Hi Everyone, I last posted on here a while back. I've been in a bit of a diagnostic limbo on and off for the last 6 months. After very severe epigastric and back pain. Scans showed my pancreas has atrophied somewhat in the last year, alongside some other odd stuff. The tail of it has completely gone!! So goodness knows what happened to that. My doctor has given me a diagnosis of chronic pancreatitis. Still waiting for consultants to give a firm dx because it doesn't meet all the criteria just yet. My rheumi has said in the past it's very likely I have SS, but that not much can be done about it, apart from moisture replacement strategies. I saw another rheumi, a week ago, who's done some bloods which he says will definitively say if it's primary SS or not (I'm sure I've had them done before - maybe not - - I've had so many bloods done over last year I've lost track).
After a rather 'dark patch' mentally, I'm coping, although, it's not super easy. On pregabylin, Amitrypyline and tramadol when pain is bad. Don't sleep so well as woken either by dry mouth symptoms or pain.
Anyway, sorry for the long preamble. My main question is....Is there anyone else on here with SS and pancreas problems?
Be good to hear any thoughts or tips. Thanks guys, hope you're all ok