Hi all, I have Sjogren's but somethin... - The Australian Sj...

The Australian Sjögren's Syndrome Association

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Hi all, I have Sjogren's but something else has been added to the mix. Red sore mouth and gums which I have told is Oral Lichen Planus.

Cassiecat profile image
7 Replies

It is an inflammatory condition due to autoimmune problems. Does anyone else have this condition as I am told it is not uncommon.

Regards Cassiecat

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7 Replies
adleybra profile image
adleybra

hello, Yet another problem. I frequently have a very sore mouth and tongue,but don't like the sound of your condition. I hope someone out there has an answer to make life better for you. Blessings and take care.

Spice profile image
Spice

Hi Cassiecat

Do you take vitamin B supplements. They are promoted at the SS get together that we attend once a year in Auckland NZ. Heating your toothbrush up before using is helpful as is using Baking Soda dabbed on it to clean your teeth with. Some SS people use a mild Baking soda and water mouthwash helps neutralise mouth problems. We all seem to have to experiment with things and see what works for us. Spice

Cassiecat profile image
Cassiecat in reply to Spice

Hi Spice,

Thanks for the advice. Shall give the vitamin B's a try for a start.

Regards Cassiecat

Tassa profile image
Tassa

Iagree with the above answer as I also attend this SS get together once a year. There are medical guest speakers present and helpful hints from other SS sufferers.

Macdog.

Jax1 profile image
Jax1

Hi Cassiecat,

Sorry you are suffering with Lichen planus, poor you. Hope you can get some help.

Does anyone have Lichen Sclerosus?

Carol3 profile image
Carol3

I have this now and then. Firstly do you wear dentures? I could be wrong, but I have to make sure my denture routine is adhered to, I use" Corsodyl mint mouth wash" for treating gum problems. As advised by my dentist. Hope you can get this in Australia. I also use baking powder- 1/4 teaspoon in some warm water- from the kettle- this is soothing when nothing else helps. If too much and

it tastes too strong I then wash my mouth out with clear water. Hope this helps. xx

Cassiecat profile image
Cassiecat in reply to Carol3

Hi Carol3,

Thanks for replying, I have a partial denture but don't wear it now as my dry mouth makes it uncomfortable. My dentist sent me to an Oral Pathologist who diagnosed it as Oral Lichen Planus. He said it's a chronic condition which can be controlled. Gave me some Kenacomb ointment which made a big difference. As I have to use it regularly,am very interested in your mouth wash as been told I have "fragile gums".

Thanks for that.

Cassiecat

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