Hi, i'm new here

[WorthyPhoenix]

I joined this group/site to see how other people react to the 'post Syncope' warning signs - i.e: in my case it's feeling dizzy, light-headed, faintish, blurred vision (sometimes black clouds round the side), buzzing noises in the ear, etc...

Whilst on some occasion I don't get warning signs and just blackout, I try to react to the pre-blackout signs by either sitting down crossed legged with my head between my legs or by lying down with my feet elevated on a chair.

So what 'pre-Syncope' recovery-esq techniques do others in this situation use? Thank-you

[Lynneporterjack]

Hi! My son has Vasovagal Syncope, but also has been recently diagnosed with non-epileptic attack disorder (NEAD, but it is also known as other titles, PNES or dissociated states). He was on medication for a long term chronic pain disorder, which affected his blood pressure which caused "blackouts", which led to a diagnosis of Vasovagal Syncope after a tilt table test. After stopping the medication, the Vasovagal blackouts decreased dramatically, however he has NEAD blackouts and drop attacks daily.

He used to get pale, dizzy and disoriented a few minutes before a Vasovagal Syncope episode, however, doesn't have any warning with a NEAD attack. The advice I was given, is to get into a comfortable position as quickly as possible, raise legs above the heart to help stabilise blood pressure, drink lots, and increase salt level by 5mgs daily. He often was wiped out by an attack, and often needed to sleep to "reset", and often felt groggy too.

I hope this information helps, and if I can help in any way, please don't hesitate to ask.

Best wishes

Lynne

[WorthyPhoenix in reply to Lynneporterjack]

Thank-you and I was aware of raising legs and keeping dehydrated, but never thought about salt intake or sleeping well, so thanks for that advice.

BTW they are not sure exactly what kind of Syncope I have yet as i'm still having tests (alot of different types have been ruled out though) and at the moment it's looking like it's related to my cervical spondylosis and nerve problems.

[Lynneporterjack in reply to WorthyPhoenix]

Bless your heart. I'm sure that when you get a diagnosis, it will help you understand what your body needs, and I would like to point out that the information I was given, may not be suitable for you. My son has difficulty dealing with the situation, and has so far been unable to engage in therapy sessions offered by CAMHS (children and adolescents mental health ) as it is one of his "triggers", however, it is worth considering approaching your GP for any help they can offer for you. From my own experience, syncope events, even with a diagnosis can be frightening, and talking about it to professionals may help lower anxiety issues, which again, in my sons case, was a trigger. It may also help to keep a diary, jotting down food, emotional state, locations etc, to see if you or medical professionals can spot a pattern or trigger. Again, I'm going by my sons experience, however, recognizing these can't hurt, so may be worth considering. Very best wishes x

[WorthyPhoenix in reply to Lynneporterjack]

Thank-you and best wishes to you both because I can only imagine how hard it is to deal with at a young age.