Sarah taylor: In loads pain this week... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Sarah taylor

Sarog72 profile image
10 Replies

In loads pain this week it's horrible x

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Sarog72 profile image
Sarog72
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10 Replies

Me too D: it’s hands and arms for me - you? What do you think brought it on? I had some major work stress that kicked everything off x

Joan59 profile image
Joan59

Me too it sucks. X

dordle profile image
dordle

Aches and pains returned when the hot weather stopped and the rain/chillier air returned

Fuchia profile image
Fuchia

Hi Sarog72,

Me too. Legs, back and neck and head so so painful. I think weather change and I have had a chronic sinus infection for 5 weeks. Think it is tied up with my Sjogrens. Never had one this bad before. Oh the joys of winter. Hubby doesn't really seem to understand. Which doesn't help. Hey ho! We will all keep each other going. Lucky we all gave each other🤗

fairy56 profile image
fairy56

Hi Sarog, yep went to Scarborough today with my granddaughter, got out of car, and hey presto bluey/purple hands, so my wonderful granddaughter held one of my hands to warm it up, my other hand in my pocket. i hasten to add we had a fantastic time, xxxx

Sarog72 profile image
Sarog72

Bless u it's horrible in it me n my hubby both poorly he got heart failure so we both not gud do u get pip xx

frillyhilly profile image
frillyhilly

Me too! This horrible weather is not helping - even none Raynaud's friends are wearing coats and saying how cold it is. For me it's my legs - years ago, I walked in with them to see the Rheumy and they got me an instant diagnosis :O)

My knees realiy do the hurt and ice cold too!

My husband suggested putting on the central heating low and it is helping. The other thing that's helping me a bit is cardigans instead of jumpers - I wear like a jumper but if I start getting too warn I open them a up bit, if I start getting cold up goes the zip! It gives me some cover all the time rather than the cycle of too cold put on jumper, too hot take it off.

My warm thoughts to everyone and hoping the weather settles very very soon (no more of these 10degree plus changes -please!!!). xx

Janpmat profile image
Janpmat

Hi yes definitely weather related, fingers white, blue, purple black and already with the cold wind, think my much sworn by Gingko Biloba has lost its potency for me :( bring back the sunshine! xx

zenabb profile image
zenabb

I am so sorry for you. What are you doing about it?

Sarog72 profile image
Sarog72

Feel so crap today aches n pain stress anxiety the lot all my body ache legs any idea took pain killers done nothing x