Experiences with

Aortic aneurysm

Hi all, your stories are an inspiration and I feel weak posting this but just want my mind put at rest. It was a shock to be told I have a TAA and have worried myself silly for 3 months. Have my first cardiology appointment next week. What can I expect?? Thanks for your replies, ps, I'm 74 and thought

I was diagnosed with a thoracic aortic aneurysm ( acending and dissected desce ding) 2 years ago. I have since declined surgery and am now finding it impossible to access any sort of advice about managing my condition as well as what to expect in the future.

I am going for a second scan to check aortic aneurysm. This is a recall as the first scan a year ago showed an enlarged area. Not sure what expect any advise would be grateful. I don’t feel unwell or anything else.

My husband had emergency surgery to repair an aortic aneurysm which lasted well over 9 hours, as a result the blood flow to the kidneys was tied off and they are not working at all, GFR 6. The hospital has placed him on 3xweek dialysis, they are not offering any other options, are there any?

Hi all last year diagnosed with CAC this year sinus tachycardia and now last week Aortic Aneurysm I’ve been put on Bisopral aspirin was already on statins for Tachycardia had echo and stress test last march for CAC but no advice going forward, I suffer very badly from gerd getting very bad chest pain

I got a call yesterday and I am off for a CT scan this anfter after my surprise diagnosis of an ascending aortic aneurysm. I will give it a week then chase up my consultant appointment.

I have an aortic aneurysm and a dissected descending aortic aneurysm. I have declined surgery and wonder if there is anyone else in the same position . Everyone seems to have had or is awaiting surgery and I feel a bit on my own with this. Is it very unusual to decline surgery?

Hi I have just been diagnosed with a small 3.5cm aortic aneurysm by the hospital. However on visiting the GP today to discuss these results, he said that the hospital have not ask for any follow ups or any further treatments and I’ve just to get on with life.

In 2019 I had Open Heart Surgery twice in the space of 11 days to fix an Ascending Thoracic Aortic Aneurysm. Spent a month in the cardiac unit and that's when I first developed Afib. Before that I actually had Bradycardia, strangely enough. I was put on a high dose of Amiodarone for the Afib.

An abdominal aortic aneurysm is not something to have and not know about it, same for the pancreas cryst. I was never told either of these were possible but I had neither before going through these treatments.

The but being a 40mm ascending thoracic aortic aneurysm. Ironically the kidney cancer was picked up for a scan on my liver., which was also deemed fit and healthy after previous issues. Two years ago I had an Nstemi heart attack any a stent fitted to my LAD.

Hi I'm Jo,Three years ago I had an aortic aneurysm which resulted in a aortic root & valve replacement. I had a mechanical valve as I was 52, so I have been on Warfarin ever since. My Warfarin levels are rarely right, so have to have it adjusted regularly, but this is my concern.

After reading some of the posts I realise that I am not alone in not having much information about my condition. My dissection was not traumatic, in fact I didn't realise I had it until I had an echo cardiographer and then a ct scan,. Naturally I 'googled' the condition afterbeing told by my GP that

I had an aortic aneurysm and my aortic valve was replaced with a titanium st judes valve. Replaced again a few months later due to endocarditis. I've been taking Coumadin and now warfarin for 18 years.

Hi,Anybody here living with a thoracic aortic aneurysm , or had surgery for one and or aortic root / valve repair. ? Keen to hear how it went for you ; any symptoms/ pain. ? How was the surgery and recovery. Got my op in a few weeks time so any advice would really help. Thanks

Only just jointed in the hope I can gain a bit of information about my condition and how to manage it from anyone who has the same problem. Info seems to be few and far between from the health professionals.

I thought I had some improvement after my levo dose increase, but then reluctantly agreed to try statins again because after a new diagnosis of aortic aneurysm and also possible angina. Within 4 days my legs were very much worse.

Mine is 4.6 cm. If and when it needs repair, where are some of the best hospitals and surgeons to have it?

I've got an abdominal aortic aneurysm (5.2cm) with a bicuspid aortic valve and am due to have surgery in about 6 weeks time. I've been getting flank and back pain and have had every test imaginable to try and determine the reason.

Guess I'm a bit scared re. aorta as consultant said that continued inflammation could cause damage leading to aneurysms; my father died of an abdominal aortic aneurysm so fears are not unfounded. Thanks, in anticipation, for any responses.