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Has anyone had to wait months for treatment?

Sugarmag profile image
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Has anyone had to wait FOUR MONTHs for treatment? I had a masectomy on Nov. 5th with partial reconstruction at that time with an expander. I did not get a clean margin but I have no lymph node involvement. I had a CT scan a few weeks ago in prep. for radiation and then was told that it could not be done with the expander in. So two weeks ago I had the final implant. Now I need to be re-scanned to start radiation. I am terrified that cancer has been spreading for four months.

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Jaxon2007 profile image
Jaxon2007

My sister had to wait months for treatment, on three different occasions she was told " no money, no insurance, no treatment. " She had just gone through a divorce so had lost her insurance, hadn't kicked in from her employer at the time.

Sugarmag profile image
Sugarmag in reply toJaxon2007

That's so terrible !! In my case I have decent insurance. It's just been one set back after another. I changed oncologists and hospital affiliations because of the original

onocologist' s office not ensuring that my tissue sample was sent in for testing until I followed up a week after it was due back from testing. I decided to go for a second opinion about things and was glad that I did until I was told that after a $100 co-pay for scanning, I could not safely have radiation with an expander in (which shouldve been figured out before they gave the go ahead). Now I have to be re-scanned and pay another $100 plus it's put things back even further. I am scared that after 4 months and 3 surgeries, the cancer has spread.

Jaxon2007 profile image
Jaxon2007 in reply toSugarmag

My sister had to wait from Oct. 2012 to May 2013. Her cancer spread to many more lymph nodes. Out of 25, 23 were invaded...sorry but I don't think you want me to sugar coat anything. Just pray yours does not. On a lighter note my ex husband has lung cancer. He had his top right lobe removed in 2015 or 2016 not for sure, and then its back in the left lung and he had to have the center lobe taken out last Dec. 2018. My daughter expressed concerns to the onc about the wait as insurance approval is slow and he said he wasn't concerned about it. But then again, its not their lives. He had one lymph node invaded and is on chemo now.

Sugarmag profile image
Sugarmag in reply toSugarmag

Update from Sugarmag- all worked out! I did not have to pay an additional $ 100 for the second scan. I had my first mammogram and ultrasound post surgery and an appointment with the surgeon a year out from original diagnosis and I am deemed cancer free.

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