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Experiences with
Obliterative bronchiolitis
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nannytickle
hi everyone I was diagnosed with idiopathic
obliterative
bronchiolitis
type 2 respratory failure about 10 years ago and have been on home oxygen first for 16 hours a day but increased to 24 hours over the last 4 years or so.
hi everyone I was diagnosed with idiopathic
obliterative
bronchiolitis
type 2 respratory failure about 10 years ago and have been on home oxygen first for 16 hours a day but increased to 24 hours over the last 4 years or so.
Jackietickle
in
Lung Conditions Community Forum
7 months ago
Not COPD
Then I realised that bronchiectasis and
obliterative
bronchiolitis
often get put under the heading of COPD, which they are not. I know that others have had the same experience, but I am a pedant and like to be accurate. (Must be the maths teacher in me!)
Then I realised that bronchiectasis and
obliterative
bronchiolitis
often get put under the heading of COPD, which they are not. I know that others have had the same experience, but I am a pedant and like to be accurate. (Must be the maths teacher in me!)
Carnival567
in
Lung Conditions Community Forum
3 years ago
New study yields insights into chronic rejection after lung transplantation
This study improves our understanding of the formation of
obliterative
bronchiolitis
(OB) lesions in small airways. Identification of early processes leading to BOS and improved understanding of the underlying mechanisms will help us develop tools to manage BOS.
This study improves our understanding of the formation of
obliterative
bronchiolitis
(OB) lesions in small airways. Identification of early processes leading to BOS and improved understanding of the underlying mechanisms will help us develop tools to manage BOS.
2greys
in
Lung Conditions Community Forum
3 years ago
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Obliterans Bronchiolitis/obliterative Bronchiolitis
Hi, New here.😀 I have been diagnosed with BO after a biopsy. I had problems with my lungs for approx two years before the diagnose. The cause is not known, no transplantation or any other known diseases (yet). I have read quite a bit about the disease, although its not much out there. Now to my question
Hi, New here.😀 I have been diagnosed with BO after a biopsy. I had problems with my lungs for approx two years before the diagnose. The cause is not known, no transplantation or any other known diseases (yet). I have read quite a bit about the disease, although its not much out there. Now to my question
SusannaU
in
Lung Conditions Community Forum
5 years ago
Getting a referral to a consultant
I suffer from
Obliterative
Bronchiolitis
, mild bronchiectasis, and lung nodules so I am a lot going on in my lungs. However, suddenly out of nowhere my joints in only one hand are suddenly painful and my third finger is thickening locking and is not mobile.
I suffer from
Obliterative
Bronchiolitis
, mild bronchiectasis, and lung nodules so I am a lot going on in my lungs. However, suddenly out of nowhere my joints in only one hand are suddenly painful and my third finger is thickening locking and is not mobile.
ledge
in
Lung Conditions Community Forum
6 years ago
For those who have Obliterative bronchiolitis?how long have ya had it?and ways to keep it stable?
For those if you who have
Obliterative
Bronchiolitis
how long have you had it for? And is it staying stable?
For those if you who have
Obliterative
Bronchiolitis
how long have you had it for? And is it staying stable?
daniellegagne22
in
Lung Conditions Community Forum
6 years ago
Breathing getting worse
Last July I was told I didn't have copd but
obliterative
Bronchiolitis
(Arthritis of the lungs) I have been getting really fast heart beat all the time and have had treatment to reduce inflammation on the lungs. Although I thought I had been getting better.
Last July I was told I didn't have copd but
obliterative
Bronchiolitis
(Arthritis of the lungs) I have been getting really fast heart beat all the time and have had treatment to reduce inflammation on the lungs. Although I thought I had been getting better.
Hidden
in
Lung Conditions Community Forum
6 years ago
Travel insurance
Hi all I have COPD /
Obliterative
bronchiolitis
and I am looking for travel insurance. Somebody suggested NFOP. For members they do an annual travel scheme with no declaration of medical conditions. Has anybody used this insurance if so is it any good.
Hi all I have COPD /
Obliterative
bronchiolitis
and I am looking for travel insurance. Somebody suggested NFOP. For members they do an annual travel scheme with no declaration of medical conditions. Has anybody used this insurance if so is it any good.
Jamathon13
in
Lung Conditions Community Forum
7 years ago
Obliterative Bronchiolitis wrisband???
I have
obliterative
bronchiolitis
and kidney failure. When I go out anywhere I like to have on my silicone medical wristbands to say I have a fistula in my arm, so that if anything happens doctors etc know not to use it.
I have
obliterative
bronchiolitis
and kidney failure. When I go out anywhere I like to have on my silicone medical wristbands to say I have a fistula in my arm, so that if anything happens doctors etc know not to use it.
Elisa82
in
Lung Conditions Community Forum
7 years ago
Annoying cough
I have
obliterative
bronchiolitis
and I'm on dialysis. For the past 3 weeks I've had a cough and recently my appetite hasn't been good. Had a chest xray which came back clear. Got blood tests done and there is no infection, just low in phosphate because I'm not eating so good.
I have
obliterative
bronchiolitis
and I'm on dialysis. For the past 3 weeks I've had a cough and recently my appetite hasn't been good. Had a chest xray which came back clear. Got blood tests done and there is no infection, just low in phosphate because I'm not eating so good.
Elisa82
in
Lung Conditions Community Forum
7 years ago
Pre-op assessment
Finally got to did I have a wheeze, so I explained I had bronchiectasis and
obliterative
bronchiolitis
. I am not sure the nurse knew what they are, also told her about the congenital heart disease return. Not sure she understood that either.
Finally got to did I have a wheeze, so I explained I had bronchiectasis and
obliterative
bronchiolitis
. I am not sure the nurse knew what they are, also told her about the congenital heart disease return. Not sure she understood that either.
Carnival567
in
Lung Conditions Community Forum
7 years ago
Abbreviations
Bronchiolitis
OBA
...............Obstructive Sleep Apnoea
PAH
...............Pulmonary Arterial Hypertension
PE
..................Pulmonary Embolism
PF
..................Pulmonary Fibrosis
Pred
...............Prednisolone
PH
..................Pulmonart Hypertension
Bronchiolitis
OBA
...............Obstructive Sleep Apnoea
PAH
...............Pulmonary Arterial Hypertension
PE
..................Pulmonary Embolism
PF
..................Pulmonary Fibrosis
Pred
...............Prednisolone
PH
..................Pulmonart Hypertension
stone-UK
in
Lung Conditions Community Forum
7 years ago
Assessment for Ambulatory Oxygen
I do not have COPD but I do have bronchiectasis and
obliterative
bronchiolitis
. My lung disease is very severe.
I do not have COPD but I do have bronchiectasis and
obliterative
bronchiolitis
. My lung disease is very severe.
Carnival567
in
Lung Conditions Community Forum
7 years ago
Hospital Review
He did tell me the bronchiectasis is severe and is probably what led to the
obliterative
bronchiolitis
. One thing he did say was that if I had smoked we wouldn't be here having these conversations. Quite a thought.
He did tell me the bronchiectasis is severe and is probably what led to the
obliterative
bronchiolitis
. One thing he did say was that if I had smoked we wouldn't be here having these conversations. Quite a thought.
Carnival567
in
Lung Conditions Community Forum
8 years ago
PIP benefit
I have
obliterative
bronchiolitis
and kidney failure. I'm on dialysis three nights a week for four hours each time in hospital. The assessment report was full of lies and spelling mistakes lol
I have
obliterative
bronchiolitis
and kidney failure. I'm on dialysis three nights a week for four hours each time in hospital. The assessment report was full of lies and spelling mistakes lol
Elisa82
in
Lung Conditions Community Forum
8 years ago
Emotional support
A family member was diagnosed with bronchiolitis obliterans (which I presume is similar if not the same as
obliterative
bronchiolitis
) in July.
A family member was diagnosed with bronchiolitis obliterans (which I presume is similar if not the same as
obliterative
bronchiolitis
) in July.
Para1471
in
Lung Conditions Community Forum
8 years ago
Obliterative bronchiolitis
Can someone please get in contact if they have
obliterative
bronchiolitis
as I have recently been diagnosed but not been told much about this condition or how it will effect my life, thank you x
Can someone please get in contact if they have
obliterative
bronchiolitis
as I have recently been diagnosed but not been told much about this condition or how it will effect my life, thank you x
Laurenmerrin_xo
in
Lung Conditions Community Forum
8 years ago
Discharged because my breathlessness is an "enigma"
It has been suggested, in some of the literature I have received from him, that my lung function tests indicate
obliterative
bronchiolitis
(and then three weeks later, another piece of literature stating that that there is no evidence of
obliterative
bronchiolitis
.............hmmmmm me thinks that the
It has been suggested, in some of the literature I have received from him, that my lung function tests indicate
obliterative
bronchiolitis
(and then three weeks later, another piece of literature stating that that there is no evidence of
obliterative
bronchiolitis
.............hmmmmm me thinks that the
DaleyWaley
in
Lung Conditions Community Forum
9 years ago
help
bronchiolitis
what is this ???
bronchiolitis
what is this ???
annie1969
in
Lung Conditions Community Forum
9 years ago
CTED and Bronchiolitis?
I have chronic thromboembolic disease and a small airways disease that is looking like
obliterative
bronchiolitis
. Been a nightmare getting diagnoses and even now after five and half years not quite there. Anyone out there with similar conditions? Would love to compare notes.
I have chronic thromboembolic disease and a small airways disease that is looking like
obliterative
bronchiolitis
. Been a nightmare getting diagnoses and even now after five and half years not quite there. Anyone out there with similar conditions? Would love to compare notes.
Katinka46
in
Lung Conditions Community Forum
9 years ago
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