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Repetitive strain injury (RSI)
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Newly diagnosed and a concept called 48...
'Its Parkinson's' he said, I was relieved, better to know your enemy so you can form your attack. I thanked him, he looked surprised, I was calm, smiling and told him it was OK. Outside in the Hospital car park an autumn chill suddenly cut me, I wasn't brave anymore and I sobbed. All of us can tell a
'Its Parkinson's' he said, I was relieved, better to know your enemy so you can form your attack. I thanked him, he looked surprised, I was calm, smiling and told him it was OK. Outside in the Hospital car park an autumn chill suddenly cut me, I wasn't brave anymore and I sobbed. All of us can tell a
Hidden
in
Cure Parkinson's
13 years ago
Many pieces-no puzzle
Honestly, just try to write a book about pd and keep the science current! Good luck! Just as we are finally sending chapters of The Peripatetic Pursuit of Parkinson off to the editors, here are the newest developments from just the last several weeks. - alpha synuclein
Honestly, just try to write a book about pd and keep the science current! Good luck! Just as we are finally sending chapters of The Peripatetic Pursuit of Parkinson off to the editors, here are the newest developments from just the last several weeks. - alpha synuclein
paulaw
in
Cure Parkinson's
13 years ago
DBS - what event changes everything
A friend just had DBS, Until this past spring she had maintained an absolute unwillingness to consider the procedure. Then when the flowers bloomed she did a 180 and her decision was absolute and irrevocable. My friend is a few years ahead of me but not so many. This about-face of hers has me looking
A friend just had DBS, Until this past spring she had maintained an absolute unwillingness to consider the procedure. Then when the flowers bloomed she did a 180 and her decision was absolute and irrevocable. My friend is a few years ahead of me but not so many. This about-face of hers has me looking
pkell
in
Cure Parkinson's
13 years ago
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Fox FactorNot a big fan Micheal J Fox
I am sure I am going to catch hell for this but I need to get it out. I am not a big fan of the way Micheal J Fox goes around to all these talk shows without taking his meds and twitching around. Then I see him on tv HBO's Curb your Whatever or the red carpet not nearly as bad as he was on Regis and
I am sure I am going to catch hell for this but I need to get it out. I am not a big fan of the way Micheal J Fox goes around to all these talk shows without taking his meds and twitching around. Then I see him on tv HBO's Curb your Whatever or the red carpet not nearly as bad as he was on Regis and
Captsteve
in
Cure Parkinson's
12 years ago
Parkinsons Disease With A Small Injection Of Humor.
I would like to begin a chronicled look at my life with Parkinsons Disease, contributing to this effort as often as I feel up to doing so. But I must warn you, with a topic as interesting as this one, I may not miss a single day. Some days I may seem inspired and the juices may flow, while at other
I would like to begin a chronicled look at my life with Parkinsons Disease, contributing to this effort as often as I feel up to doing so. But I must warn you, with a topic as interesting as this one, I may not miss a single day. Some days I may seem inspired and the juices may flow, while at other
jeffjennings
in
Cure Parkinson's
12 years ago
Is any one on Rotigotine ?
Hi I would like to here from any one who is on Rotigotine patches. I have been on two 8mg patches for about two years and I am having more off time times than on. Keep going to sleep only for a very short time and can't sleep at night . I also have a DBS which is not working on one side .my doctor says
Hi I would like to here from any one who is on Rotigotine patches. I have been on two 8mg patches for about two years and I am having more off time times than on. Keep going to sleep only for a very short time and can't sleep at night . I also have a DBS which is not working on one side .my doctor says
export
in
Cure Parkinson's
12 years ago
I saw recently someone posted a comment having to do with the importance of the programming after DBS surgery. Can I find more comments?
jeffjennings
in
Cure Parkinson's
12 years ago
I have to fight the Beast
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
Hidden
in
Cure Parkinson's
12 years ago
positive thinking and dealing with parkinsons,
Hi i am maria and i am a 53 mother of 3 grown up daughters me and my husband became grandparents in march with a grandson, + another grandchild dew in feb 2012 next year, basically was diagnosed at 40 went as far as i could on meds so went on the 10 year trial for deep brain stimulation in newcastle
Hi i am maria and i am a 53 mother of 3 grown up daughters me and my husband became grandparents in march with a grandson, + another grandchild dew in feb 2012 next year, basically was diagnosed at 40 went as far as i could on meds so went on the 10 year trial for deep brain stimulation in newcastle
mazpar
in
Cure Parkinson's
12 years ago
Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
Deep Brain Stimlation (DBS)
I recently (June2nd) had the DBS op at the John Radcliffe Hospital in Oxford. Having had PD for 17 years I would say the op has been a success. It is early days yet, but I hope to be back playing golf & tennis in the not too distant future. I can now manage an hour's workout at the gym 2-3 times per
I recently (June2nd) had the DBS op at the John Radcliffe Hospital in Oxford. Having had PD for 17 years I would say the op has been a success. It is early days yet, but I hope to be back playing golf & tennis in the not too distant future. I can now manage an hour's workout at the gym 2-3 times per
compucure
in
Cure Parkinson's
13 years ago
Has anyone had the Deep Brain Stimulation (DBS) op? I have just had the op and am keen to share experiences. I have had PD for 17 years.
I would also be keen to know if anyone with PD goes to a gym. I go 2-3 times per week and again would be keen to share experiences. Thanks. Tony
I would also be keen to know if anyone with PD goes to a gym. I go 2-3 times per week and again would be keen to share experiences. Thanks. Tony
compucure
in
Cure Parkinson's
13 years ago
Getting On Track
To pick up where I left off. My social security was taken away, I was halfway through bds surgery and lost my insurance. Thank God the VA stepped up and finished the surgery . They sent me out to a university doctor. Who did an awesome job. and finish up the bds on one side and turned me on and
To pick up where I left off. My social security was taken away, I was halfway through bds surgery and lost my insurance. Thank God the VA stepped up and finished the surgery . They sent me out to a university doctor. Who did an awesome job. and finish up the bds on one side and turned me on and
Captsteve
in
Cure Parkinson's
12 years ago
Immunisations and pred.
Can you still have the MMR and 15+ tetanus booster jabs if you are on long term pred? Em x
Can you still have the MMR and 15+ tetanus booster jabs if you are on long term pred? Em x
Hidden
in
Asthma Community Forum
15 years ago
shingles and steroids
Hi does anyone have any advice about coming into contact with shingles whilst on high dose inhaled steroid and low dose alternate day pred. My son has come into contact with someone with shingles (close contact) and although he has had chicken pox was wondering if it might be a problem. Anyone have
Hi does anyone have any advice about coming into contact with shingles whilst on high dose inhaled steroid and low dose alternate day pred. My son has come into contact with someone with shingles (close contact) and although he has had chicken pox was wondering if it might be a problem. Anyone have
Hidden
in
Asthma Community Forum
17 years ago
shingles
HI ALL ANYONE had shingles ? ANY advice welcome? am in hosp cos asthma not happy
HI ALL ANYONE had shingles ? ANY advice welcome? am in hosp cos asthma not happy
yaf_user681_25820
in
Asthma Community Forum
16 years ago
So what do doctors know.....
about viral meningitis. Well as it happens in my experience not a great deal. I contracted it in July 2002 (July 13th as it happens, sort of stuck in my brain if you see what I mean) and was seriously ill in hospital with the sort of stats that make nurses take a sharp intake of breath. My eldest daughter
about viral meningitis. Well as it happens in my experience not a great deal. I contracted it in July 2002 (July 13th as it happens, sort of stuck in my brain if you see what I mean) and was seriously ill in hospital with the sort of stats that make nurses take a sharp intake of breath. My eldest daughter
Jonad724
in
Meningitis Now
13 years ago
Measuring Tourette's
Measurement is important because hard numbers can prove things that vague impressions cannot. Measuring the severity of TS is notoriously difficult for a variety of reasons. First, the tics are very variable, even from hour to hour in some people. They also vary over longer time-frames (the famous 'waxing
Measurement is important because hard numbers can prove things that vague impressions cannot. Measuring the severity of TS is notoriously difficult for a variety of reasons. First, the tics are very variable, even from hour to hour in some people. They also vary over longer time-frames (the famous 'waxing
sternj
in
Tourettes Action
13 years ago
Monkey Gone to Heaven
I’ve finally managed to get a good nights sleep, but I’m still feeling quite tired and my neck is quite painful, I suppose I have quite a lot of sleep to catch up on. As I said in a previous post I was going to write about the topic of the use of primates in medical research, so one of the reasons this
I’ve finally managed to get a good nights sleep, but I’m still feeling quite tired and my neck is quite painful, I suppose I have quite a lot of sleep to catch up on. As I said in a previous post I was going to write about the topic of the use of primates in medical research, so one of the reasons this
catherinem
in
Tourettes Action
13 years ago
New meningitis symptoms mobile app - coming soon
I'm delighted to say that in September we're going to launch the world’s first meningitis symptoms app for Android mobile phones. The free app will allow users to learn everything they need to know about meningitis; it tests their knowledge with an interactive quiz, gives instructions for what to
I'm delighted to say that in September we're going to launch the world’s first meningitis symptoms app for Android mobile phones. The free app will allow users to learn everything they need to know about meningitis; it tests their knowledge with an interactive quiz, gives instructions for what to
RichardMN
in
Meningitis Now
13 years ago
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