Sore eyes and mouth.: Michelle Holder... - Sweet's Syndrome UK

Sweet's Syndrome UK

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Sore eyes and mouth.

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Michelle Holder. Hi, I contacted you before when I had very sore eyes. I also developed a mouth ulcer that became infected. Now I have sore eyes again. I used antibiotic drops for eyes and steroid lozenges and oral antibiotic for my mouth. Could you tell me if the antibiotic eye drops worked successfully for you? I do not know if Sweets is causing soreness in my eyes. I had to go to Urgent Care and 111 because could not contact GP. by phone for over a week both times. I do not know which way to turn your advice will be very helpful for me.

I saw a dermatologist two years ago but they were only interested in the lesions and not my sore eyes and mouth, which seem to be present constantly.

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Shell567AdministratorSweet's Syndrome UK

Hi Donna,

You'll need steroid eye drops. Antibiotic eye drops won't work. In the past, I was given antibiotic eye drops for repeat episodes of conjunctivitis, which kept coming back. At the time, my docs didn't realise my conjunctivitis was caused by SS, not infection.

I don't know if you are taking oral medication for your SS. It sounds like you might need it. Certain medications such as colchicine and doxycycline (a tetracycline antibiotic which is used for it's anti-inflammatory not antibacterial properties in SS) can sometimes help with mouth ulcers.

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