Experiences with

Gilotrif

He went on to teach me that the suffix -nib means the drug is an inhibitor like afatnib which is used as a TKI inhibitor(also know as Gilotrif). So today I read this blog about naming drugs. If your curious how yours came to be named check it out. https://lungcancer.net/clinical/drugs-names?

It doesn’t seem like Gilotrif is commonly given, even the doctor said it. I was curious if anyone had been on it and how’s it’s worked. We are prepared for the side effects.

The FDA has expanded the indication for afatinib (Gilotrif) to include the treatment of patients with metastatic non–small cell lung cancer (NSCLC) whose tumors have uncommon EGFR alterations in L861Q, G719X, and/or S768I. http://www.onclive.com/web-exclusives/fda-expands-afatinibs-approval-for-lung-cancer

I've had a request from Patient Power for help from UK lung cancer patients who may be eligible to take part in a survey about their experience with their immunotherapy treatments. If you or anyone you know is eligible, please contact Laura directly at laura@patientpower.info if you or they fit the

This includes patients who have become resistant to Tarceva, Iressa, Gilotrif, and Tagrisso, and patients who have been in clinical trials for experimental T790M drugs.

The highest doseage of this drug (40mg) turned my well-respected body literally into a garbage dump. So the doctor tried me on the 30mg version which was worse in every respect than the 40mg. My skin was falling off and I looked like a leper. I was going to go completely off of all of it and the doctor

I am EGFR positive and have been taking gilotrif/ Afatinib for almost 2 months now. I was wondering if there is anyone out there on this drug and is it working? I will have scans again on the 17th. Of this month. I try and stay positive.

my husband is one week and 2 days into this targeted therapy for lung cancer and his mouth is so sore. Has anyone experience of managing this or any knowledge of whether the side effects ease in time ? Thank you Tracey

In order to support a submission to the Scottish medicines consortium (SMC) for the availability of Afatinib (Gilotrif) which is a targeted (biological) therapy it would be helpful to hear from anyone that may have experience of it either through your Consultant or as part of a clinical trial