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Experiences with
Cutaneous mastocytosis
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Cutaneous Mastocytosis and Epi Pens
I was diagnosed with
Cutaneous
Mastocytosis
this year. I’ve always had a few spots on my legs but nothing to write home about. Covid came (serious dose) and my spots got worse and didn’t leave. Again only on my legs.
I was diagnosed with
Cutaneous
Mastocytosis
this year. I’ve always had a few spots on my legs but nothing to write home about. Covid came (serious dose) and my spots got worse and didn’t leave. Again only on my legs.
amadamico
in
The UK Mastocytosis Support Group
15 days ago
to bone marrow biopsy or not?
my C-kit results is negative and my tryptase is higher than the last test but still normal so likely only
cutaneous
Mastocytosis
, however I know that 20% of people have a negative C-kit with systemic involvement so am wavering on the biopsy.
my C-kit results is negative and my tryptase is higher than the last test but still normal so likely only
cutaneous
Mastocytosis
, however I know that 20% of people have a negative C-kit with systemic involvement so am wavering on the biopsy.
poshpen
in
The UK Mastocytosis Support Group
11 months ago
hi everyone
hi, I am new to this group, I have only recently been diagnosed with
cutaneous
mastocytosis
, it’s taken nearly 12 years to get that. I’m still learning about it and it would be nice to connect with others that deal with this aswell 😊
hi, I am new to this group, I have only recently been diagnosed with
cutaneous
mastocytosis
, it’s taken nearly 12 years to get that. I’m still learning about it and it would be nice to connect with others that deal with this aswell 😊
SLW84
in
The UK Mastocytosis Support Group
1 year ago
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Et + Cutaneous Mastocytosis
Does anyone here having ET and
cutaneous
Mastocytosis
or systemic Mastocytosis? Can I know what symptoms currently you facing ? Did you have headaches almost everyday 😞.
Does anyone here having ET and
cutaneous
Mastocytosis
or systemic Mastocytosis? Can I know what symptoms currently you facing ? Did you have headaches almost everyday 😞.
Ryna-Ally
in
MPN Voice
2 years ago
Mastocytosis Specialist UK
Diagnosed in Nov 2019 with
cutaneous
mastocytosis
, dermatologist said it's unlikely to progress, but over the past few month have had increasing reactions and now I'm reacting to all foods and any strong smells and am unable to work. Any help or advice would be much appreciated
Diagnosed in Nov 2019 with
cutaneous
mastocytosis
, dermatologist said it's unlikely to progress, but over the past few month have had increasing reactions and now I'm reacting to all foods and any strong smells and am unable to work. Any help or advice would be much appreciated
yivcthk
in
The UK Mastocytosis Support Group
3 years ago
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