Are there other remedies or Medications for Severe RLS?

[boohmalone]

I have severe RLS and have been taking Ropinerole ER. I have to take the extended release because the other makes me very sick. Even with my GoodRX card the best price that I have been able to find is $248 for a months supply. It just keeps going up and I don't know what else to do. Does anyone know of a substitute that has worked for them? Im not speaking of someone with slight RLS. I'm speaking of EVERY night, even during the day RLS episodes.

Hoping someone can give me some hope that actually works.

[macewan13]

Hello boohmalone,

When I was on Ropinirole, I either felt sick or was sick. I am now on a combination of Pregablin and Tramadol. It sometimes makes me sleepy during the day but there is no sickness and it works pretty well for RLS.

GOOD LUCK.

[Joolsg]

Please read the pinned post - top right- about Augmentation. If your RLS is severe and you're getting it in the day and you are on ER Ropinirole, it's highly likely you are in augmentation.

Many of us with severe RLS have augmented on ropinirole or pramipexole and reduced slowly over many weeks with the help of a strong opioid like tramadol or oxycontin.

Other meds for severe RLS include the alpha2delta ligands ( pregabalin, gabapentin and in the USA, Horizant) or opioids like tramadol, oxycontin or in the USA, methadone.

Methadone is preferred by US experts because it does not cause a "high"nad so can be taken at low dose for many years.

Find a good doctor ( I presume you are in the USA as you mention having to pay for your meds) who knows about RLS and how to treat it.

I know the US RLS foundation keeps a list of doctors who can help.

What state are you in?

[involuntarydancer]

I absolutely echo everything Joolsg and macewan13 say. I would look at the possibility of augmentation and also check your serum ferritin as it should be well over 100 with rls.