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Ocrevus
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I’ve started sweating again 😅
Another + effect of
Ocrevus
? Of course I live in Fl where we are still having 90 deg. weather, but even in the AC of the gym. Or maybe it’s because I’m able to put more oomph into my workouts? It’s just a little sheen on my face but would be happy to have to wring out my t-shirt.
Another + effect of
Ocrevus
? Of course I live in Fl where we are still having 90 deg. weather, but even in the AC of the gym. Or maybe it’s because I’m able to put more oomph into my workouts? It’s just a little sheen on my face but would be happy to have to wring out my t-shirt.
erash
in
My MSAA Community
6 years ago
ATTN: Ocrevus Welcoming Committe: Please add another member! 🙋📃🖊 🆕
Ok so it looks like I’m going on
Ocrevus
! Neurologist did lab work to make sure I can get it. Also have to wait for my insurance to approve it, could take a while.
Ok so it looks like I’m going on
Ocrevus
! Neurologist did lab work to make sure I can get it. Also have to wait for my insurance to approve it, could take a while.
Bamfan1442
in
My MSAA Community
6 years ago
Has MS affected your dreaming? how?
high dose of vitamin D, new diet,
Ocrevus
fighting to keep the MS lesions at bay in my brain, getting slowly but surely out of the MS brain fog, more exercise. I love it!
high dose of vitamin D, new diet,
Ocrevus
fighting to keep the MS lesions at bay in my brain, getting slowly but surely out of the MS brain fog, more exercise. I love it!
anaishunter
in
My MSAA Community
6 years ago
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I feel so FREE!!!
Other than a short spell right after starting
Ocrevus
that only lasted a few days. In those few days I fell out of my house bouncing off my steps. (Luckily I didn't break my neck) so right back on my cane I went! Even then I could only be up for a very short while before sitting down.
Other than a short spell right after starting
Ocrevus
that only lasted a few days. In those few days I fell out of my house bouncing off my steps. (Luckily I didn't break my neck) so right back on my cane I went! Even then I could only be up for a very short while before sitting down.
Allen5280
in
My MSAA Community
6 years ago
Family Issues
I’ve been on
OCrevus
IV treatment for over a year and still had 3 relapses. My doctor and I have not seen reduction like what we hoped for. So time for a new plan.
I’ve been on
OCrevus
IV treatment for over a year and still had 3 relapses. My doctor and I have not seen reduction like what we hoped for. So time for a new plan.
nicoly3467
in
My MSAA Community
6 years ago
On/off sore throats on Ocrevus?
For the past 3-4 weeks, I wake up every day with no throat problem, but by the evening my throat is inflamed as if I were getting sick. Anybody else with something similar?
For the past 3-4 weeks, I wake up every day with no throat problem, but by the evening my throat is inflamed as if I were getting sick. Anybody else with something similar?
anaishunter
in
My MSAA Community
6 years ago
1 more Tysabri then ...
I do 1 more Tysabri while they get
Ocrevus
approved then I go to
Ocrevus
. My MS Specialist seems very nice, she listen to me she asked questions about what I had been on in the past. She listened to my husbands questions & she answered him.
I do 1 more Tysabri while they get
Ocrevus
approved then I go to
Ocrevus
. My MS Specialist seems very nice, she listen to me she asked questions about what I had been on in the past. She listened to my husbands questions & she answered him.
kycmary
in
My MSAA Community
6 years ago
Part 2 of 1st dose of Ocrevus
I pray
Ocrevus
works!
I pray
Ocrevus
works!
hairbrain4
in
My MSAA Community
6 years ago
Ocrevus
Was just diagnosed with ms and the doctor wants me to take
ocrevus
but I'm jc positive so I'm scared cause of pml so was wondering if anyone has been on this being jc positive
Was just diagnosed with ms and the doctor wants me to take
ocrevus
but I'm jc positive so I'm scared cause of pml so was wondering if anyone has been on this being jc positive
Crystalgirbo
in
My MSAA Community
6 years ago
Clinical trials...
One at our first visit that just about tracking MS progression and
Ocrevus
results through the year. In my last visit, he suggested a trial of fatigue drugs (known drugs that have been used for other diseases. There's actually of government site with all open trials.
One at our first visit that just about tracking MS progression and
Ocrevus
results through the year. In my last visit, he suggested a trial of fatigue drugs (known drugs that have been used for other diseases. There's actually of government site with all open trials.
anaishunter
in
My MSAA Community
6 years ago
Ocrevus BCell production and body surface area (BSA)
http://nn.neurology.org/content/5/4/e463 So kdali said something about “living it up until her B cells increase” (paraphrase :) This got me curious as to when this occurs and I found a few studies suggesting that the 600mg every 6 mos dosing may not be right for everyone. People with more BSA reproduce
http://nn.neurology.org/content/5/4/e463 So kdali said something about “living it up until her B cells increase” (paraphrase :) This got me curious as to when this occurs and I found a few studies suggesting that the 600mg every 6 mos dosing may not be right for everyone. People with more BSA reproduce
erash
in
My MSAA Community
6 years ago
2nd Ocrevus 1/2 dose
All went well. They doubled the dose of my Benadryl this AM due to slight itching with the first dose. I was in La La Land for the first few hours, listened to audio-books and visualizations and then became antsy and bored BUT all went well :) so NO complaints!
All went well. They doubled the dose of my Benadryl this AM due to slight itching with the first dose. I was in La La Land for the first few hours, listened to audio-books and visualizations and then became antsy and bored BUT all went well :) so NO complaints!
erash
in
My MSAA Community
6 years ago
tysabri vs ocrevus
looking for anyone who has gone from tysabri to
ocrevus
. doctor wants me to change not because i have to, just thinks i might get better results. i'm terrified at the thought of changing! any advice? Vicki
looking for anyone who has gone from tysabri to
ocrevus
. doctor wants me to change not because i have to, just thinks i might get better results. i'm terrified at the thought of changing! any advice? Vicki
vickisue55
in
My MSAA Community
6 years ago
Prep'ing for visit to neuro later today
Here they are: - how/when do I know that
Ocrevus
work for me? - can existing active or non-active lesions still create new symptoms? - any upcoming trials for re-myelination treatment?
Here they are: - how/when do I know that
Ocrevus
work for me? - can existing active or non-active lesions still create new symptoms? - any upcoming trials for re-myelination treatment?
anaishunter
in
My MSAA Community
6 years ago
1st half dose of Ocrevus yesterday.
Hello everyone, I had my first half dose of
Ocrevus
yesterday. They pre medicated me with two Benadryl, three Tylenol and IV Steroids for 15 minutes before the infusion. I was pretty out of it for the remainder of the day.
Hello everyone, I had my first half dose of
Ocrevus
yesterday. They pre medicated me with two Benadryl, three Tylenol and IV Steroids for 15 minutes before the infusion. I was pretty out of it for the remainder of the day.
Stronglady
in
My MSAA Community
6 years ago
I DID IT!
I did my first half dose of
ocrevus
today. Only had some chest pressure as they went to a faster drip. I have been fighting so long for
ocrevus
I was not going to stop. Had 50 mgs of benadryl and steroids and a valium to stop me from freaking out.
I did my first half dose of
ocrevus
today. Only had some chest pressure as they went to a faster drip. I have been fighting so long for
ocrevus
I was not going to stop. Had 50 mgs of benadryl and steroids and a valium to stop me from freaking out.
jkdavid99
in
My MSAA Community
6 years ago
Ocrevus # 1 done 😊
Just finished first dose. Just a little itchy that resolved with a little more Benadryl. So, can I run again yet?? No high expectations, right? 😜
Just finished first dose. Just a little itchy that resolved with a little more Benadryl. So, can I run again yet?? No high expectations, right? 😜
erash
in
My MSAA Community
6 years ago
More on vaccines and Ocrevus
Interestingly, we discussed a study of 825 people on
Ocrevus
that received live or live attenuated vaccines (MMR, Zostavax) and the immune response was the same as an individual not on
Ocrevus
.
Interestingly, we discussed a study of 825 people on
Ocrevus
that received live or live attenuated vaccines (MMR, Zostavax) and the immune response was the same as an individual not on
Ocrevus
.
erash
in
My MSAA Community
6 years ago
Vaccines when on Ocrevus and side effect of hair loss
But not a known
Ocrevus
side effect.
But not a known
Ocrevus
side effect.
erash
in
My MSAA Community
6 years ago
3 years in, still not accepting
Considering trying
Ocrevus
but scared I'll make the wrong decision and have more damage. I turn 40 in December and so tired of feeling 100 and not being able to keep up with my family/kids. I work full time, have 2 kids still in elementary so I know I'm blessed that I'm not even worse.
Considering trying
Ocrevus
but scared I'll make the wrong decision and have more damage. I turn 40 in December and so tired of feeling 100 and not being able to keep up with my family/kids. I work full time, have 2 kids still in elementary so I know I'm blessed that I'm not even worse.
Mcoryea
in
My MSAA Community
6 years ago
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