Venetoclax
for the week in hopes of improving. WBC is 1.7 k/ul. If anyone has any ideas about how to get these numbers back in range, or how common or uncommon this occurrence might be, please share.
He is off of
Venetoclax
for the week in hopes of improving. WBC is 1.7 k/ul. If anyone has any ideas about how to get these numbers back in range, or how common or uncommon this occurrence might be, please share.
lisakc1
in
CLL Support
1 year ago
Anyone has followed Rituxan -Venetoclax treatment with good results?
I am terrified to start new treatment because of afib due to Calquence (Alcalabrutinib). Thank you for any reassurance and bless you all. 🙏🏼💚
I am terrified to start new treatment because of afib due to Calquence (Alcalabrutinib). Thank you for any reassurance and bless you all. 🙏🏼💚
unairdefamille
in
CLL Support
8 months ago
Starting treatment Wednesday
Hello everyone, has anyone had obinutzumab and
venetoclax
, if anyone could share there experiences it would be much appreciated.... 👍
Hello everyone, has anyone had obinutzumab and
venetoclax
, if anyone could share there experiences it would be much appreciated.... 👍
mfc86
in
CLL Support
1 year ago
Immunocomprised and suddenly have an asymptomatic Covid infection!
My husband has CLL and is in treatment (finished Obinutuzumab, now on
Venetoclax
). He has had two pretty severe Covid infections; first one in June 2022, second one in December 22. The second infection turned into long Covid (fatigue, daily low grade fevers) - lasting over six months now.
My husband has CLL and is in treatment (finished Obinutuzumab, now on
Venetoclax
). He has had two pretty severe Covid infections; first one in June 2022, second one in December 22. The second infection turned into long Covid (fatigue, daily low grade fevers) - lasting over six months now.
keikikumu
in
CLL Support
9 months ago
Feeling a bit down. Slipped disc and just been told that I should start treatment soon.
They are proposing a combination of Obinutuzumab and then
Venetoclax
- unless I have misunderstood , it was a bit of a blur. I would really value the views of the knowledgeable people in this group.
They are proposing a combination of Obinutuzumab and then
Venetoclax
- unless I have misunderstood , it was a bit of a blur. I would really value the views of the knowledgeable people in this group.
FairweatherSailor
in
CLL Support
1 year ago
Progressed
If it has - has given me two options:
Venetoclax
+ Rituximab OR LOXO 305 trial . Any thoughts folks? Anybody on one of these 2nd line treatments? Thanks Steve
If it has - has given me two options:
Venetoclax
+ Rituximab OR LOXO 305 trial . Any thoughts folks? Anybody on one of these 2nd line treatments? Thanks Steve
steve_canada
in
CLL Support
1 year ago
CLL Staging
Either Rituximab or
Venetoclax
. My husband is always dismissive of his condition and does not want to discuss with me as he thinks he is way off becoming unwell. He also doesn't want to worry me. I would like to know if anyone can give me an idea of what stage of CLL he has.
Either Rituximab or
Venetoclax
. My husband is always dismissive of his condition and does not want to discuss with me as he thinks he is way off becoming unwell. He also doesn't want to worry me. I would like to know if anyone can give me an idea of what stage of CLL he has.
Rocky0181
in
CLL Support
1 year ago
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