Numbness

[Wildwood123]

Anyone experiencing numbness with Ibrance?

[Susan1953]

I have been on Ibrance/letrozole 2.5 years. The past 6 months both hands have numbness while I sleep. It is very annoying. I have started sleeping in carpel tunnel gloves and the numbness is much better.

[Lisa-n-AZ in reply to Susan1953]

Susan,

Hello, I am currently on cycle 30 of Ibrance and have been NED for 24 month. I get days of numbness then it goes for a few weeks and then comes back. It affects both my feet and hands. Susan are you need or progression free? I'm always wondering how may of us are out there on Ibrance for longer than 2 years and then the next question is what is after Ibrance?

[Susan1953 in reply to Lisa-n-AZ]

Lisa, I am NED since my first scan after starting ibrance/letrozole in 4/2017. I have 2 close friends that are on these same meds. They are 3 and 4.5 years NED.

[Nmartinez15]

I have numbness in my hands but I have it since my first surgery. I think they damage some nerve during my double mastectomy.

[Presence1]

So glad you asked this...yes!!!! I’ve been on Ibrance since January 2019. The numbness and “pins and needles “ stated about a month ago. I get it mainly in my right arm and left leg. I too wear a carpel tunnel glove at night and it helps.

Sometimes my calves in both legs start cramping too, that is relatively new.

[Libra48 in reply to Presence1]

How does the glove work for the whole arm? I’ve had recent pain in my calves too.

[Presence1 in reply to Libra48]

It wraps around the wrist and somehow relieves pressure on the tendons.

[Lilykristymichael]

Yes, off and on. Comes and goes.

[Libra48]

I’m glad to see this post! I’ve had pain in my calves the last couple of weeks..goes and comes. The last couple of days I’ve had an annoying pain in my left arm..like it feels heavy and inflamed. I couldn’t sleep last night because of the discomfort. According to “Dr. Google” symptoms can be related to lymphedema....of course I’m self diagnosing. I’ll wait till early next week and if it persists I’ll call my doctor. I just had an appt on Tuesday and my arm was not hurting. It sucks to feel a new pain and not know if it’s serous or not. I did ask my doctor this week what is the likelihood of a blood clot. He said it’s very rare.

[Savmyr]

I am on my 5th cycle of Ibrance & Letrozol and during the 3 st cycles I had tingling in my feet. Now it is gone.

[hopenowandtomorrow]

I just completed my 4th cycle of IBrance/Faslodex & I have had it in my toes & fingers for the past 2 months.