RLS flare from IUD?

[Newmomma567]

I’m having an awful flare right now. I’m wondering if it is related to the removal of my IUD (Mirena)? I had to get it removed because it caused unending pain for five months. But now that it’s gone, I’m having this intense flare up and I don’t know what to do. Help

[IrisCarter]

I don’t have any answers, but I also have RLS and will be watching for answers too.

[Newmomma567 in reply to IrisCarter]

I’m utterly convinced there is a direct relationship between progesterone and RLS. I’ve undergone years of IVF and whenever I’ve had my hormones messed with, I get a massive RLS flare.

[rls-insomniac]

Hi, I had a Mirena IUD for many years. I had it removed about 3/4 years ago. It made no difference to my RLS. Sorry that I can't offer you a more helpful answer.

[LotteM]

I had the same experience as rls-insomniac; also Mirena and also no effect on my RLS.

[BocaMom]

Does Mirena use hormones (sorry - never had one myself).

If it does, this would support my thought that hormones play a role in RLS for *some* people (not all of course). Mine has really escalated since menopause hit.

Argh I hope you find some relief soon!

[LotteM in reply to BocaMom]

Mirena has -some- hormones. Far less than "the pill". And yes, it is often during menopause when RLS flares up, as it does during pregnancy, most often third trimester.

Not much research into the relationship between (female) hormones and RLS unfortunately.

[Newmomma567 in reply to BocaMom]

Yes, it’s a synthetic progesterone that ALLEGEDLY is low-dose. All I can say is that when I got one I had to increase an antidepressant after multiple panic attacks, had crazy water weight gain, had intense pain for months (even though it was “placed correctly) and felt like general sh*t. But “not side effects.” 😑 I have friends who love theirs though, so I feel like I’m insane.

[BocaMom in reply to Newmomma567]

I don’t think I would have done well with that either if it has been available back in the day. Never tolerated birth control pills well. Hoping for better days ahead for you!

[BocaMom]

I’m starting an estradiol patch and will report back.