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Anagrelide
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Anagrelide
Hello all you good people, just a question about
Anagrelide
. How many people on this forum are taking it currently or have tried it in the past ?
Hello all you good people, just a question about
Anagrelide
. How many people on this forum are taking it currently or have tried it in the past ?
Janis12
in
MPN Voice
10 months ago
Appointments
A know we all different to different treatments but just wanted to ask about
Anagrelide
has I don't know much about this drug ? Thank you Jody
A know we all different to different treatments but just wanted to ask about
Anagrelide
has I don't know much about this drug ? Thank you Jody
Jody00
in
MPN Voice
9 months ago
Medication
instead of 1000g today they said my hemocrite is still a bit low ,so I now have to take 500 g of hydroxycarbamide for 5 days and none on weekend and next appointment in 6 weeks and if it's still low but platelets increase then I may have to change from hydroxycarbamide I am concerned if they offer me
Anagrelide
instead of 1000g today they said my hemocrite is still a bit low ,so I now have to take 500 g of hydroxycarbamide for 5 days and none on weekend and next appointment in 6 weeks and if it's still low but platelets increase then I may have to change from hydroxycarbamide I am concerned if they offer me
Anagrelide
ChillyAsh34
in
MPN Voice
7 months ago
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Tolerant to Hydrea, giving Pegasys another try....
But we want to try Pegasys again before
Anagrelide
. When starting pegasys, did anyone notice side effects right away? Is anyone on
Anagrelide
and has the same mutation as me? Feeling a little defeated, like I'm back at square one. Dealing with a lot of fatigue and dizziness.
But we want to try Pegasys again before
Anagrelide
. When starting pegasys, did anyone notice side effects right away? Is anyone on
Anagrelide
and has the same mutation as me? Feeling a little defeated, like I'm back at square one. Dealing with a lot of fatigue and dizziness.
Zeppelin11
in
MPN Voice
9 months ago
Doctors opinion ….
Anyway, after a month on peg interferon (45mcg) plus one
Anagrelide
per day my platelets have fallen to 188 from around 600. White cell count to 4.5 from 9.3. So have been told to stop the
Anagrelide
, carrying on with same dose of peg and EPO. Other counts ok or very slightly higher than normal.
Anyway, after a month on peg interferon (45mcg) plus one
Anagrelide
per day my platelets have fallen to 188 from around 600. White cell count to 4.5 from 9.3. So have been told to stop the
Anagrelide
, carrying on with same dose of peg and EPO. Other counts ok or very slightly higher than normal.
lizzziep
in
MPN Voice
8 months ago
Anagrelide
My MPN specialist is considering starting me in
Anagrelide
for side effects (headaches, vision disturbances,, Etc). Has anyone had any luck with
Anagrelide
helping your side effects? I’ve seen an ophthalmologist and Neurologist just to verify noting more serious. Thanks in advance.
My MPN specialist is considering starting me in
Anagrelide
for side effects (headaches, vision disturbances,, Etc). Has anyone had any luck with
Anagrelide
helping your side effects? I’ve seen an ophthalmologist and Neurologist just to verify noting more serious. Thanks in advance.
Bears23
in
MPN Voice
11 months ago
Open letter
Prior to her MF diagnosis, she'd been on Hydroxy and then
Anagrelide
, until it was determined that she needed a bone marrow biopsy (platelets over 1500 at the time--the upper extreme we were told).
Prior to her MF diagnosis, she'd been on Hydroxy and then
Anagrelide
, until it was determined that she needed a bone marrow biopsy (platelets over 1500 at the time--the upper extreme we were told).
Kiruna
in
MPN Voice
2 months ago
Itching for answers....
A bit fed up with the numerous side effects of HU (Peripheral Neuropathy, Actinic Keratosis, Mouth ulcers, Pruritis, Erythromalalgia, flaking/splitting nails, anaemia, tiredness, shortness of breath, ) I looked at switching to
Anagrelide
but made no change as many 'side effects' seem to be common - or
A bit fed up with the numerous side effects of HU (Peripheral Neuropathy, Actinic Keratosis, Mouth ulcers, Pruritis, Erythromalalgia, flaking/splitting nails, anaemia, tiredness, shortness of breath, ) I looked at switching to
Anagrelide
but made no change as many 'side effects' seem to be common - or
quanglewangle
in
MPN Voice
4 months ago
Itching for answers....
A bit fed up with the numerous side effects of HU (Peripheral Neuropathy, Actinic Keratosis, Mouth ulcers, Pruritis, Erythromalalgia, flaking/splitting nails, anaemia, tiredness, shortness of breath, ) I looked at switching to
Anagrelide
but made no change as many 'side effects' seem to be common - or
A bit fed up with the numerous side effects of HU (Peripheral Neuropathy, Actinic Keratosis, Mouth ulcers, Pruritis, Erythromalalgia, flaking/splitting nails, anaemia, tiredness, shortness of breath, ) I looked at switching to
Anagrelide
but made no change as many 'side effects' seem to be common - or
quanglewangle
in
AF Association
4 months ago
hydroxycarbamide v Anagrelide
Appointment with Pharmacist and she said I may be better with
Anagrelide
, but she would arrange an appointment with Haematologist before changing. Does anyone have any info for me please. I am female, Scotland, age 79. I want to stop progression. I don’t have any MPN nurse to speak to.
Appointment with Pharmacist and she said I may be better with
Anagrelide
, but she would arrange an appointment with Haematologist before changing. Does anyone have any info for me please. I am female, Scotland, age 79. I want to stop progression. I don’t have any MPN nurse to speak to.
Hannah2308
in
MPN Voice
9 months ago
Risks of Pegasus?
At present I take 500mg Hydroxy and 4×0.5
Anagrelide
daily. My platelet count is 660 and slowly rising. I asked my consultant about changing to Pegasys but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference?
At present I take 500mg Hydroxy and 4×0.5
Anagrelide
daily. My platelet count is 660 and slowly rising. I asked my consultant about changing to Pegasys but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference?
Sivasi
in
MPN Voice
9 months ago
Anyone taking Anagrelide w/ ET+CALR?
I have read that
Anagrelide
as been a good fit for some of you. Would love some insight as I feel like I'm running out of options....
I have read that
Anagrelide
as been a good fit for some of you. Would love some insight as I feel like I'm running out of options....
Zeppelin11
in
MPN Voice
8 months ago
Synthetic Hormones, Chemo & Radiotherapy
., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to
Anagrelide
. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments.
., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to
Anagrelide
. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments.
CraftySpider
in
MPN Voice
8 months ago
switch to Anagrelide..anything I should know ?
Also , one more question…is
Anagrelide
an immuno-suppressant like HU…if not would it still be as important to get as many Covid vaccinations ? Thankyou in advance.
Also , one more question…is
Anagrelide
an immuno-suppressant like HU…if not would it still be as important to get as many Covid vaccinations ? Thankyou in advance.
CraftySpider
in
MPN Voice
10 months ago
What to do ….
I’m also still taking one
Anagrelide
capsule per day, and aspirin. So far I have very few MF symptoms , apart from the fibrosis, which he said the
Anagrelide
I’ve been on for several years could have contributed to.
I’m also still taking one
Anagrelide
capsule per day, and aspirin. So far I have very few MF symptoms , apart from the fibrosis, which he said the
Anagrelide
I’ve been on for several years could have contributed to.
lizzziep
in
MPN Voice
8 months ago
Some results, at last
My platelets are currently 559, I’m on one capsule of
Anagrelide
twice a day. I was extremely anaemic and after various treatments failed to increase hg I’ve been on EPO injections for 8 weeks once a week and it’s gradually creeping up, now 112.
My platelets are currently 559, I’m on one capsule of
Anagrelide
twice a day. I was extremely anaemic and after various treatments failed to increase hg I’ve been on EPO injections for 8 weeks once a week and it’s gradually creeping up, now 112.
lizzziep
in
MPN Voice
10 months ago
Anagrelide (Agrylin)
I am a 74 year old living in the U.S. - diagnosed with ET CALR 2 mutation in 2021. Was put on Hydrea aka hydroxyurea and low dose aspirin immediately. After about a year, began developing side effects and decided to stop the hydrea - against my doctor's recommendation. No, she is not an MPN specialist
I am a 74 year old living in the U.S. - diagnosed with ET CALR 2 mutation in 2021. Was put on Hydrea aka hydroxyurea and low dose aspirin immediately. After about a year, began developing side effects and decided to stop the hydrea - against my doctor's recommendation. No, she is not an MPN specialist
mpnunlocked
in
MPN Voice
6 months ago
High Risk?
Carrying on with one
Anagrelide
capsule per day until interferon kicks in. My blood counts are good, only platelets (600) and RDW (17,5) out of range, everything else in normal range. The EPO injections have worked, I was very anaemic and am now in normal range - just.
Carrying on with one
Anagrelide
capsule per day until interferon kicks in. My blood counts are good, only platelets (600) and RDW (17,5) out of range, everything else in normal range. The EPO injections have worked, I was very anaemic and am now in normal range - just.
lizzziep
in
MPN Voice
9 months ago
Update
I saw a consultant yesterday, different from last time, after being off
Anagrelide
for four weeks my platelets had jumped to nearly 800, however my anaemia was worse! I was taken off the
Anagrelide
to help get my blood count up but that didn’t work!
I saw a consultant yesterday, different from last time, after being off
Anagrelide
for four weeks my platelets had jumped to nearly 800, however my anaemia was worse! I was taken off the
Anagrelide
to help get my blood count up but that didn’t work!
lizzziep
in
MPN Voice
1 year ago
Combining Hydroxycarbamide and Anagrelide
I was wondering how common it is to be on both of these at the same time, as I have since last summer. I am on quite high doses of both (plus aspirin) and my platelets still hover around the 700 or 800 mark. The side effects from the medication always seem worse than any symptoms of ET (for which I am
I was wondering how common it is to be on both of these at the same time, as I have since last summer. I am on quite high doses of both (plus aspirin) and my platelets still hover around the 700 or 800 mark. The side effects from the medication always seem worse than any symptoms of ET (for which I am
ETket
in
MPN Voice
1 year ago
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