Have I missed anything? Its good to be back!!!

[june_jdr]

I've been offline for quite awhile trying to sort out my health and medication...I now feel that I'm back on track with things and hopefully it will stay that way. I need a break from the ups and downs that we all experience with our autoimmune disorders. i am now completely off steriods and I have weaned myself of Fluoxitine and Amitriptyline...I'm trying to keep to the minimum of drugs. I've been on constant medications since I was about 22 years old I am now 45..will be 46 in June... a hell of a long time...my body needs a break!!! Of course I'm still on Rituximab...my next course is due in May and I so hope that my consultant doesn't mess it up...coz I do want it in May!!!

I hope all my fellow SS sufferers are doing well and that the start of 2012 has been good to you all.

Take care xxx

[cheryl_av]

Hi June

Nice to meet you , I saw your post regarding starting Rituximab and have been wondering how you have been getting on with it? I am in the middle of reading the 4th edition of the Sjogrens Handbook and I felt that this is a very heavy duty drug I hope that it has been of great benifit to you.

Take care

Cheryl

[june_jdr]

Hi Cheryl

This is my second dosage of Rituximab and it has gone well but don't seem to last very long in my case. I have had problems during infusion, throwing up and just feeling quite unwell with it but usually passes quite quickly. The treatment has only worked for only a few months for me. I'm back at the hospital next week to see when I will be able to have my next dosage. It is alot to take it and i advice you to talk to your GP and consultant. Let me know how you get on. xxx