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Anybody on Fulvestrant alone w/ no progression for 2 years plus like me?
I'm not complaining, I've been on
Fulvestrant
alone for 26 months w/out cancer spreading. [MBC in 9/ 2016, 2nd line after Ibrance & Exemestane gave me a pretty good run until 1st progression after 3+ years in 2020.
I'm not complaining, I've been on
Fulvestrant
alone for 26 months w/out cancer spreading. [MBC in 9/ 2016, 2nd line after Ibrance & Exemestane gave me a pretty good run until 1st progression after 3+ years in 2020.
cancerjustgotreal
in
SHARE Metastatic Breast Cancer
2 years ago
broken bone healing while taking Fulvestrant?
Since
Fulvestrant
is an estrogenblocker and bones need estrogen for strength....am wondering. i will see my oncologist in 3 weeks and discuss then but if anyone has had bone break experience?
Since
Fulvestrant
is an estrogenblocker and bones need estrogen for strength....am wondering. i will see my oncologist in 3 weeks and discuss then but if anyone has had bone break experience?
Woodthrush
in
SHARE Metastatic Breast Cancer
2 years ago
Faslodex loading doses done, third set of shots today and tumor markers up.
Anyone else have their tumor markers go up after starting Faslodex/
Fulvestrant
? My doctor said I shouldn't worry, that she has seen many people's markers go up the first few months after starting Faslodex.
Anyone else have their tumor markers go up after starting Faslodex/
Fulvestrant
? My doctor said I shouldn't worry, that she has seen many people's markers go up the first few months after starting Faslodex.
Fiercefighter13
in
SHARE Metastatic Breast Cancer
2 years ago
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Frustrated
I am on Ibrance and
Fulvestrant
. Mets in my liver, stomach lining, and a few spots on bones. I am seen at Dana Farber. Things seem to be going well in general. This weekend I went to another hospital closer to home to have a Parcintesis done. ( totally botched that spelling). .
I am on Ibrance and
Fulvestrant
. Mets in my liver, stomach lining, and a few spots on bones. I am seen at Dana Farber. Things seem to be going well in general. This weekend I went to another hospital closer to home to have a Parcintesis done. ( totally botched that spelling). .
Ticket123
in
SHARE Metastatic Breast Cancer
2 years ago
Appointment on Tuesday for new liver mets
Think the move is to
fulvestrant
. 100% healthy and well apart from this darned cancer! Thank you lovely ladies!
Think the move is to
fulvestrant
. 100% healthy and well apart from this darned cancer! Thank you lovely ladies!
Glas0824
in
SHARE Metastatic Breast Cancer
2 years ago
Verzenio and Letrozole 3rd line
I had Ibrance and
Fulvestrant
at first, worked well for 2 years, then she concluded that
Fulvestrant
failed. I wondered why she didn't say they both failed. I stopped both at the same time. I had a rash from Xgeva. I was on the oral SERD for one year.
I had Ibrance and
Fulvestrant
at first, worked well for 2 years, then she concluded that
Fulvestrant
failed. I wondered why she didn't say they both failed. I stopped both at the same time. I had a rash from Xgeva. I was on the oral SERD for one year.
TammyCross
in
SHARE Metastatic Breast Cancer
2 years ago
Interesting when drugs work on some things not the other
Off of Ibrance onto
fulvestrant
and letrozole. That kept everything at bay, but liver still grew. Now went from 3cm last yr to 9 cm. Had a biopsy, nothing strange, the liver leisions are the same as the primary secondary. Apparently this can happen. The drugs will not work on some leisions.
Off of Ibrance onto
fulvestrant
and letrozole. That kept everything at bay, but liver still grew. Now went from 3cm last yr to 9 cm. Had a biopsy, nothing strange, the liver leisions are the same as the primary secondary. Apparently this can happen. The drugs will not work on some leisions.
Debbigbang
in
SHARE Metastatic Breast Cancer
2 years ago
MBC is so frustrating
I am now off
fulvestrant
and will be going on xeloda try to get these tumors to shrink tomorrow after blood work gets back. My onocologyst wants to do a biopsy of my liver tumors to see if they are my primary's type her2-. They could be another type 🤷♀️.
I am now off
fulvestrant
and will be going on xeloda try to get these tumors to shrink tomorrow after blood work gets back. My onocologyst wants to do a biopsy of my liver tumors to see if they are my primary's type her2-. They could be another type 🤷♀️.
Debbigbang
in
SHARE Metastatic Breast Cancer
2 years ago
Please help me provide support
Could be from the
fulvestrant
. We won't know until my scan in June. I have learned in 3 years with MBC, it all comes down to imaging. You can analyze labs and journal about aches and pains, but the answer is in the scan.
Could be from the
fulvestrant
. We won't know until my scan in June. I have learned in 3 years with MBC, it all comes down to imaging. You can analyze labs and journal about aches and pains, but the answer is in the scan.
Arisgram
in
SHARE Metastatic Breast Cancer
2 years ago
Anyone on Exemestane?
Also was on
fulvestrant
for about 2 years--but my muscles could hardly take any more injections. Off that for over a year and I still have tender spots in the ventrogluteal muscles. All the above were accompanied by Ibrance, on and off, with the doses getting lowered over time.
Also was on
fulvestrant
for about 2 years--but my muscles could hardly take any more injections. Off that for over a year and I still have tender spots in the ventrogluteal muscles. All the above were accompanied by Ibrance, on and off, with the doses getting lowered over time.
LadyKatarina
in
SHARE Metastatic Breast Cancer
2 years ago
Blood clots on Ibrance+Fulvestrant
Ive been on above regimen for about 2 years and recently developed clots in my leg and lungs. Looking for anyone with insights on their experiences w ibrance and clots.
Ive been on above regimen for about 2 years and recently developed clots in my leg and lungs. Looking for anyone with insights on their experiences w ibrance and clots.
undagee
in
SHARE Metastatic Breast Cancer
2 years ago
Questions on treatment options
Hello all 🥰 I have a question..I am currently on
fulvestrant
/letrozole. I had been on ibrance/letrozole. I see some are on the variety of those like ibrance/
fulvestrant
. I find all very interesting. As I struggled with liver mets that keeps growing tiny bit at a time.
Hello all 🥰 I have a question..I am currently on
fulvestrant
/letrozole. I had been on ibrance/letrozole. I see some are on the variety of those like ibrance/
fulvestrant
. I find all very interesting. As I struggled with liver mets that keeps growing tiny bit at a time.
Debbigbang
in
SHARE Metastatic Breast Cancer
2 years ago
Mbc and 2nd line treatment
I have changed to my 2nd line of treatment which is
Fulvestrant
2 x250mg. No other drugs even though my scan showed new spots. Is this normal?
I have changed to my 2nd line of treatment which is
Fulvestrant
2 x250mg. No other drugs even though my scan showed new spots. Is this normal?
somogil
in
SHARE Metastatic Breast Cancer
2 years ago
Clinical Trial Ipatasertib phase lll
My onocologyst is moving me to
fulvestrant
. She would like me to start a clinical trial
fulvestrant
with this new drug ipatasertib.
My onocologyst is moving me to
fulvestrant
. She would like me to start a clinical trial
fulvestrant
with this new drug ipatasertib.
Debbigbang
in
SHARE Metastatic Breast Cancer
2 years ago
PROTAC: An Effective Targeted Protein Degradation Strategy for Cancer Therapy
Furthermore, the combination of ARV-471 and CDK4/6 inhibitor palbociclib showed great superiority over the combination of
fulvestrant
with palbociclib in tumor regressions.
Furthermore, the combination of ARV-471 and CDK4/6 inhibitor palbociclib showed great superiority over the combination of
fulvestrant
with palbociclib in tumor regressions.
Scout4answers
in
Advanced Prostate Cancer
2 years ago
New liver lesions
Oncologist called a few minutes ago. 2 new lesions since starting
fulvestrant
in mid Nov. Existing 3 stable. No involvement anywhere else. He suggested moving to chemo. I requested a rescan in six weeks and to evaluate biopsy specimen from October for androgen receptors. He agreed. I'm empty.
Oncologist called a few minutes ago. 2 new lesions since starting
fulvestrant
in mid Nov. Existing 3 stable. No involvement anywhere else. He suggested moving to chemo. I requested a rescan in six weeks and to evaluate biopsy specimen from October for androgen receptors. He agreed. I'm empty.
Arisgram
in
SHARE Metastatic Breast Cancer
2 years ago
Faslodex/Fulvestrant update
For those being offered or starting this protocol - here’s an update. I know when I joined this group - it meant a lot to get information and experiences. Faslodex is my second line treatment- after Ibrance, Femara & zoladex. I’ve been feeling well on Faslodex - still going about my daily routine and
For those being offered or starting this protocol - here’s an update. I know when I joined this group - it meant a lot to get information and experiences. Faslodex is my second line treatment- after Ibrance, Femara & zoladex. I’ve been feeling well on Faslodex - still going about my daily routine and
Ntash01
in
SHARE Metastatic Breast Cancer
2 years ago
Itching from Piqray….need relief!
I’m on Piqray,
Fulvestrant
and Xgeva. My torso and scalp have been super itchy of late. Does anyone have a treatment that works?
I’m on Piqray,
Fulvestrant
and Xgeva. My torso and scalp have been super itchy of late. Does anyone have a treatment that works?
Buffwright
in
SHARE Breast Cancer Support
2 years ago
Same as Carole, “new....well sort of ; )”
Since then, I have had eleven different treatments (Letrozole, Palbociclib,
Fulvestrant
, Capecitabine, Eribulin, Navelbine, etc.) and none of them worked more than a year. Two years after genetic testing, they suddenly informed me I am BRCA1 mutation.
Since then, I have had eleven different treatments (Letrozole, Palbociclib,
Fulvestrant
, Capecitabine, Eribulin, Navelbine, etc.) and none of them worked more than a year. Two years after genetic testing, they suddenly informed me I am BRCA1 mutation.
s_yenju
in
SHARE Metastatic Breast Cancer
2 years ago
Oral fulvestrant update
I told her how I know several people on this site who do not find
fulvestrant
needles easy to manage. She told me that they expect approval for oral form in 2022. I want to share this positive news for my fellow warriors who are on this treatment.
I told her how I know several people on this site who do not find
fulvestrant
needles easy to manage. She told me that they expect approval for oral form in 2022. I want to share this positive news for my fellow warriors who are on this treatment.
Hidden
in
SHARE Metastatic Breast Cancer
3 years ago
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