Dreaded beta blockers

[Kizzie54]

Help .... Are there any alternatives to beta blockers for CPVT - I feel so sluggish and tired on them! Plus really gaining weight- any suggestions. I was active, reasonably fit and now just no energy whatsoever. 😢😢

[Thomps95]

Calcium channel blockers - like verapamil - not sure though. I’m the same - some days I can barely stay awake. They are awful. I find it helps to have regular exercise and ensuring you are hydrated

[Polski]

Which Beta Blocker are you on? Many people find Nebivolol has far fewer side effects than Bisoprolol for example.

[Kizzie54 in reply to Polski]

I take Bisoprlol at the smallest dose but still no energy and very lethargic 😒😒

[Elrosso]

Which one are you on and how long have you been on them? I am on bisoprolol 5mg per day which was recently upped from 3.75, I felt like a zombie for a couple of weeks but it has since totally gone....

[Kizzie54 in reply to Elrosso]

Bidoprolol - I just feel there has to be something else, yet I understand it’s important to be on a med. I just find the whole CPVT so disheartening. No one seems to know much about it at all !!!

[Edm174]

Hi Kizzie did you change your beta blocker ?? I’m at my doctors on Friday it see if he will change mine !

[Kizzie54 in reply to Edm174]

I haven’t changed them yet but just don’t know how much longer I can continue feeling like this. I want my life back !!!

[Edm174]

So do I !!!! I will see what he says I’m in permanent AF but just these last few weeks I’ve not felt great !

[Edm174]

Hi kizzie well been to see my GP he thinks I’ve got a under active thyroid?? Having blood tests next week ! So still on bisoprosol for now !

[Kizzie54 in reply to Edm174]

Thyroid and heart rhythm disturbances are a more common than people realise xx Hope u feel better soon xx

[Edm174]

Me too !!! Thank you Lizzie have a lovely weekend xx

[Edm174]

Morning kizzie how you feeling? My doctor added B12 to blood tests is that associated with AF too ??

[Kizzie54]

Doctors give patients Vit B12 injections for thyroid problems and rhytoid problems can affect heart rhythm, so that all makes sense xx

[Kizzie54]

Sorry for the typo errors, just seen my son off on his holidays and it’s 2am !! Lol