Part 2

[Buckley123]

Please read from part one to two any advice

[SusieW2]

I, too, am tired of being told that I'm fine because my tests are within the "normal" box. Most doctors just treat symptoms because they don't really understand autoimmune diseases. I did find a Naturopath (USA) that prescribed me a low dose of thyroid medication and testosterone. They got rid of most of the muscle twitching, night sweats and rapid bone loss. And I'm sleeping better. I practice self lymph massage which helps the nodes drain from my face & neck. There are a lot of online videos about this. Don't get dehydrated and exercise every day to help eliminate toxins. I eat a restricted diet limiting inflammatory foods, that which upsets my digestion or causes itching/eczema.

[Buckley123 in reply to SusieW2]

Thank you 🙏 for your reply

People say I’m lucky to move

On with my life but i don’t feel lucky I feel no better and no medication even my neurologist is starting to treat me as if was all in my head.

Hoping to get some sort of result from the ent lymph node biopsy

How are you feeling xx

[SusieW2 in reply to Buckley123]

I have tolerable symptoms for now, taking only Salagen for dryness. Thanks for asking. Good luck in getting some positive treatment. I've had results with Osteopathic doctors if you can find one that you're covered for.

[Buckley123]

Thanks susiew2 I will look into it xx