Aching lower legs: I am in the process... - Restless Legs Syn...

Restless Legs Syndrome

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Aching lower legs

Asha1918 profile image
11 Replies

I am in the process of trying to get off Sifrol completely and am very appreciative of your practical advice. 😊 I am going down in stages and I have reduced sifrol to 0.625mg plus 300mg gabapentin and sometimes a 1/2 to 1 Prodeine tablet (500mg paracetamol/9+gms codeine) per night. I have been wakened many nights by aching lower legs.

Do you have any ideas as to why this might be? I take my tablets at 7pm and I usually am awakened at around 3.30am. I get up for about an hour then go back to bed but usually find it difficult to get back to sleep.

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Asha1918 profile image
Asha1918
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11 Replies
Joolsg profile image
Joolsg

Sounds like normal withdrawal symptoms from Sifrol.Any withdrawal from dopamine agonists causes severe, increased RLS and wakes you during the night.

Have a look at RLS-UK website, Useful Resources and it sets out what to expect when reducing dopamine agonists.

Asha1918 profile image
Asha1918 in reply toJoolsg

Thank you. It's different from that awful need- to-move intensity that I think of as "restless legs". It's more of a constant ache if that makes sense ..

Joolsg profile image
Joolsg in reply toAsha1918

You can get very strange symptoms. Yes, it's usually an increase in the 'urge to move' but it can manifest as pain, aches, anxiety- depression.Hopefully the gabapentin will help reduce the pain & help getting you back to sleep.

You're doing really well.

Keep reducing slowly.

Cookiebum24 profile image
Cookiebum24 in reply toAsha1918

I have this terrible aching too since coming off Pramipexole. I get it in my ankles or my holds and thighs. When it’s in my thighs and holds, it’s a very deep intense ache that isn’t relieved from getting up and walking 😢

restlegs1 profile image
restlegs1 in reply toCookiebum24

What are holds?

Cookiebum24 profile image
Cookiebum24 in reply torestlegs1

I meant hips 🤣

Asha1918 profile image
Asha1918

Thank you. It's great to be a part of such a wonderful support group. I've only just realised that it's directly linked to the RLS UK organisation mentioned in your comments above! 🙄 🤣

Joolsg profile image
Joolsg in reply toAsha1918

Yes. It's run by RLS-UK.

violetta254 profile image
violetta254

Have you been to see someone about the aching legs? You could be experiencing peripheral neuropathy, not just withdrawal symptoms.

Asha1918 profile image
Asha1918

Thank you. I will follow up.

Cookiebum24 profile image
Cookiebum24 in reply toAsha1918

I mentioned it to my GP and queried it being neuropathy.

He told me to self refer myself to physio 🤦‍♀️

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