Ropinorole ween down update - Restless Legs Syn...

Restless Legs Syndrome

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Ropinorole ween down update

discgolfrules profile image
8 Replies

Been out of hospital for a month now. Been taking gabapentin and reduced ropinorole from 4 mg to 3.5 then to 3.25. Getting sleep, and noises and sound is still really loud, but I am able to maintain without completely losing my stuff. I don't let the noises make sense, because if I listen in, it starts to make words and then down the spiral we go. So I've been able to do this at home while taking care of my mom. Honestly would not recommend to anyone, this is my fourth time and have experience with the auditory hallucinations. Just wanted to say it is slowly getting softer and more quiet. Thank you everyone for your support.

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discgolfrules
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8 Replies
SueJohnson profile image
SueJohnson

That's great !!! So glad it is getting better.

SimonMorriss profile image
SimonMorriss

Well done you. Sounds quite hard but keep going it will be worth it in the end.

21years profile image
21years

Well done and all the best for your continued success.

DataRN profile image
DataRN

Good for you! Celebrate each success. Even when the road seems tough, remember it’s worth it and you are not traveling down it alone. Many of us have been there. Well done!

Pensionistaspain profile image
Pensionistaspain

my heart hoes out to you. You are obviously much stronger than you think xx

HipHop1972 profile image
HipHop1972

Hi discgolruled. Haven’t seen any of your previous posts but what you have been going through and still are sounds like a true living nightmare. I am so pleased that your condition is improving and that you’re back at home again, your Mom must have been so worried about you and hopefully she can see your improvement and is able to worry less. I think you’re amazing and proof that there can be life without Ropinirole and your story will be an inspiration to those of us trying to ditch that drug.

Best wishes

Seaux profile image
Seaux

You are impressive! So strong! It does get better.

Merny5 profile image
Merny5

So happy to hear that you are doing better

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