Helpful Site?

[kicker2]

Stumbled on this site. Possibly helpful for some.

Restless Legs Syndrome is a symptom not a disease.

[kicker2]

Oops... here's the link

rlcure.com/restless-legs-an...

[Eryl in reply to kicker2]

Yes, it confirms what I've been saying for some time, rls is diet related.

[bookish in reply to kicker2]

Some useful information there, thanks for posting.

[kicker2 in reply to bookish]

We're all in this together!

[Joolsg in reply to kicker2]

The Sibo link has been mentioned before. Unfortunately the test is only available Privately and is expensive. The antibiotics to treat Sibo are also expensive.Not everyone's RLS is caused by diet/Sibo though- so the article is a little misleading.

Kidney disease, anaemia and spinal damage can also cause RL.

[kicker2 in reply to Joolsg]

Thanks... and then "you" take antibiotics and FURTHER mess up your gut microbiome. Sigh. Vicious cycle.

[bookish in reply to kicker2]

Not necessarily - you might find some of this interesting when you get time purehealthclinic.co.uk/heal.... Norman Robillard's book Fast Tract Digestion - I have 'Heartburn' but there is an IBS version too, is also useful. Cheers

[DicCarlson in reply to bookish]

Hmmm - interesting link - a new take on SIBO and mention of a natural supplement (Atrantil) with excellent reviews on Amazon and other places. The breath test for SIBO is notorious for false negatives. If you have the symptoms it might be worth a try. The cascade from SIBO to RLS is compelling.

atrantil.com/

amazon.com/Capsules-Antioxi...

[bookish in reply to DicCarlson]

Hi, thanks for that. I know that testing can be less than ideal, as with so much else. I've never actually tested for SIBO although it may well be part of the mix for me. Combination of years of undiagnosed food intolerances, multiple antibiotics, considerable long term stress, low stomach acid , autoimmunity and some food poisoning. I'm very lucky, in that my RLS ( which I'd had for many years, like most of the women in the family) resolved. I've changed so much over the last few years of active research and self-treatment for increasing illness that I have no idea what 'fixed' it - I suspect it was a combination of factors rather than any one specific thing. I am grain free after finding a gluten issue, same with dairy. I was lacking iron, folate (methyl helped me with other neuro symptoms), B12 and also use magnesium which I found made a big difference. Still a work in progress! Micki has been hugely helpful to me and I have a couple of her books as well as factsheets. Cheers

[kelirock]

It has been renamed to Willis-Ekbom Disease and therefore would be considered a condition rather than a symptom.

[Hidden]

"Syndrome" actually means a cluster of symptoms that usually occur together. They aren't always due to a specific condition.

I believe RLS was possibly called a syndrome because "idiopathic" RLS had no known cause. However a lot more is known about the causes of RLS.

The current view of "primary" RLS is that it is a condition. There is now even some evidence that "secondary" RLS I.e. the RLS syndrome caused by other conditions doesn't occur in people who don't have the inherited predisposition. I confess I once viewed RLS as just a syndrome, but I think differently now.

It's one of the reasons that attempts were made to change its name to Willis Eckbom DISEASE.

The web site you mention is well known by some members of this forum.

Inflammation, and inflammation caused by diet has been shown to be a "mediating" factor in RLS so there is little doubt about that.

Hence some RLS sufferers may be able to control their symptoms by diet alone. Or at least reduce them.

However there are other causes of inflammation than just diet.

Overall, the claim that inflammation is the "root" cause of RLS is inaccurate. "Root" inferring it is the ONLY factor. A more fundamental "cause" is brain iron deficiency irrespective of inflammation.

I believe there are some good dietary tips on this web site, but for many people with severe RLS, diet, at best, may be of some help, but "cure" it isn't.

The WHO (World Health Organisation) code RLS as a "Sleep related movement disorder" I.e. a condition.

[DicCarlson]

I had found this website early on in this journey - lots of good information. But, nothing is "one and done" - all his suggestions for diet and supplements are a protracted therapy taking many months to "work". Diet is indeed powerful but RLS comes at us from many sources and many different combinations of complex biochemistry.