5 years?

[Benoahmom]

Anyone on here past the 5 year mark?

[nstonerocks]

Past the 4 1/2 year

[Benoahmom in reply to nstonerocks]

And how are you doing? What’s going on with your Mets?

[nstonerocks in reply to Benoahmom]

Initially diagnosed with "innumerable" lung mets. After Abraxane, a lot cleared up. Seem to have 3 mets in Lt lung that go up and down. Currently on Ibrance with faslodex replacing letrozole in September. Lung mets shrinking. No new mets. I work full time, I'm tired a lot, but I'm also 65 and overweight. I guess I'm doing pretty well?

[Benoahmom in reply to nstonerocks]

The meds make us tired and fat...just an added bonus I guess ;( congrats on your longevity...keep it up sister!

[nstonerocks in reply to Benoahmom]

Amen and to all of us. We don’t know one another and yet this makes us sisters in ways no one else can fathom.

[Barbteeth in reply to nstonerocks]

I think you’re incredible

Barb xx

[Barbteeth]

Same!!

Barb xc

[Hidden in reply to Barbteeth]

Me too! My NHS Medical Exemption Certificate expires in 2023, so I'll get back to you all then when it comes up for renewal!

Sophie x

[Collswims]

In year 6!

[Kathyquilts]

I am. I had breast cancer in 1992, had surgery and chemo. It was gone. Then it came back in 2011. I did Letrozole for almost 6 years, now I’m on Faslodex and Ibrance for the last 18 months. No evidence of disease at this point. Carry on my dear.

[Half-Full in reply to Kathyquilts]

When your cancer came back in 2011 was it considered Stage IV metastatic (“distant” metastasis)? Your doing fantastic!

[Kathyquilts in reply to Half-Full]

Yes. Original cancer was left breast. Mastectomy, chemo, gone. Almost 20 years later it was found by accident on my left adrenal gland a tumor about an inch in size. A bit in my right breast, but not enough to biopsy, so they biopsies the adrenal mass.

[blms in reply to Kathyquilts]

Where did your cancer return when diagnosed MBC?

[Kathyquilts in reply to blms]

The other breast and my adrenal gland.

[SeattleMom]

Hooray for all the success stories and the inspiration they provide!! 👍👍❤️❤️

[PJBinMI]

15 years last month, denovo mets, never any symptoms. I am 73 and hoping to get a few more years......

[Gmaoftriplets in reply to PJBinMI]

You are an inspiration. I'm at 2 years and hope for many more.

[PJBinMI in reply to Gmaoftriplets]

During the first couple of years that I was living with mbc, I heard of a couple of women in Australia who were at 20 years! That went a long way toward easing my own fears. Since then, I have met a 30 year living with mets woman at a Metastatic Breast Cancer Network conference. And a woman in my local mbc support group who had lung mets and a her2neu positive bc lived 13 years and may have died earlier than she might have but about a year before her death, her 31 year old daughter died suddenly of a brain aneurysm--that devastated her whole family, as I am sure any of us who are mothers completely understand. My sense of humor has been a huge help to me in coping. When I was going thru initial staging and didn't yet know that I had mets, I made a list of things to do with an amputated breast....my favorite was to stuff it, mount it and dress it seasonally. I have to find ways to laugh at this nasty cancer to put it in its place! And I have a pretty wild imagination! I don't know if that would work for everybody, but it helps me feel more in control in this lousy group of cancer cells.

[diamags]

5 for me!

[shannamilton]

I'm at 8 months....

[Kimr2081]

When mine initially metastasized to my bone I had NED for 11 years being treated with Faslodex. It showed up again in 2017 in my liver. Hoping I can keep it stable or kick it to the curb again for another long time!!

Kim

[Benoahmom in reply to Kimr2081]

That is awesome!

[Kimr2081]

You made my day, when I wasn't having a very good one. Thank you and trust me, I draw inspiration from you and all the brave ladies on this site!!

[charlie1712]

Mine all started with breast cancer in 2011, mastectomy in 2012 with 14 of18 lymph nodes involved. Invasive lobular carcinoma, very aggressive stage 3B. Did chemo and radiation after surgery per my request. Was good until about 2014. My husband had AML and I was his primary caregiver after bone marrow transplant at Mayo Clinic. He passed in 2015. I’d been on Ibrance/Faslodex but scans in 2017 showed metastasis to bone only. Further metastatic progression to bone in other areas middle of 2018. Felt slight pain during the Ibrance/Faslodex and fatique but generally felt pretty good. Went to Afinitor/Xegeva regimen and no further progression so far. Got about 2-1/2 years and hope to get this much out of this next round of oral chemo and monthly shot. More fatique, but I still travel coast to coast to see my children and grandchildren as I live in the Midwest. I feel blessed to still be here from initial dx from 2011-2019 even though I am now stage 4. Keep fighting and stay as normal as you possibly can. Charlie1712

[Lorlal]

I was diagnosed with stage for breast cancer in 2013. I had a bilateral mastectomy, full lymph node removal on one side, Chemotherapy and radiation. I took Femara and was in remission for over five years, but was diagnosed with metastasis to my spine in December 2018. Just recently started Ibrance and Faslodex shots and I’m starting to adjust to the medications.

I was at my oncology appointment yesterday and overheard my doctor say that in a couple of years there will be less breast cancer patients because he expects there to be a cure by then. He had just come back from a conference and heard very promising news.

[Betbop in reply to Lorlal]

Thank you so very much for your reply and most promising future news for those of us who are in a daily battle with MBC!! You've made my day and most likely many others. God bless you,♥️

[Terilyn12 in reply to Lorlal]

That is fantastic♥️ ... I get pet scan results in 3 days so I love hearing positive news from a dr!!!

[Benoahmom in reply to Terilyn12]

Did you get your results?

[Terilyn12 in reply to Benoahmom]

Results not good this time ... the Letrozole stopped working and spread in lymph nodes and many of the bones. I was honestly shocked that it stopped working after only 10 months. Starting on Faslodex on Thursday so really hopeful!!! Thank you so much for asking ♥️

[Benoahmom in reply to Terilyn12]

I am so sorry. Have you read the book Radical Remissions? Take a look. I know you are scared...we are all scared.

[Arkait]

almost six years since first MBC stage three, now stage IV lung

and center chest lymph. Just started Letrozole. also starting alteratives

Carivora, Graviola, turkey tail mushrooms, may try apricot pits---

always lookiig for new alternatives to add.

[marceline]

been in this sorority for 22 years - three times with mbc - keep fighting to stay positive

[Benoahmom in reply to marceline]

Wow! I don’t understand the 3 times though. Did you somehow get cured 2 times?