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[Faire]

Tierd

[Faire]

Thank you so much for reply, I had taxol chemo for 3 months prior to taking Ibrance & letrozole I’m just on my first round of that. I had hoped I would feel better on this & maybe I will later on, I hope & pray for all of us on this journey

[Timtam56]

Welcome to a wonderful place to park your questions and a need for understanding Faire. Sorry for the reason you had to find us. You'll find a lot of support here.Love your user name by the way.

[BluHydrangea]

Hi Faire- hi and welcome! It is a roller coaster of emotion and new body symptoms for all of us on this road. I found that my body has adjusted to Ibrance after a few months— or maybe I am listening to my body? Try to give yourself time to adjust to ALL you are going through and be gentle with yourself as you adjust. It is such a shock to get this diagnosis. I hope you have a good team working with you and some support from family and friends. We are here to share and learn from each other... along the way. ❤️cindi

[Faire in reply to BluHydrangea]

Thank you, I have all encouraging news from this site & it makes me feel better, I hope soon I can encourage someone

[debbiedo2063]

Hi Faire,

I’m newish too. I totally agree with Sandra it has helped so much drinking water throughout the day , I go nowhere without my water bottle it’s a big part of me now. I did get terrible fatigue on cycle 1 but found going for a walk helped a lot. I’m on 125 Ibrance dose and doing ok so far re blood tests.

I’m into cycle 3 on ibrance, fulvestrant and bone injections.

Diagnosed Nov 2020 after diagnosed grade 2 in 2012 and 2018.

Hope it helps to tell you a bit about my first 3 months.

At first I think my mind was as tired as my body trying to take it all in. I didn’t know wether I was coming or going went on automatic pilot thinking I’ve got so much to do and so little time to do it in and so tired with it all.

But on cycle 3 I am starting to feel much better, much more positive in the fact that I’ve had time to stop , adjust my mind and body, make sense of it all and incorporate everything into my new life because that’s what I see it as a new life LIVING with cancer and it helps to make sure everyone around you understands that and don’t put too many demands on you and you dont put those demands on yourself. Your strength now is recognising the need to look after you.

One thing I have learnt recently is to say no and as a Charity Worker for over 30 years it’s something I found hard to do but I think it’s time for many of us to start putting ourselves first as much as we can.

This diagnosis has given me the opportunity to think about my life, the past the future and what I want to do and achieve and even though it’s a different life it’s still going to be a good one with family and friends included.

I’m from the UK and I always remember a friend in the 80 s who hated it here and emigrated to Australia to seek a better life and recently she told me life was never any better there ( she stayed there) but just different.

I never thought fatigue , meds, scans etc would be part of my life at this age but I’m determined the rest of my life will be no worse just different and it takes time to adapt to the change.

Take care xx

Debra.

[Teddielottie]

Welcome Debra on here as I see you are ‘newish ‚ too ! I wish you well as you approach your first scan on your new protocol . I am in the U.K. and have been on Ibrance for over 3 years and tolerated it well so far . I was diagnosed de novo stage 4 bone mets after a right mastectomy / axillary clearance /reconstruction revealed that I had 16 out of 18 positive nodes . I started straight on Ibrance / Letrozole Dec 2017. I see you have a son of 18 and applying to universities... our daughter was 18 at the time of my diagnosis and just going away to university . I told her that I would tell her if there were any significant changes but I wanted her to get on with her life ... she graduated last summer and is now getting work experience away from home , and just turned 22 in January .

I hope you do well on Ibrance too ... keep positive , keep hydrated and keep moving ! Take care ! x

[debbiedo2063 in reply to Teddielottie]

Teddielottie Thank you so much for your post. Just logged in and this cheered me up no end having similar experiences etc and it’s brilliant you are doing so well on Ibrance and your daughter has graduated, this gives me hope x

Take care

Debra

[Adele_Julia]

Welcome Faire ! I found this board an enormous gift spiritually, educationally and incredibly supportive ! We're not alone in this journey !! xoxo

[WordNerdSharron]

Welcome, Faire! This is such an amazing group of humans. I think you will find good support and a place to ask questions, gather information, and share the journey. This board has been a real help and lots of encouragement to me.