Grateful: Today is my 2 year... - SHARE Metastatic ...

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Boogitymom profile image
22 Replies

Today is my 2 year cancerversary, grateful to still be in the fight 🙏

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Boogitymom profile image
Boogitymom
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22 Replies
Kats2 profile image
Kats2

Congratulations! Keep that fighting spirit going. We need to be positive throughout our ordeals, even though some days are harder than others.

Continued cancerveraries to you! Kats2

demanos profile image
demanos

Congrats Boogitymom! This is my 8th anniversary of being diagnosed with BC. It's my 3rd anniversary of being diagnosed with metastatic BC. So far, so good. Hang in there my dear. One day at a time.

Susan1953 profile image
Susan1953

I am so happy for you. Hang in there and keep fighting. I have been in this battle for 10 months and doing well. Live for the cure!!!!

Tap321 profile image
Tap321

And many more!!!!! I am 😊 for you!

Sbaker134 profile image
Sbaker134

Congratulations on your 2years.I Stay strong and remember all of your sistas are here with you. I'm on my 2nd year this time. Please pray for me that all will get better My prayers to everyone. Not so strong anymore but fighting the pain.

Boogitymom profile image
Boogitymom in reply toSbaker134

Absolutely sending prayers your way, pain is challenging me too

Congrats to you - feels good doesn't it. I am in my 5th year now and still feeling good inspite of the roller coaster ride so keep positive.

Boogitymom profile image
Boogitymom in reply to

Knowing your success gives me hope and strength to fright thru those rough days

Sbaker134 profile image
Sbaker134 in reply to

How do you feel Izzyf? I have changed so much. I feel like I am in denial because of the way I live my life I guess. It does take forever for me to get ready if I am going somewhere. I still try to do the same things with my friends but I'm so fatigued and they all know how I feel and their so awesome. But my big question is how long will this disease last until it takes me. How will I know? Thank you for listening to me ❤️

in reply toSbaker134

You can't know - it is different for each of us but as long as you are living your life as best you can it is all time banked! We have just spent 5 days camping in the Kruger Park - that is my way to renew my soul; that an my garden - so do it. Believe me, a bit of exercise, a gentle walk and a desire to get on with something really helps the fatigue.

Over the last couple of years I have had my ups and downs, believe me. Whenever my counts went up and scans showed progression I was in tears and terribly depressed to the extent my oncologist put me on Cilift (anti depressant). I am not a fan of anti-depressants but it did help. However the side effects (heavy sweating especially on head and face and jaw pain from gritting teeth???) started to annoy so gradually weaned myself off and am currently feeling good.

My worst days are the day before my next oncology visit - is it going to be good news or bad? Is my oncologist going to want to start me on chemo big time ( I really can't get my head round the idea of drugs that make me feel lousy and affect the quality of my life so badly that I have to ask - do I want to exist at the expense of living?) She keeps telling me to live one day at a time - such good advice but not something that comes naturally to me, I'm afraid. So I carry on as comfortably as possible. I am lucky - my only side effects at the moment (on Faslodex) seem to be that I want to sleep late in the morning (which means I miss out on the lovely early birds in the garden) and aching ankles and knees (the jaw seems to be improving). I hope this drug works for me. I see so many people on this site are on Ibrance along with an Faslodex or Letrozole or other oestrogen suppressant. It seems to be the way to go for those of us with stage IV mets. However here in South Africa my medical scheme has only just acknowledged the drug on its formulary and it is currently "restricted" - this means loads of motivational correspondence from my oncologist and may well involve going up to the next plan (an extra R1000 a month) and still have a co-payment. Damned if you do and damned if you don't! - I am frequently at war with the scheme as they don't seem to consider that diseases such as this usually need a fairly quick response. Oh well.

So now I, too, have vented. Whatever this journey takes out of us at least there is a site like this from which I do get enormous encouragement - hope you do too.

Good luck on your journey and keep in touch.

nstonerocks profile image
nstonerocks

Congrats and keep going strong. Almost 4 years for me. Told I might have 10. Hope to double that!

Boogitymom profile image
Boogitymom in reply tonstonerocks

To God’s ears

Wildcat1 profile image
Wildcat1

Congrats!!! Always so good to hear!! I just had my 1 year. Hope you have continued success!!

spouseM profile image
spouseM

good for you!!! celebrate, then celebrate again! One thing about having something like this, we do realize that every day is so special...I wish we could all keep that in mind, no matter what our situation.

SeattleMom profile image
SeattleMom

Congratulations, Boogitymom!! As someone who just passed my two-month cancerversary, would you mind describing your life today vs. your life at my point in this journey? Thanks and God bless you!

Boogitymom profile image
Boogitymom in reply toSeattleMom

I was stage 4 from the start with bone Mets, every vertebrae has been affected as well as my femur, pelvis and hips. Before diagnosis the pain was unbearable and I thought I was losing my mind, having a doctor accuse me of “drug seeking”. My 1st bone biopsy didn’t get a big enough sample so had to have it done again. So needless to say once treatment started I was overjoyed. It took about 2 months before I started to feel improvement, I still have bad days but I still work full time and have traveled quite a bit to fulfill my bucket list. Overall, I cherish every day and listen to what my body needs. I have found great comfort in my advanced cancer support group, we are all stage 4 and understand each other in a way others can’t. Hope this helps, praying for you and a cure

SeattleMom profile image
SeattleMom in reply toBoogitymom

Thanks so much for your reply!! You are an amazing woman and such a great example of "living life." Hope I can find an MBC support group in Seattle; you are so right about the camaraderie of those who are "walking the walk together." Prayers to you, too, and may God sprinkle your positivity on all of us!

Kimr2081 profile image
Kimr2081

Awesome. You are an inspiration to us all. Praying to be in the same boat!!

Cheza11 profile image
Cheza11

Congrats Boogitymom! 🎉

Wonderful to hear your 2 year cancerversary! Sending you best wishes!

Epinto profile image
Epinto

Congrats!!! One day at a time!!!

RLN-overcomer profile image
RLN-overcomer

I am an over-comer,and heir to Gods throne whose last chemo treatment aka " the red devil", was 10 years ago .I thank God for this most important blessing besides being in the world of the living, able bodied, with no strain or pain, and able minded with joy and thanksgiving. Yesssssssssssssss Amen!!!!! I pray this prayer for all of the warriors still in this fight to beat down this disease. Don't give up the fight, your life depends on it.

Lisa-n-AZ profile image
Lisa-n-AZ

Congrats, here is to many many more.

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