Light therapy....anyone heard of this... - Restless Legs Syn...
Light therapy....anyone heard of this. Sorry its a bit long http://www.jmedicalcasereports.com/content/4/1/286
hmmm, ive seen something like this on another rls site, if im right, the manufactures had a survey onthe internet that we could fill in and list our symptoms, i did that, they even asked how much we would be willing to pay for this machine/product, i found it very strange that i would let me put a low price, it would not register ??, anyway, a few months later i got an email advertiding it asking if i wanted to buy this,... it was soooo expensive.. i dont have a problem with the price of anything that would help us..but.. a light machine ??? hows that going to help ??? i dont think it will personally
I did that survey too a couple of years ago. That is funny-asking "how much would you be willing to pay?" It is not like that means a thing to them, obviously.
thats the one !!
oo yes just looked again" Biomed", i was right it is the same thing
oh by the way...I didnt mean the light therapy would work...i meant the link might work!!!!! ha ha ....I just found it while I was messing about online and thought hmmmm?
If people have to come to you to sell a product and tell you how successful it is and wonderful then I always think buyer beware.
take everything they say with a very bloody good big pinch of salt.
make that a whole packet of salt for me !!! 
a whole case of salt! Coincidentally, one of the many internet "cures" for RLS is a "no salt" diet. ha! The late Dr. Wayne Hening, who was the one who dug up Dr. Ekbom's work from the 40's, wrote a scathing review of that "cure" in the Nightwalkers newsletter that the USA RLSF puts out quarterly. Putting up any money for information is just plain wrong, and I wish more people would understand that idea. If any one of us found the cure, we would be shouting it from the rooftops, so again "buyer beware", or do not be a "buyer" unless it is an official RLS book written by RLS experts.
Personally, I wouldn't be too dismissive of the claim. I mentioned in a recent blog how recent sunbathing(not something I've done much of) delayed the onset of my RLS symptoms quite noticably. Sunshine is giving out copius amounts of NIR; our problem in the UK is cloud cover. The hours of late afternoon and early evening were a simple pleasure compared to the usual fizzing and twitching. I'm not sure what this particular device might be, but it shouldn't cost very much to acquire a NIR wavelength emitter. A lot of security cameras use them . I willhave a wee look at this.
NIR?????
they could have something here - isn't it strange that our symptoms come on after the sun has gone down or the daylight has gone ? Maybe it is a kind of allergy to the dark ?
Yes, I agree with the possibility of sunshine helping to a degree......I am a sun-worshipper and have just reutrned from a week in Cyprus where I had no symptoms at all. I also find that come late september/october time my RLS returns with a vengeance, my whole body seems to tighten up when the weather gets colder and is worse until spring when it gets warm again, and Yes, I would love to live somewhere warm!!
You are definitely an exception to the "rule", not that there are too many rules when it comes to RLS. I call May thru Sept my "busy season". That is when I get the most new members in my groups, and the heat and humidity drive most people crazy with RLS. I was wondering this year, especially, if that is because a lot more people take allergy meds in the spring and summer, as most allergy meds contain ingredients that will "kick" your RLS in. (pun intended)
Goes to show how we all differ....when its hot my RLS does not like it... I cant sit in the sun for long before my RLS starts.... even laying down indoors regardless of what the weather is, will set my legs off during the day... I hate the winter, but my RLS prefers it... The only good thing for me sitting in the sun when we do get it here, is getting the Vit.D...
well in case, i like it as cool as possible, the only thing i like hot is a hot bath, and i cant sit in the sun to much, seems to set my legs of, i wish i could as i love the sun 
also i have my bedroom as cool and quiet as i can, no tv or distractions, trying to tell myself "this room is for sleeping in" pfft my legs just dont listen sometimes
Like jumpinjack, I wouldn't be dismissive of the claim that light therapy might have a place in treatment.
RLS and PLMD are sleep disorders and more and more Fybromyalgia is being considered as a sleep disorder. I have had light therapy for depression, with a degree of success. I certainly agree that I would be wary of manufacturers that were chasing me to buy their products. The light box that I bought at the time was about £90, which wasn't too bad. I was working at the time. Right now that is way out of my reach.
Melatonin is heavily involved in the sleep process so it might be worth a go, if you can afford it. It's hard to sort the snake oil salesmen from the genuine ones. I know that these disorders are distressing enough to drive you to clutch at anything
I have all three conditions and before I was prescribed Ropinorol, which works a bit for the RLS and PLMD, I was absolutely desperate. I thought I was going insane and nobody else only my ex-partner, who saw first hand what I went through, understood. I couldn't even sit down down through the night, the only 'respite' was to walk. I stll get 'breakthrough' symptoms and still wake up every two hours all night every night. i dread the thought that the Ropinorole will stop working.
Just to clarify.it wasn't a sales thing, it was a university study from Utah seen on an Australian medical publication site. It isn't uv light , it is infra red light. I just thought it might be interesting.
We know its not sales pitch thedragon, I have also seen it before like niah has....it was very expensive...
Elisse, can you remember if it was on rls foundation or not, where we first saw it ?? bugging me as i can recall
I just saw it on the biomed site....put in restless leg and I think its the second page and yes its the same article...
Its was on the RLS Foundation, and i think they pulled it because of advertising..i think...it was a while ago now..... brain memory not so good these days..
you are correct, Elisse!
ha ha, yes we can come across some strange stuff when we go googling, but some good stuff to, so im goingto carry on with my googling
I know I am probably annoying some people with my (New to me ) discoveries. But when I find something , I just want to talk about it.I know lots of you have learned and read a lot more than I have and have been on this site much longer than me. So sorry but its just good to have people to bounce my stuff around with
I'm a bit pi***d off today as I broke my rib last week stupidly leaning over the sofa to reach an extension lead!!!! I can't work and not one of my colleagues has been in touch to see how I am. Poor me !!! And I must find an avatar!!!
Oh dear, you are down in the dumps are'nt you, and i dont think your annoying anyone, and we all like to show new stuff we have found, well i do, hope you ribs soon heals, i once broke my foot getting out of bed!! dont ask me how, it just went.
what kind of avatar are you looking for??
jean
Googling can be fun... it can turn up some good stuff, and the not so good, especially where RLS is concerned...
Hope your rib heals soon, that is painful.
So happy surfing...
Ive taken this week off work and next week is booked holiday so I am having quite a nice time not doing very much. and moving sloooooowly!
hey, nice avatar, looking veryyyy chic there
I live in Wisconsin, USA..they have tanning booths..
They have infra red beds...
It's about 8 dollars for 20 mins.
I have not even considered using it..
There has to be some money in the business,
they have several salons that are offering use.
A tanning bed would have nothing to do with light therapy. Legitimate light therapy, that does NOT cost undreds of dollars, is helpful if someone has to reset their inner body clock. It may re-reulate your brain, so it wants to go to sleep at a more reasonable time, but it technically is going to do nothing for RLS directly. Fun to google. like people have said, but be careful what you are reading and if you see dollar signs anywhere, run away fast to another web site. It is suggested for people who spend a long time going to sleep; if it has to do with the circadian rhythm, so it may help you sleep better, but if you have raging RLS, forget it, to put it plainly. The Biomed web site is at the very least questionable. Light therapy may help insomnia, but not a sleep related movement disorder.
have been on that site before. They are a company that SELLS "medical" equipment. I have seen that ploy on several web sites that disguise themselves as "informational web sites", but they are just trying to get your email, so they can sell you something. very common marketing ploy, just sayin...........
to be clear, I was talking about the biomed web site. Have not checked out the web site above, but will right now.
about the biomed site, i did fill in a questionarie about that device, and yep EMAILS
That is a case study on ONE woman. A lot of factors could have been into play there, and one patient does not make a study.
I know but one is a start!!!
Hi, The best lamps would have to be narrowband UVB for Vitamin D3 but these are expensive! I've tried a normal sunbed and had no benefit from it.
Best wishes
Steve
The blog started off mentioning NIR, near infra-red, which is a totally differant part of the light spectrum and not something which causes either visible changes in skin condition or cancer. If you have ever heard of "deep heat" lamps, they operate in the infra red part of the spectrum and do promote pain relief in muscle tissue etc.
Not what you're looking for?
Moderation team
