Help needed urgently

[gillyflower1]

Tumours huge now due to exemestane not working and therefore 2months of no treatment. Breast is much bigger than the other one and very hard. Is there any hope please dear ladies.

[Mary115]

GillyflowerOf course there is hope, and it is realistic to have hope. Examastane is the first tool in the box. There are others.

Of course there is grief that these days are so hard.

Of course there is anxiety and confusion over what is next.

And of course we can find strength with women who get us in our particular situation

And we can go forward together providing emotional and informational reciprocity here on the forum, and in other zoom or in-person groups.

There is hope. No longer alone.

[sunnyday3 in reply to Mary115]

Yes,there is definitely hope. When I was first diagnosed 2 chemos didn't work. One breast was huge, hard and I had an open wound from surgery. I was terrified. Then I started on Tamoxifen and my breast got softer and smaller and months later my PET scan showed I was stable.It must be a scary time for you but please know there is much hope and as the prior replier mentioned there are more medications for you and this is a great group of supportive women.

[USIrishcolleen in reply to Mary115]

Mary115,

That was all said so beautifully. Gillyflower, I do not know your exact diagnosis, but as Mary115 says, there is always hope. Please try to find peace, and always ask us if we can help you feel better.

Best,

Colleen

[MyMiracle13]

There is always hope. Exemestane didn’t work for me either but Xeloda did. There are many more options down the line. Have faith and cheer up!

[Rbeth in reply to MyMiracle13]

Xeloda is my lifeline. One week on and two weeks off. You can get a second opinion. I live in Rochester Ny and also have a second opinion at Sloan Kettering. They work together to find a solution. It’s so hard. We have each other. Thanks for writing in. Blessings for all who live with this burden. Reenie

[Nocillo]

Don’t panic! There are a myriad of treatments available. I hope your oncologist can help calm your concerns. Please don’t feel alone, there are so many going through similar things. You are right to look for help. Please be very kind to yourself right now. Self care is so important. Hoping you have good support at home. Please don’t ever give up.

[debbiedo2063]

Please try to stay positive even though it is scary and panic can set in. You are not alone and as you read through the forum posts you begin to realise how many treatments there are and how many work for one person and not another. Everyday you get up is another day towards finding the right treatments, keep posting and sharing your feelings as this really helps. I have found this forum invaluable, the friends are sooo supportive and inspirational.Have a lovely day and many more lovely days will come.

Debra xxx

[8576]

Not to worry. Of course there is hope and lots of treatments. Anytime you are feeling so worried please call your oncologist. They are always there for you will be able to comfort and reassure you. And you can always contact us here for support. As you can see, there are answers.

Cheers, June S.

[Griffie120]

Gillyflower1, just as all the other ladies have said there’s definitely hope. Last year I was on Exemestane and my tumours grew huge. Luckily my oncologist is calm and explained that there are so many other lines of treatment and new ones being researched constantly. We decided to try Fulvestrant and Ibrance. Immediately they started to shrink, I’m lucky as I don’t have many side effects, so I will stay on as long as I can. Every month there is a small reduction, so hold on tight the next line of treatment will help, take care and stay positive.

[Praising in reply to Griffie120]

Were thes new tumors that started growing after 1st diagnosis? That exemestane stopped working

[Griffie120 in reply to Praising]

I had recurrence after a few years after my mastectomy, but there was a new one that came up while on exemestane.

[Praising in reply to Griffie120]

Oh no where. I’m taking it now for Mets to neck. 6 mo

[Griffie120 in reply to Praising]

My 2 tumours are localized. They call it metastatic but it’s same breast. Everyone responds differently could work very well for you. Just keep in touch with your oncologist if you are uneasy. My oncologist calls it a chronic condition that will always need treatment, sure is better than saying cancer. I look at it that way too, try to always stay positive and not dwell on the big “C” word. I take my meds, do anything and everything I can do, enjoy life, laugh and keep going. We have many many years with all the new meds out there. Stay positive. ❤️

[Kaydub]

Please don’t give up hope. Talk to your oncologist about other lines of treatment. I know how hard it is and the anxiety you must be feeling. Sometimes the anxiety can be overwhelming. Allow yourself to feel it and process it. Meditation makes me feel better. I try to remind myself that I’m living with cancer, not dying of it.

Sending you a big hug.

[Mary115]

GillyflowerJust checking back in to see how you are doing.

[Hidden in reply to Mary115]

Me, too.... (heart)

[mariootsi]

Mary115 said it so well!

[love2golfwell]

I have not been on that medication, but please do not give up. As the other ladies here mentioned, there are many other treatments available. My doctor always says this is a chronic condition and there are lots of things to try if one treatment does not work. We are all here for you. Try to stay calm, talk to your doctor about options and think as positive as you can. Sending you prayers and hugs

[kkrouse]

I went the mastectomy route. Is this a possibility?

[jersey-jazz]

I am so sorry for you and the way you are feeling. The fact that you are physically alone at this scary time is hard. Please know that here, YOU ARE NOT ALONE. WE ARE IN THIS TOGETHER!XXX OOO