Going to the dermo tomorrow. Are they... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,996 members5,519 posts

Going to the dermo tomorrow. Are they things I need to ask to have done to rule out scleroderma?

Tiny1966 profile image
8 Replies

Just a bit worried this is not just raynauds. No color changes ever. Just red and fingers and palms wrinkly. Better since I've been using eurecin. Nail folds always red and slight swelling below that.

Written by
Tiny1966 profile image
Tiny1966
To view profiles and participate in discussions please or .
8 Replies
SRUKadmin profile image
SRUKadminPartner

Hi there. You can ask for further tests to rule out secondary Raynaud's (I am presuming you have primary) and any other associated conditions. For secondary Raynaud's there are a few tests such as video capillaroscopy (which look at the blood vessels around the nail but a magnifying glass can do this too) or a thermography test (which look at how long the hands return to a normal temperature after being immersed in cold water). For associated conditions, a blood test would rule these out, which you can ask your GP for. Thanks. Hope it all goes well for you.

Tiny1966 profile image
Tiny1966

Thank you

Deece13 profile image
Deece13

Hope everything goes well. Keep us updated.

Tiny1966 profile image
Tiny1966

Went to see the dermatologist today about the problems with hands and feet. Basically trying to cover all my bases. He doesn't want to touch me. Ha. With all the other things going on and the possible mast cell diagnosis. He doesn't think its raynauds because it doesn't behave that way doesn't think it's erythromalgia because it doesn't behave that way nor scleroderma because no capillary changes no hardening, etc. thinks somehow it's all related to the possible mast cell. Wants me to see a special dermatologist after I get my test results back for mcas. Just having to many of those days where I'm feeling like I'm hanging in the wind.

Deece13 profile image
Deece13

How long will it take for you to get your results? Did the specialist say?

Tiny1966 profile image
Tiny1966

Should get the mast cell results anytime now.

Deece13 profile image
Deece13

Fingers crossed for you.

Tiny1966 profile image
Tiny1966

Thank you

Not what you're looking for?

You may also like...

Pain and things I feel I have to do

I have pain almost all the time. I am 63 and live with my husband and dog. My mother, age 92, has...

Do I have to stay out of the sun?

Hi I was diagnosed with limited curtaneous systemic scleroderma and secondary reynauds 2 years...

Brand new to this site and to this disease. Why are the two linked together in this site? Raynaud's and Scleroderma? I have scleroderma.

Over the past 17 years I have managed Reynaud's. Since being diagnosed with Scleroderma 3 years ago, I have noticed

a significant change in my Physical condition,some of which are very disconcerting. I am sure that...

I have gum disease from scleroderma as this happened to any other patients ??