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Ecopipam and Dr. Ondo.
We will be conducting a small, short study of ecopipam in RLS patients currently taking only dopamine agonists – pramipexole (Mirapex), ropinirole (Requip) or rotigotine (
Neupro
) – who initially had good benefit but now have augmentation. Other RLS drugs will not be allowed in the study.
We will be conducting a small, short study of ecopipam in RLS patients currently taking only dopamine agonists – pramipexole (Mirapex), ropinirole (Requip) or rotigotine (
Neupro
) – who initially had good benefit but now have augmentation. Other RLS drugs will not be allowed in the study.
Hidden
in
Restless Legs Syndrome
3 years ago
switching meds
I know this has probably been asked a thousand times but could anyone give me some advice on how to switch from rytary 61/245mg 2 caps a day and the
neupro
patch 4mg a day Mucuna? I really want to switch to all natural!
I know this has probably been asked a thousand times but could anyone give me some advice on how to switch from rytary 61/245mg 2 caps a day and the
neupro
patch 4mg a day Mucuna? I really want to switch to all natural!
Justme4
in
Cure Parkinson's
3 years ago
Question
I take one Rytary in the morning and 1 at 3,
neupro
patch 4mg daily.
I take one Rytary in the morning and 1 at 3,
neupro
patch 4mg daily.
Justme4
in
Cure Parkinson's
3 years ago
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Update: Newbie, starting medication - Rasagilene & Rotigotine (Neupro) patches
If anyone has any advice as I move forward, especially experience with getting the most benefit from the
Neupro
patches then it would be great to hear from you. Best wishes to you all.
If anyone has any advice as I move forward, especially experience with getting the most benefit from the
Neupro
patches then it would be great to hear from you. Best wishes to you all.
Salvation1
in
Cure Parkinson's
3 years ago
RLS and now apnea
I am trying the
Neupro
patch, despite its drawbacks, because there are drawbacks to every drug, and I really, really need to get enough oxygen when I sleep.
I am trying the
Neupro
patch, despite its drawbacks, because there are drawbacks to every drug, and I really, really need to get enough oxygen when I sleep.
grandpianoman
in
Restless Legs Syndrome
3 years ago
Is this progression normal
On Sinemet 3 hourly, Rasagiline 1mg and Madopar 62.5 daily +
Neupro
patch 4mg. Nothing new seems to have any effect after a couple of days. Additionally he’s been on HDT 1g daily for a year or so and I’ve just bought a Wellred coronet to see if that can help.
On Sinemet 3 hourly, Rasagiline 1mg and Madopar 62.5 daily +
Neupro
patch 4mg. Nothing new seems to have any effect after a couple of days. Additionally he’s been on HDT 1g daily for a year or so and I’ve just bought a Wellred coronet to see if that can help.
Abinat58
in
Cure Parkinson's
3 years ago
HELP!! Augmented on Pramipexole, put on Neupro Patch & seems to be getting worse
So, he switched me over to
Neupro
Patches last week which ticked me off in the 1st place. I started on 4mg patches, already up to 6mg and am having symptoms still all day long and now have gone into my thighs and arms. I'm at a loss, frustrated, not sleeping hardly at all and don't know what to do.
So, he switched me over to
Neupro
Patches last week which ticked me off in the 1st place. I started on 4mg patches, already up to 6mg and am having symptoms still all day long and now have gone into my thighs and arms. I'm at a loss, frustrated, not sleeping hardly at all and don't know what to do.
thumperina50
in
Restless Legs Syndrome
3 years ago
non-Parkinson' drug for dystonia?
I wonder if they might be an alternative to
Neupro
patches?
I wonder if they might be an alternative to
Neupro
patches?
jenniferdunstan
in
Cure Parkinson's
3 years ago
Neupro vs Pregabalin
I had a welness visit with my GP yesterday and she has messaged me about
Neupro
. I do not want to go through anything like coming off Ropinirole ever again. My question is which is better for me the
Neupro
or Pregabalin?
I had a welness visit with my GP yesterday and she has messaged me about
Neupro
. I do not want to go through anything like coming off Ropinirole ever again. My question is which is better for me the
Neupro
or Pregabalin?
B534967
in
Restless Legs Syndrome
3 years ago
Tramadol Prescription for Refractory RLS?
Neupro
Patch (did not work). Each night is misery trying to fall asleep and stay asleep. Wake up multiple times and then want to binge eat any type of sugar I can get my hands on. I so tired on being tired and not sure what direction to go next.
Neupro
Patch (did not work). Each night is misery trying to fall asleep and stay asleep. Wake up multiple times and then want to binge eat any type of sugar I can get my hands on. I so tired on being tired and not sure what direction to go next.
RLS_
in
Restless Legs Syndrome
3 years ago
Neupro and augmentation
What does augmentation mean? Thx!
What does augmentation mean? Thx!
MissRita
in
Cure Parkinson's
3 years ago
Neupro - 1st day on...working I think...
So this is interesting. I didn’t take my Sinemet this morning and thank God I didn’t because the constipation I’ve had from it has been so awful and actually gave me an impacted bowel so I did the next best thing and took a lovely suppository and that worked incredible magic needless to say. Sorry for
So this is interesting. I didn’t take my Sinemet this morning and thank God I didn’t because the constipation I’ve had from it has been so awful and actually gave me an impacted bowel so I did the next best thing and took a lovely suppository and that worked incredible magic needless to say. Sorry for
MissRita
in
Cure Parkinson's
3 years ago
Does RLS ever go away? One week off patch and no issues
I was diagnosed with RLS about 2 years ago and I’ve been on 1mg
Neupro
since then, after trying another med that didn’t help. Recently I ran out of patches and had a struggle reaching my doctor for a new prescription and then another struggle getting a coupon for a rebate.
I was diagnosed with RLS about 2 years ago and I’ve been on 1mg
Neupro
since then, after trying another med that didn’t help. Recently I ran out of patches and had a struggle reaching my doctor for a new prescription and then another struggle getting a coupon for a rebate.
Discopage
in
Restless Legs Syndrome
3 years ago
Update - Neuro appointment and Neupro!
Telling him about the transit time for L/C he suggested and prescribed
NEUPRO
. I’m a little nervous about it given some of the side effects, but he said that he thinks my tremor is too out of control - it isn’t sure as to why.
Telling him about the transit time for L/C he suggested and prescribed
NEUPRO
. I’m a little nervous about it given some of the side effects, but he said that he thinks my tremor is too out of control - it isn’t sure as to why.
MissRita
in
Cure Parkinson's
3 years ago
NEUPRO Pads and sleep can prove to be a very difficult combination
Later I discovered that the
NEUPRO
patch had come loose from the skin and was in bed. The next night I took off the
NEUPRO
patch at about 22:00 and the same thing happened, I slept well all night.
Later I discovered that the
NEUPRO
patch had come loose from the skin and was in bed. The next night I took off the
NEUPRO
patch at about 22:00 and the same thing happened, I slept well all night.
snorre
in
Cure Parkinson's
3 years ago
RLS & Iron infusion seems to be working!
Rec'd the iron back to back weeks Dec. 1st. 2020 I have been on 1mg
Neupro
for 6 years with increased restless leg issues the last 6 months before the infusion of 2020. As of three weeks, ago I have had very minimal restless leg issues. AMAZING! So, now what do I do to wean off the patch?
Rec'd the iron back to back weeks Dec. 1st. 2020 I have been on 1mg
Neupro
for 6 years with increased restless leg issues the last 6 months before the infusion of 2020. As of three weeks, ago I have had very minimal restless leg issues. AMAZING! So, now what do I do to wean off the patch?
JPB5
in
Restless Legs Syndrome
3 years ago
Trying another dopamine agonist (yeah, I know....🙁)
Now the neurologist is trying me on a
neupro
patch. I’m hopeful-but I know the dangers of going back on a dopamine agonist. I also know that so far-nothing has worked on its own-I’ve always had to have a back up sedative or sleep aid. Any thoughts or advice?
Now the neurologist is trying me on a
neupro
patch. I’m hopeful-but I know the dangers of going back on a dopamine agonist. I also know that so far-nothing has worked on its own-I’ve always had to have a back up sedative or sleep aid. Any thoughts or advice?
11love
in
Restless Legs Syndrome
3 years ago
rls and going to sleep
taking 3mg
neupro
patch and 900 mg gabapentin have had rls for 20 years Mirapex controlled it forever at .25mg or less now having trouble falling asleep been on patch for 3-4 months any suggestions?
taking 3mg
neupro
patch and 900 mg gabapentin have had rls for 20 years Mirapex controlled it forever at .25mg or less now having trouble falling asleep been on patch for 3-4 months any suggestions?
Caperry
in
Restless Legs Syndrome
3 years ago
What works for me 10 plus years
For me the best meds have been
neupro
patch it’s a 24hr patch and at night I take 3mg Ropinorole I’ve been on this for more than 10yrs I tried getting off Ropinorole and it was hell just because of all the negative post I read here after a month and seeing 2 doctors I said why am I putting myself through
For me the best meds have been
neupro
patch it’s a 24hr patch and at night I take 3mg Ropinorole I’ve been on this for more than 10yrs I tried getting off Ropinorole and it was hell just because of all the negative post I read here after a month and seeing 2 doctors I said why am I putting myself through
Bat3353
in
Restless Legs Syndrome
3 years ago
Substantial Effects from Mannitol
The whole process was gradual, where after 2 months, he clearly needed only half a
Neupro
patch for awhile and then he only needed one daily Rytary for a few weeks. And the only way to know he had too much was by his anxiety levels and hallucinations.
The whole process was gradual, where after 2 months, he clearly needed only half a
Neupro
patch for awhile and then he only needed one daily Rytary for a few weeks. And the only way to know he had too much was by his anxiety levels and hallucinations.
LeharLover62
in
Cure Parkinson's
3 years ago
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