New sufferer: Hi my name is Bev I have been... - SarcoidosisUK

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New sufferer

Bev2395 profile image
4 Replies

Hi my name is Bev I have been discussed with sarcoidosis which is mainly affecting my lymph glands and breathing as I have previously had NHL it's been difficult to get diagnosed.

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Bev2395
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Mooey1257 profile image
Mooey1257

You will find it difficult to be diagnosed as a lot of the symptoms are also problems in their own right. I am fairly sure mine has returned but all they say is possible sarcoidosis when I have experienced 9 out of 10 symptoms. I had inflammation of lymphnodes in my lungs back in 2001 and I was very out of breath when walking up even slight slopes. It stayed for about 3 yrs and then went quite suddenly. I still have rampant arthritis in my knees and am due to have one replaced early next year. I consider my illnesses an inconvenience and it could be a lot worse. Take care, good luck and enjoy 2017. Kind Regards. Graham

Bev2395 profile image
Bev2395 in reply to Mooey1257

Hi Graham thanks for replying. Best wishes for 2017 and hope the knee op goes well

Bev

hypermobilecat profile image
hypermobilecat

what is NHL please ? think i have clicked non hodgkins lymphoma, which one is that ? are you alright with that now ? sorry so many questions, hope you get diagnosis

Bev2395 profile image
Bev2395 in reply to hypermobilecat

It's non hodgkin lymphoma, sorry.

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