Experiences with
Leukoencephalopathy

4 public posts

brain disease

Hi, I was diagonosed with a mild micro circulation leukoencephalopathy. What does that mean? thank you

Hi, I was diagonosed with a mild micro circulation leukoencephalopathy. What does that mean? thank you

in Brain health

8 years ago

Methotrexate and brain fog

Dementia Encephalopathy Progressive multifocal leukoencephalopathy. This symptom may occur with long-term high dose use Pseudobulbar palsy Reduced thinking ability Reduced thinking ability/mental clarity Stroke caused by blockage of the arteries that supply blood to the brain

Dementia Encephalopathy Progressive multifocal leukoencephalopathy. This symptom may occur with long-term high dose use Pseudobulbar palsy Reduced thinking ability Reduced thinking ability/mental clarity Stroke caused by blockage of the arteries that supply blood to the brain

10 years ago

Humira, Enbrel or Rituximab? I wonder if anyone else was given a choice, and if so, how they reached a decision

It looks as if I would have to go to the hospital for Rituximab, but what scares me about that drug is the risk (not quantified) of Progressive Multifocal Leukoencephalopathy. Not only do I want to avoid that, I wouldn't want to spell it too often!. Jo

It looks as if I would have to go to the hospital for Rituximab, but what scares me about that drug is the risk (not quantified) of Progressive Multifocal Leukoencephalopathy. Not only do I want to avoid that, I wouldn't want to spell it too often!. Jo

10 years ago

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Any opinion on the use of Rituximab and the risk of (PML) Progressive multifocal leukoencephalopathy which is said can be lethal.

For the past 2 years I've been on 15mg prednisolone + 100mg Azathioprine, and my platelet level is around 20 thousand. Thanks to TCM, traditional chinese medicine, and care, til now I am not suffering the nasty side effects of the steroid.

For the past 2 years I've been on 15mg prednisolone + 100mg Azathioprine, and my platelet level is around 20 thousand. Thanks to TCM, traditional chinese medicine, and care, til now I am not suffering the nasty side effects of the steroid.

in ITP Support Association

11 years ago