Up at night walking the hallway, again, due to chemo induced peripheral neuropathy…I’m so tired of hurting..

[LoveHighland]

Hi everyone,

I was diagnosed in 2018 with serous adenocarsonoma, stage IIIc,, a very aggressive Endometrial cancer with spread to lymph nodes. A total hysterectomy and “the sandwich” treatment of chemo, radiation, chemo. Declared cancer free by end of year but continue dealing with chemo side effects. The Chemo induced Peripherals Neuropathy (CIPN) is horrible and keeps me up most nights and beginning to affect balance. Working to not try all the snake oil and people out there promising to heal it. also dealing with GI issues & osteopenia. Broke vertebrae twice before that was figured out. Finally off insulin so losing weight, getting healthier in many ways , in physical therapy.

But All this is very isolating and, just like chemo treatments, Im going through this alone. It’s nighttime and I’m hurting. so feeling very sad., exhausted . But .I wish so much I had understood the long lasting side effects of chemo and had been able to advocate for myself to prevent this level of pain.

Thanks for letting me vent. Kicked out of one supposedly support group (not related) for posting a negative and honest with my feelings moment, so I’ll leave it at that. Again thanks for letting me vent. Blessings to you all in your journeys

[Moonbeams33]

I have had recommendations by my doctor and other healthcare providers to try -R-alpha lipoic acid and acupuncture and massage that is specifically for cancer rehab patients. Have you tried anything? I know the neuropathy is miserable. Also, low levels of certain vitamins and minerals including magnesium make my symptoms worse so I try to stay on top of it.

[LoveHighland in reply to Moonbeams33]

Thank you for responding. yes, tried, can’t afford, tried. Also Essential oils, compression socks, capsaicin stuff, menthol, Vicks, pills for neuropathy supposedly, circulation aide, heat, cold, tens, scrambler, prescription meds. Nothing helps. Try to walk but so exhausted I almost fall several times. Just got suckered again by online lotion promising to cure it. But, again, thanks for caring enough to respond.