Experiences with
Diazoxide2 public posts
Update following GOSH appointments yesterday
Dr Hussain in Endocrine was pleased with her progress and we are aiming to reduce her diazoxide in half term. Her HI is becoming milder!
We then went to medical illustrations and had photos taken of her mouth and teeth. This is so she can be compared in a couple of years time!
Our BWS journey so far
The medication (diazoxide) that she was on was increased quite a few times, and for a while she had a supplement in her milk to help. At 6 months old, she was admitted to GOSH under the ENT department and had a tongue reduction.
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