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Dyskinesia
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Pramipexole (Mirapex) appear to have neuroprotective and neurorestorative properties
This study (Dopamine D3 receptor agonists for protection and repair in Parkinson's disease). goes on to say that Mirapex has a neuroprotective and neurorestorative effect. From what I read on this forum Mirapex has a lot of side effects and is nearly impossible to get off of. I am amazed it has the
This study (Dopamine D3 receptor agonists for protection and repair in Parkinson's disease). goes on to say that Mirapex has a neuroprotective and neurorestorative effect. From what I read on this forum Mirapex has a lot of side effects and is nearly impossible to get off of. I am amazed it has the
rhenry45
in
Cure Parkinson's
8 years ago
Coconut oil helps Parkinsons
Does anybody have any thoughts on this as I am desperate to slow the progress of my illness. I am on syndopa 11/2 tabs,pramipexole1.5mg thrice daily and amantadine 100mg twice daily. Of late 4hrs after the first dose of syndopa I feel internally unsettled legs feel weak and slight tremor appears.0.5
Does anybody have any thoughts on this as I am desperate to slow the progress of my illness. I am on syndopa 11/2 tabs,pramipexole1.5mg thrice daily and amantadine 100mg twice daily. Of late 4hrs after the first dose of syndopa I feel internally unsettled legs feel weak and slight tremor appears.0.5
Nimvas5962
in
Cure Parkinson's
8 years ago
Gene Therapy
The link to the study is below: https://www.action.org.uk/our-research/primary-ciliary-
dyskinesia
-tackling-underlying-cause-debilitating-rare-condition Another gene therapy clinical trial has been performed here: https://ciliajournal.biomedcentral.com/articles/10.1186/2046-2530-1-S1-P109
The link to the study is below: https://www.action.org.uk/our-research/primary-ciliary-
dyskinesia
-tackling-underlying-cause-debilitating-rare-condition Another gene therapy clinical trial has been performed here: https://ciliajournal.biomedcentral.com/articles/10.1186/2046-2530-1-S1-P109
Karlo
in
PCD Family Support Group (UK)
8 years ago
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Struggling with head injury, post concussion syndrome symptoms, drug induced movement disorder and depression
My awful reaction to the side effects of the drugs was to get a drug induced movement disorder tardive
dyskinesia
, and no-one expected that, least of all my GP.
My awful reaction to the side effects of the drugs was to get a drug induced movement disorder tardive
dyskinesia
, and no-one expected that, least of all my GP.
NooNooHead1981
in
Mental Health Support
8 years ago
Break from Fast Walking
I stopped fast walking several months ago. Meanwhile it became difficult for me to get into bed, lifting my legs and also pulling the covers over me. Tuesday was with my neurologist (movement disorder specialist) for my regular visit. I asked about my prognosis (not optimistic) and asked for Amantadine
I stopped fast walking several months ago. Meanwhile it became difficult for me to get into bed, lifting my legs and also pulling the covers over me. Tuesday was with my neurologist (movement disorder specialist) for my regular visit. I asked about my prognosis (not optimistic) and asked for Amantadine
Hidden
in
Cure Parkinson's
8 years ago
Lexapro and azilect
Also, does azilect exacerbate the effects of
dyskinesia
? This is always a problem for me and consequently I take my C/L one half at a time. Thank you for any feedback!
Also, does azilect exacerbate the effects of
dyskinesia
? This is always a problem for me and consequently I take my C/L one half at a time. Thank you for any feedback!
Enidah
in
Cure Parkinson's
8 years ago
My experiments with supplements
I reduced my medication to the half, and they are working for longer periods, my
dyskinesia
improved my sleep is better and I can drive again my facial expirations is normal, my cognitive and memory are much better and still improving many thanks to silvestrov posts on this forum and others .
I reduced my medication to the half, and they are working for longer periods, my
dyskinesia
improved my sleep is better and I can drive again my facial expirations is normal, my cognitive and memory are much better and still improving many thanks to silvestrov posts on this forum and others .
jaberalhd
in
Cure Parkinson's
8 years ago
What helps reduce Dyskinesia .
Now 1/4 sinemet every 2 hours , to try and follow the less meds at more frequent interval helps
dyskinesia
. Sometimes it works at other times she gets her off sooner than later . Tried to alternate it with Mucana ..
Now 1/4 sinemet every 2 hours , to try and follow the less meds at more frequent interval helps
dyskinesia
. Sometimes it works at other times she gets her off sooner than later . Tried to alternate it with Mucana ..
mymomhaspd
in
Cure Parkinson's
8 years ago
Excessive daytime sleepiness
Macuna Pruriens (natural dopamine supplement) - 4 times (half teaspoon or less) as more causes major
dyskinesia
. She is also taking Mirapex and amantadine for
Dyskinesia
.
Macuna Pruriens (natural dopamine supplement) - 4 times (half teaspoon or less) as more causes major
dyskinesia
. She is also taking Mirapex and amantadine for
Dyskinesia
.
mymomhaspd
in
Cure Parkinson's
8 years ago
Correct medication cocktail
Hi Everyone. It is Pat. I found the hardest part of treating PD was getting the right mix of medications taken at the right times. It took quite awhile but my Doctor and I feel we have reached that point at least for now. I take three Stalevos a day, mirapex(an-agonist) three times a day,and at
Hi Everyone. It is Pat. I found the hardest part of treating PD was getting the right mix of medications taken at the right times. It took quite awhile but my Doctor and I feel we have reached that point at least for now. I take three Stalevos a day, mirapex(an-agonist) three times a day,and at
Price69-pat_
in
Cure Parkinson's
8 years ago
Blank mind / altered mental state, lack of thoughts and visual imagination (aphantasia) caused by TBI and psychtropic meds
Thank you :-) Since my head injury last year, and my subsequent drug induced movement disorder (tardive
dyskinesia
), I have been feeling cognitive, emotional and Parkinsonian / dyskinetic effects from it all, including blank mind/fewer thoughts, inability to plan and think, sluggish thinking, reduced
Thank you :-) Since my head injury last year, and my subsequent drug induced movement disorder (tardive
dyskinesia
), I have been feeling cognitive, emotional and Parkinsonian / dyskinetic effects from it all, including blank mind/fewer thoughts, inability to plan and think, sluggish thinking, reduced
NooNooHead1981
in
Headway
8 years ago
Strategies to move forwards after head injury
My last (long) post on here was a brief explanation about my mTBI and post concussion syndrome, its impact on my life, and the wretched combination of living with cognitive deficits and a drug-induced movement disorder (tardive
dyskinesia
).
My last (long) post on here was a brief explanation about my mTBI and post concussion syndrome, its impact on my life, and the wretched combination of living with cognitive deficits and a drug-induced movement disorder (tardive
dyskinesia
).
NooNooHead1981
in
Headway
8 years ago
Pcd and cystic fybrosis
Hi is it possible that my child could have pcd and cystic fibroses becouse his doctor did genetic tests on him and this is what she said is the results. " His results are positive for primary ciliary
dyskinesia
, the cystic fibrosis studies are inconclusive and I have asked the geneticist to look at the
Hi is it possible that my child could have pcd and cystic fibroses becouse his doctor did genetic tests on him and this is what she said is the results. " His results are positive for primary ciliary
dyskinesia
, the cystic fibrosis studies are inconclusive and I have asked the geneticist to look at the
Chrisjudy
in
PCD Family Support Group (UK)
8 years ago
Changing Meds to balance motor fluctuation and dyskinesia - Still working on it.
The main thing I asked him to help me with was to adjust my meds to reduce off times while preventing/reducing
dyskinesia
. Since I had been on Stalevo he suggested I change to Sinamet with the same strength but without the addition of entacapone that comes in Stalevo.
The main thing I asked him to help me with was to adjust my meds to reduce off times while preventing/reducing
dyskinesia
. Since I had been on Stalevo he suggested I change to Sinamet with the same strength but without the addition of entacapone that comes in Stalevo.
Joanne_Joyce
in
Cure Parkinson's
8 years ago
Xadago
Any feedback - as one of the members said it totally reduces
dyskinesia
Any feedback - as one of the members said it totally reduces
dyskinesia
mymomhaspd
in
Cure Parkinson's
8 years ago
mucana capsule dosage
i have had PD for about 16 years. I have never been on Sinemet, except for a couple weeks. I am now on 100 mg of Mirapex 3X A DAY AND AMANTADINE 100mg. 3 X a day. I would like to try taking Mucuna capsules. I have one bottle of Mucuna distributed by Himalaya from India. The label says...organic velvet
i have had PD for about 16 years. I have never been on Sinemet, except for a couple weeks. I am now on 100 mg of Mirapex 3X A DAY AND AMANTADINE 100mg. 3 X a day. I would like to try taking Mucuna capsules. I have one bottle of Mucuna distributed by Himalaya from India. The label says...organic velvet
maryalice
in
Cure Parkinson's
8 years ago
New here... Struggling with mTBI, post concussion syndrome and drug-induced movement disorder
Hi there I've posted before on other health forums about my drug-induced movement disorder from antipsychotic drugs, tardive
dyskinesia
, following being prescribed meds for post concussion syndrome after my mild traumatic brain injury / cognitive difficulties.
Hi there I've posted before on other health forums about my drug-induced movement disorder from antipsychotic drugs, tardive
dyskinesia
, following being prescribed meds for post concussion syndrome after my mild traumatic brain injury / cognitive difficulties.
NooNooHead1981
in
Headway
8 years ago
Comtan increasing off times
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Dylpup
in
Cure Parkinson's
8 years ago
Mirapex reaction??
Am having strange reaction to Mirapex. Was on super low dose by MDS doc and had to lower that dose after immediate anxiety and worsening leg tremors were the result of first "low" dose prescribed by doc (1/2 tab 3x per day). She suggested I allow the lower dose (1/4 tab 4 x per day) to continue for
Am having strange reaction to Mirapex. Was on super low dose by MDS doc and had to lower that dose after immediate anxiety and worsening leg tremors were the result of first "low" dose prescribed by doc (1/2 tab 3x per day). She suggested I allow the lower dose (1/4 tab 4 x per day) to continue for
Nivrac77
in
Cure Parkinson's
8 years ago
Foot Pain
Good Morning, Anyone have issues with foot pain? I have pain on the balls of my feet right below the toe joints. It feels like I have fractured something down there and hurts to stand or walk. It is worse some days and better others. I like to walk for exercise and this is keeping me from being able
Good Morning, Anyone have issues with foot pain? I have pain on the balls of my feet right below the toe joints. It feels like I have fractured something down there and hurts to stand or walk. It is worse some days and better others. I like to walk for exercise and this is keeping me from being able
LauraKlumpp
in
Hughes Syndrome APS Forum
8 years ago
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